SCA27b Ataxia Foundation

12/01/2025

Our next Zoom discussion meeting will be on Tuesday, DEC 9, 4:00-6:00 EST (US/Canada). We hope to see you there!

If you are not on our email list and would like to attend the meeting, please fill out the short membership form at sca27b.org . Membership is free.

Send a message to learn more

12/01/2025

Join us Wednesday, December 10th at 1pm CST, for our “Ask the Expert” webinar with Dr. Susan Perlman to answer your questions about Ataxia. This is an informal discussion-style webinar without a set topic. Closed captioning is available. You will have the opportunity to ask any questions you have related to Ataxia. Don’t have a question? Join us to listen in!

Register here: https://us02web.zoom.us/webinar/register/2717331681732/WN_0HzuSGQuQx6cci4SC4mc_Q

12/01/2025

If you would like to attend the National Ataxia Foundation's patient conference in Orlando this spring, but need funding for travel. Complete their travel grant application.

Every year our community comes together to learn, connect, and drive progress at the Annual Ataxia Conference (AAC). To ensure everyone has the chance to be part of this experience, Travel Grants and Virtual Scholarships are available to support participation in Orlando.

Travel Grants for in-person attendees includes complimentary conference registration ($300 value) and up to $1000 in travel support (provided at check-in)
Preference will be given to first-time attendees so apply by 12/3/25!
Virtual Scholarships for online attendees includes complimentary virtual registration ($50 value) and the deadline is 3/20/25!

Apply at www.Ataxia.org/2026AAC

09/29/2025

Every year our community comes together to learn, connect, and drive progress at the Annual Ataxia Conference (AAC). To ensure everyone has the chance to be part of this experience, Travel Grants and Virtual Scholarships are available to support participation in Orlando.

Travel Grants for in-person attendees includes complimentary conference registration ($300 value) and up to $1000 in travel support (provided at check-in)
Preference will be given to first-time attendees so apply by 12/3/25!
Virtual Scholarships for online attendees includes complimentary virtual registration ($50 value) and the deadline is 3/20/25!

Apply at www.Ataxia.org/2026AAC

09/27/2025

Our next Zoom discussion meeting will be on WED, OCT 22, 4-6:00 EDT (US/Canada). If you are not on our email list, and would like to join this meeting, please email us at sca27b@gmail.com to request the Zoom link.

Researchers from the University of Chicago will be joining us to discuss the preliminary results from their study on the effect of lifestyle/environment on the age of onset and progression of symptoms in SCA27B.

This should be a great meeting ... looking forward to seeing you there!!

Send a message to learn more

09/21/2025

Join NAF this month on Thursday, 9/25/25 at 9 AM Central, for a webinar about NAF's Ataxia Centers of Excellence (ACE) program. NAF's Clinical Services Director Kelsey Trace will share the impact ACEs are having across the community with the help of Dr. Sharan Srinivisan, co-director of the University of Michigan ACE.

Register here: https://us02web.zoom.us/webinar/register/3017259933474/WN_Yx7vT7zFQW-jWpt6huIiEw

09/06/2025

Our next SCA27B Zoom meeting will be on WED, SEP 10, 4-6:00 EDT (US/Canada). If you did not receive a Zoom invite and would like to join us, please email sca27b@gmail.com to request the link.

Send a message to learn more

08/26/2025

For those of you living in the Phoenix area - Molly Lawson will lead the Arizona ataxia support group on September 6 at two pm at Ability 360 ( https://ability360.org/ ). This support group is not specific to SCA27B, but it will give you a chance for an in-person meeting with other people with ataxia utilizing neurologists in the area.

Ability360 continues a 35-year tradition offering and promoting programs to empower people with all disabilities to take personal responsibility so that they may achieve or continue independent lifestyles within the community. The independent living philosophy states that people with disabilities sh...

08/26/2025

A new study is collecting opinions about gene therapy research from people diagnosed with a genetic Ataxia.

Learn more about the study here: https://www.ataxia.org/study/ataxia-gene-therapy-survey/

08/23/2025

Join us Wednesday, September 10th at 1pm CDT, for our “Ask the Expert” webinar with Dr. Susan Perlman to answer your questions about Ataxia. This is an informal discussion-style webinar without a set topic. Closed captioning is available. You will have the opportunity to ask any questions you have related to Ataxia. Don’t have a question? Join us to listen in!

Register here:https://us02web.zoom.us/webinar/register/3517331681183/WN_vjPMuWgoTBab0LKU67kMGQ

08/14/2025

Join us next month, August 20th at 12 pm CDT, for our Chair Yoga Webinar with . This is a great opportunity to learn some low impact, mobility-friendly exercises that you can do from the comfort of your chair.

Register here: https://us02web.zoom.us/webinar/register/4617331694348/WN_jgXdgp0vQ5G2CPfrE3MWhg