03/14/2024
I love this post for so many reasons. I truly believe knowledge is power. So often we only see the external behaviors and don't stop to consider the internal experience of others, when it is that internal experience that is the core of the person. Also, this highlights the importance of amplifying the voices of those most impacted- people with the specific neurotype! Because it IS so important to understand the internal drives, we need to make space for people to share their experiences, and accept their shared knowledge.
Thank you to Autball for creating and sharing this graphic!
I’ve seen posts talking about how a lot of the things people call “autism traits” (or worse, “symptoms”) are really distress behaviors. Some also go on to explain what autism really is based on internal experiences using non-pathologizing language. Trauma Geek - Trauma and Neurodiversity Education did one fairly recently about ADHD, too.
So I thought I’d do one about PDA (Pathological Demand Avoidance), because an awful lot of people just think PDA = extreme distress behaviors.
It’s really not. The behaviors listed here can happen for lots of different reasons. What makes PDA different from all of those other possible causes is something you can’t tell from the outside looking in. Plus, you may not even see anything at all if you’re dealing with a person who internalizes their distress or has coping mechanisms that help them fly under the radar.
The internal experience is what defines PDA, not a collection of behaviors.
Just like autism is not meltdowns and “poor social skills,” and ADHD is not hyperactivity and and a deficit of attention, PDA is not controlling behavior and aggression. This is one of the reasons why so many of us say, “Look past the behavior to find the unmet need.”
I’ll put a link to Janae’s (Trauma Geek) post about ADHD in the comments, and if anyone has a similar one about autism, feel free to share it! (There’s one in particular I’m thinking of, but I can’t remember where I saw it for the life of me.)
[Image description: Infographic by Autball entitled: PDA vs OUTWARD BEHAVIOR. *PDA = Pathological Demand Avoidance.
A white box with blue text labeled “Internal Drivers” reads: PDA is - Hypersensitivity to the perceived loss of or threat to personal autonomy and Highly sensitive Neuroception.
A larger white box with blue text is labeled “Coping Mechanisms and Stress Behaviors.” It reads: PDA is not -
Saying no;
Doing the opposite;
Arguing;
Hurtful words;
Yelling;
Controlling behavior;
Threats;
Making up excuses;
Complying;
Running away;
Hiding;
Physical aggression;
Getting quiet;
Revenge;
Bargaining;
Pretending to be something else;
Doing nothing;
Doing things their own way;
Doing things while no one is looking;
Pretending not to hear you;
Doing things before anyone can ask.]