ICARE - Inherited Cancer Registry

ICARE - Inherited Cancer Registry ICARE is a research study that aims to establish a registry of individuals interested in participating in inherited cancer research studies.

Our page is not a substitute for medical advice. ICARE is a questionnaire-based research study established in June 2010, representing a clinical-research-community partnership among medical practitioners, researchers, and members of the general population.Through ICARE, we hope to improve access to cancer genetics expertise for patients and healthcare providers. The common goal of our efforts is to improve the lives of patients and families at risk for inherited cancer susceptibility. This involves performing research in all aspects of familial cancer spanning from prevention and detection to treatment. There is no cost to participate in ICARE and communications can be conducted via phone, email, or mail. If inherited cancer has affected you or a family member, we encourage you to explore our website where you can learn more about ICARE and the services we offer, as well as join our registry.

04/12/2026

If you have a history of breast cancer and a mutation in the PALB2 gene, you may be eligible to contribute to tumor genomics studies to help better understand inherited breast cancer in PALB2 carriers. Through the Inherited Cancer Registry (ICARE), we are studying:
- breast cancer characteristics
- factors associated with outcomes, including treatments
- tumor genomics to better understand pathways to tumor development

With your help, we hope that one day our research may lead to new or refined treatment strategies! To learn more about participating in ICARE or if you'd like to enroll online, please visit https://redcap.link/ICAREconsent. Once you are enrolled into ICARE, our research team will assess your eligibility for this and other focused research efforts.

04/11/2026

Curious about inherited cancer and the latest breakthroughs? Look no further than the ICARE YouTube channel! 🎥 Join genetics experts as they dive into discussions on important topics like updates to NCCN cancer risk management guidelines and insights into specific inherited cancer genes. Don't miss out on some of our top-viewed videos that cover topics like the management of CHEK2 carriers, long telomere syndromes, care for gender-diverse individuals, and the most recent NCCN guideline updates. Visit our channel and subscribe today at: https://www.youtube.com/

A mutation in PTEN can increase the risk for certain cancers. Early screening and regular checkups are key to staying ah...
04/10/2026

A mutation in PTEN can increase the risk for certain cancers. Early screening and regular checkups are key to staying ahead. To learn more, check out the full National Comprehensive Cancer Network (NCCN) guidelines by creating a FREE account at:
https://f.mtr.cool/fbamlrbkkz
https://f.mtr.cool/xgzaroibzx

If you tested positive for PTEN, we’d love to hear from you in the comments – we know that information and guidelines are changing quickly. How do you keep up?

If you aren’t already enrolled in ICARE, visit https://f.mtr.cool/yzajllpknf to enroll and receive care updates as new guidelines come out.

Inherited Cancer Misconception vs. Reality ⤵Misconception: Inherited cancer testing is only for breast or ovarian cancer...
04/10/2026

Inherited Cancer Misconception vs. Reality ⤵

Misconception: Inherited cancer testing is only for breast or ovarian cancer.

Reality: Inherited mutations are linked to many cancers — including colorectal, prostate, pancreatic, melanoma, and uterine cancers, among others.

Why is funding for science so important?• Money for research is used to find new cures for cancer• Research today allows...
04/09/2026

Why is funding for science so important?
• Money for research is used to find new cures for cancer
• Research today allows for cures for tomorrow
• Less research done will lead to more deaths from cancer

Remember, funding science will lead to better ways to find, prevent, and treat cancer. Share this post so we, the people, can spread the word about why cancer research is important!

Check out the recently released ACMG Clinical Practice Resource on RAD51C, RAD51D, and BRIP1, developed through a group ...
04/09/2026

Check out the recently released ACMG Clinical Practice Resource on RAD51C, RAD51D, and BRIP1, developed through a group of worldwide experts! 🌍👇

https://f.mtr.cool/tkzosiwhbg

Did you know that by participating in ICARE you may be able to contribute to other research efforts?For example, ICARE h...
04/09/2026

Did you know that by participating in ICARE you may be able to contribute to other research efforts?

For example, ICARE helps facilitate:
• Genomic studies on tumor samples to better understand tumor development
• Other focused research efforts to help figure out cancer risks and improve outcomes in cancer patients

To learn more about participating in ICARE or if you'd like to enroll online, visit https://redcap.link/ICAREconsent

04/08/2026

Did you know that about 80% of genomics data comes from European populations, yet they only make up about 16% of the world population? This bias means Europeans stand to benefit the most, while important associations for other ancestry groups may be missed.

Not including diverse populations in genomics research can further WIDEN disparities!

🚀 Introducing the NCCN Guidelines Navigator™ - Version 1.2026!Explore this new interactive, color-coded platform designe...
04/08/2026

🚀 Introducing the NCCN Guidelines Navigator™ - Version 1.2026!

Explore this new interactive, color-coded platform designed to simplify navigation of NCCN's Genetics/Familial High-Risk Assessment: Breast, Ovarian, Pancreatic, and Prostate cancer guidelines. Whether you're a clinician, researcher, or advocate, this tool helps you stay informed and make confident decisions in cancer care.

Start exploring now by creating a FREE account at:
https://f.mtr.cool/vbfqdrlbom

Healthcare providers play a vital role in helping eligible and interested patients find our registry. Swipe through to l...
04/08/2026

Healthcare providers play a vital role in helping eligible and interested patients find our registry. Swipe through to learn how referring to ICARE can benefit your patients, and how simple the referral process is.

If you have a patient who may be interested in contributing to inherited cancer research, consider referring them to ICARE by using our online referral form at: https://f.mtr.cool/mtkykensuf

A mutation in STK11 can increase the risk for certain cancers. Early screening and regular checkups are key to staying a...
04/07/2026

A mutation in STK11 can increase the risk for certain cancers. Early screening and regular checkups are key to staying ahead. To learn more, check out the full National Comprehensive Cancer Network (NCCN) guidelines by creating a FREE account at:
https://f.mtr.cool/ktcmhwsrgl
https://f.mtr.cool/iarxnsrard

If you tested positive for STK11, we’d love to hear from you in the comments – we know that information and guidelines are changing quickly. How do you keep up?

If you aren’t already enrolled in ICARE, visit https://f.mtr.cool/melilvfjdg to enroll and receive care updates as new guidelines come out.

Today is World Health Day! In recognition of World Health Day, we would like to highlight the importance of cancer scree...
04/07/2026

Today is World Health Day! In recognition of World Health Day, we would like to highlight the importance of cancer screening and prevention. Speak to your healthcare provider today to see if genetic testing for inherited cancer is right for you, and to ensure you are up-to-date on your cancer screenings. Remember, early detection is our best defense in the prevention of inherited cancer.

Help spread awareness by sharing this post with friends and family!

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ICARE is a questionnaire-based research study established in June 2010, representing a clinical-research-community partnership among medical practitioners, researchers, and members of the general population. Through ICARE, we hope to improve access to cancer genetics expertise for patients and healthcare providers. The common goal of our efforts is to improve the lives of patients and families at risk for inherited cancer susceptibility. This involves performing research in all aspects of familial cancer spanning from prevention and detection to treatment. There is no cost to participate in ICARE and communications can be conducted via phone, email, or mail. If inherited cancer has affected you or a family member, we encourage you to explore our website where you can learn more about ICARE and the services we offer, as well as join our registry.