08/31/2024
Update! 8/30/2024
First, I want to thank everyone that has helped us with financial donations and, prayers tremendously! Please know that your donations have helped significantly.
We are still raising funds for this extremely expensive procedure
I will go over how your donations help.
Please read!
I'd like to update you on where we are with LaToya and the transplant.
We have had over 50 appointments between now and February.
We really thought it would be in March or April.
As Toya's lungs have rapidly declined, they decided between now and the transplant to give her Rituxan treatments. Rituxan is not chemo therapy, though it is similar in treatment. These are 1000ML IV drips. Look Rituxan up. It helps slow down scaring when it gets to this stage. It's an expensive treatment. For each 1000 ml it is $10K x 10 = $100,000 x for four treatments. Yes we have great insurance but wow. The Rituxan helps but it lowers her immune system to zero and causes so much fatigue.
Ever since February, as we've waited and gone through so many loopholes, set backs, we've lose significant weight to make the recovery easier, repeated test.
Vanderbilt Hospital is super thorough.
We have had to keep Toya in a bubble for the past months. We both work from home so it works out. We walk in our controlled environment but we've had to depend mostly on diet, as we are concerned that over exertion will complicate things and cause pulmonary hypertension from the heart trying to compensate for the damaged lungs trying to breathe.
Here is how your donation helps out:
Right now we have so many appointments exceeding PTO. We really could use a generous helping hand, with the missed days of work, short checks, sick days, hospital and multiple Dr. visits.
We've had multiple (like 15} doctors appointments over the last 3 weeks, as we near the transplant. We have met with every doctor, social worker, financial director, to make sure everything is a check before this transplant.
WE ARE 100% READY!
Next week we are getting a right Heart Cath procedure which will move us ahead on the donor list. To prevent heart issues too.
The money you generously donate will help us with bills, utilities etc. It will feel the gap when we both have to take the day unpaid for appointments due to the disease and side effects from medicines. It will give peace of mind to take days due to exhaustion from appointments and infusions which have grown more frequent.
Your generous donations will and have paid for the exurbanite electric bills due to oxygen generator running 24/7 plus the rental of Oxygen tanks. LaToya is now on 10 litters of oxygen when active, 5 litters when still. It will help with in home nurse visits and co pays
Your generous donation will help with lodging when our family and back up caretaking comes. We have learned that Vanderbilt Hospital has short term rentals that are reasonably priced.
We have all the confidence in the world this transplant will be a success.
Right now I am my wife's primary care taker along with our parents.
I want to thank you all for the help, support and prayers.
WE ARE ON OUR WAY!
GOD BLESS!
https://gofund.me/55c872c8
