05/04/2025
May is Ehlers-Danlos awareness month. People with Ehlers-Danlos have a significantly high correlation with having an Autism or ADHD diagnosis. Talk to your healthcare provider if you or a loved one have Autsim or ADHD and joint hypermobility with more than one body system disorder.
đŚ May is Ehlers-Danlos Syndrome (EDS) Awareness Month.
We have a focused interest in the topic of EDS for several reasons. đŚ
1) There is a higher prevalence of Autism in the EDS population than there is in the general population. There is a demonstrated correlation between Hypermobile EDS (hEDS) and Autism.
2) Jacquelyn has a hyper-mobile EDS profile (hEDS).
3) Amy participated in EDS ECHO for health care providers gathering information and learning.
4) As a part of this process, It became apparent to both of us that there is not enough information available to the autism community about what EDS is and why/when you might want to talk to your /your family member's doctor about it.
âď¸âď¸5) hEDS often presents with Dysautonomia and Postural Orthostatic Tachycardia Syndrome (POTS). Both of these presentations cause some wicked Feelzzz in the body. These Feelzzz can result in a person resisting position changes, refusing tasks, and seeking of inputs (aka- challenging behaviors in some circles). If a person isn't able to express / communicate their Feelzzz and link those to their behaviors - caregivers may unintentionally be creating medical distress.âď¸âď¸
6) hEDS and EDS are multi-system syndromes. Diagnosis can be elusive. But, management of symptoms is critical for health and quality of life.
Below is a one page flyer containing information about hEDS, the link to autism, some associated symptoms, when to talk to your doctor, and where to find more information.
To download the .pdf of the flyer or review the attached image with a document reader please find link in comments