10/28/2022
Kidney failure/dialysis patients NEVER GET RESPITE. We NEVER go into REMISSION. NEVER. We must continue dialysis at home or in clinic, FOREVER. Or die. Yes you read that right. We never get better. Think about that. We NEVER get better. Never get a break of extra time off. Never a vacation.
We get anemic, low iron stores, fatigue, foggy brain, weakness, special diet, often need multiple shots per month. We end up with heart disease, hyperparathyroidism which negatively impacts the bones. We often have multiple surgeries & procedures, sitting for many hours, being stuck by large bore needles. We often get muscle cramps & suffer from what we call "dialysis hangover". We didn't cause our organ failure, nor is it caused by alcoholism. Many causes are genetic. Or just dumb luck. We often don't even look ill, but be assured we are on the brink of death.
We often feel alone & a burden to others.
We get sepsis & must still do dialysis.
We get a stomach bug & must still do dialysis.
Break a leg...
Get in a car accident
Get pneumonia
Have surgery
Travel to a wedding, funeral, vacation
BUT WE MUST STILL DO DIALYSIS.
Dialysis is our life support. We can choose to stop Dialysis, but we will die. It may take days or weeks but death shadows our lives. We don't get respite or remission or vacation from our kidney failure.
Transplant is NOT a cure, only a treatment.
We don't get better. We only walk the razors edge between life & death...EVERY minute, hour, day, month, year.
Don't pity us.
Don't ignore us.
Be kind, be understanding, be compassionate. Continue to invite us. Dont forget about us.β₯οΈβ₯οΈβ₯οΈ
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