Watch 4 Wegeners

05/08/2026

It’s not “just being tired.”
It’s not “just a rash.”
It’s not “just sinus issues.”

For many living with vasculitis, the most common symptoms get overlooked. Fatigue that doesn’t go away, constant pain, unexplained rashes, sinus problems, and so many “invisible” symptoms others can’t see.

During Vasculitis Awareness Month, we’re shining a light on what’s often dismissed.

Because these symptoms are real, and so are the people living with them. 💜

Learn more at vasculitisfoundation.org/vam.

05/08/2026

There is no roadmap for vasculitis but there is support 💜

Applications are now open for the summer session of Navigating Your Vasculitis Journey.

This six week online program offers practical tools, guided conversations, and a supportive community of people who understand the reality of living with this disease.

You are not expected to do this alone.

🗓️ Space is limited. Apply here: https://www.surveymonkey.com/r/HK5Q796

05/08/2026

For 40 years, our community has been united by one powerful belief: no one should face vasculitis alone.

Because of supporters like you, we’ve made incredible progress:
• $3 million invested in 80+ research studies
• 26 vasculitis centers across 11 countries
• Hundreds of thousands connected to life-saving support and education
• Countless lives reclaimed

This month we honor our Community Heroes and look ahead to the next 40 years of hope and discovery.

💙 Make a gift today to power what comes next: vasculitisfoundation.org/make-a-donation/

Thank you to our VAM sponsor Amgen! Learn more about GPA and MPA at www.ancaresourcehub.com.

Support Vasculitis Awareness Month at vasculitisfoundation.org/vasculitis-awareness-month/

04/10/2026

04/10/2026

Please share, especially with any providers you know.

02/27/2026

The National Organization for Rare Disorders (NORD) is the official U.S. Sponsor of Rare Disease Day.

02/27/2026

We’re excited to share that Jodi Hall, our Patient Support Manager, is attending Rare Disease Day at the National Institutes of Health (NIH) in Bethesda, MD!

Jodi is presenting her research poster, “Information Needs of Patients with Vasculitis,” highlighting what patients really need when navigating life with this disease.

We’re so proud to see patient voices represented in spaces like this — and grateful for Jodi’s work helping bring the vasculitis community’s experiences to the forefront. 💜

02/13/2026

Please click the link and read the informative article. You might save someone's life.

Getting diagnosed isn’t always easy, especially with an autoimmune disease. Keeping a symptom log, knowing your family history, pursuing second opinions, and partnering with your doctor can make all the difference.

For more tips, visit https://autoimmune.org/resource-center/diagnosis-tips/

02/05/2026

💙💜 Pittsburgh shines for the rare disease community 💜💙

Thank you to the City of Pittsburgh for lighting up the City-County Building in honor of Rare Disease Day on February 28.

If you’re in the area that day, please snap a photo of the illuminated City-County Building and share it to help raise awareness and show support.

📸 Post your photo using and help light the way for rare disease patients and families.

02/05/2026

Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan)

We understand that updates about treatment options can raise questions and concerns. We’ve shared an official statement to provide clear, accurate information for our community.

For the most current information, patients and clinicians are encouraged to review Amgen’s official updates:
◾ Patient information: amgen.com/tavneos-update
◾ Healthcare provider information: amgen.com/tavneos-prescribers

To read our full statement online, please visit vasculitisfoundation.org/tavneos-update.

02/05/2026

Let's kick some autoimmune disease's butt!

Yesterday, President Trump signed a bill that provided a $415M increase in funding for the National Institutes of Health. This bill is transformative and will lead to increased life-saving and life-changing cures and treatments for autoimmune patients. We are grateful to all of the Senate appropriators who pushed for this funding increase.

Senate Appropriations Committee
National Institutes of Health (NIH)