The Inclusion Body Myositis Registry at Yale

04/06/2026

Registration is now open for TMA's 2026 Global Myositis Patient Conference, MyoCon 2026!

MyoCon 2026, Global Myositis Patient Conference | St. Louis, Missouri | September 24–27 in St. Louis, Missouri, USA

05/27/2025

The Inclusion Body Myositis Disease Registry at Yale is a collaborative initiative between the Yale School of Public Health, medical professionals and proactive people with IBM.

05/02/2025

Sign up now to attend TMA’s Global Myositis Patient Conference in September 2025.

TMA’s 2025 Global Myositis Patient Conference | Dallas, Texas, USA | September 18–21. The MyoCon2025 ends on World Myositis Day. Don't miss!

03/05/2024

This year’s TMA Annual Patient Conference will take place in Baltimore, Maryland on September 6-8, 2024, at the Hilton Baltimore Inner Harbor Hotel. Registration opens in early April. See the link below for a preliminary schedule. TMA will provide more information, including a detailed session schedule, as it become available.

2023 International Annual Patient Conference: Celebrating YOU Our Myositis Heroes I September 7–10 | San Diego, CA

05/18/2023

Abstract. Inclusion body myositis (IBM) is an autoimmune and degenerative disorder of skeletal muscle. The B cell infiltrates in IBM muscle tissue are predomina

05/03/2022

https://strongly.mda.org/simply-stated-inclusion-body-myositis-revisited/

04/18/2022

https://www.healthing.ca/what-it-feels-like/what-it-feels-like-a-positive-outlook-on-a-disease-without-a-treatment

Imagine one day your doctor tells you “ We don’t know what caused it. We don’t have any treatment for it and we sure don’t have any cure for it.” That was Tom Wood’s experience when he was diagnosed with sporadic inclusion body myositis (sIBM), a rare disorder that is estimated to affect...

02/09/2022

https://www.hopkinsmedicine.org/news/articles/musician-peter-frampton-provides-johns-hopkins-with-new-insights-for-treating-inclusion-body-myositis

News and Publications > Articles Musician Peter Frampton provides Johns Hopkins with new insights for treating inclusion body myositis Peter Frampton performs on stage. | Photo by Amy Harris Musician Peter Frampton provides Johns Hopkins with new insights for treating inclusion body myositis By Ja...

02/08/2022

For those interested, TMA's 2022 Annual Patient Conference: A Focus on the Future, is scheduled this year September 8 - 11, 2022, in Orlando, Florida. Conference agenda, online registration (including early registration), and lodging information are available at:

Join The Myositis Association for our 2021 International Annual Patient Conference, “The Power of US!”. TMA invites you to our 3-day completely virtual experience featuring myositis specialists and expert presenters on everything related to myositis and its treatment.

01/22/2021

Join The Myositis Association (TMA) TODAY and each Friday at 12pm est for .

TMA’s 2020 Virtual Annual Patient Conference provided a unique opportunity for myositis patients, care partners, and experts to come together to address topics including myositis research, technological advancements, clinical care best practices, support, resources and the needs of myositis patients worldwide. Join them weekly on Fridays at www.myositis.org for access to their .

Watch today, 12PM Eastern Standard Time, at: https://youtu.be/haXnfRClwMc

For more information, please go to: https://www.myositis.org/blog/join-our-myomatinee/

We work to provide education, research and support to the myositis community. Find resources, learn about treatments and connect with others like you.

01/14/2021

Join The Myositis Association on Wednesday January 27, 2021 at 6PM Eastern Standard Time for a Virtual Meet & Greet with their new Executive Director, Chrissy M. Thornton.

You may access the webinar at: http://bit.ly/tmameetgreet

For more information, please go to: https://www.myositis.org/myositis-library/webinar/

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