CT Center for CranioSacral Therapy

06/07/2025

I'm a proud zebra!
pride festival

05/27/2025

We are going to have a Really Nice time in NICEVILLE, FL!
There's still room in the class and time to take advantage of the early bird rate! If you are a manual therapist who treats people with Ehlers-Danlos Syndrome and/or Hypermobility Spectrum Disorder, and you feel a little lost sometimes, this class is essential!
I hope you can join me!

05/13/2025

Join us for OsteoFascial Integration in Niceville, FL, July 11-14!
Early registration rates end next May 31!

05/02/2025

05/02/2025

Help me raise awareness on EDS/HSD!

04/28/2025

We’re excited to participate in this year’s Walk & Roll Event for the Ehlers-Danlos Society! Follow and support our progress!
We invite all our friends and clients to join our team! Let me know if you’d like to participate!

The #1 platform for livestream and digital fundraising

04/28/2025

May is Ehlers-Danlos Syndromes Awareness Month!

Very dear to my heart are my clients with EDS/HSD.
Ehlers-Danlos Syndromes are a collection of connective disorders which affect the integrity of the very protein that holds bodies together. Without connective tissue integrity, the body struggles to maintain biomechanical stability and functional stability.
What do I mean by that?

I mean that every party of the body can become dysfunctional simply because the tissues aren't strong enough to hold together. This can lead to issues with joints, the gut, the heart, skin, blood vessels, the nervous system, brain function, ears, eyes, teeth and gums, reproductive system, the spinal column... The list is endless.

I have dedicated more than a decade to establishing best practices within my field for treating people with EDS, and raising awareness of eds with my colleagues, friends, family and anyone willing to listen... I have been an active member of the EDS Society since it's inception, and other organizations before that...I am the founder and team lead for the Northeastern CORE Network of Excellence with the EDS Society and have launched the Stager Institute of OsteoFascial Integration, a manual therapy training program to advance best practices among all fields of hands-on therapy, specific to EDS. I co-founded the CT Zebras Support group with my daughter...

And most importantly of all, I am the mom of two adult children with EDS and have EDS myself.
I UNDERSTAND!

I'm tired, but I'm just getting started. ❤️
This is next adventure:

https://www.ehlers-danlos.com/may-awareness/walk-and-roll/?fbclid=IwY2xjawJ8iRZleHRuA2FlbQIxMQABHq_Gtl3rMGdH9nGZHY0Ga-XdsizgvjZiHqY_4TbLGDCqRTbdG9SnbGD1H-aL_aem_8dUj7kVbOQkC7AdjC575pw

This May, unite with The Ehlers-Danlos Society for our biggest Walk and Roll Challenge yet! Across the world, millions are living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). They face delays in diagnosis, barriers to care, and limited research—but together, we ca...

04/10/2025

🗣️ Throat Symptoms and EDS and HSD

Did you know that throat and voice issues are common in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD)?

Latest research findings from Williams, H. R., Wood, G., Hakim, A. J., Birchall, M. & Hirani, S. P. (2023) in the paper, "Self reported throat symptoms in Ehlers–Danlos syndromes and hypermobility spectrum disorders: A cross-sectional survey study." Laryngoscope Investigative Otolaryngology, 8(5), pp. 1259-1264. doi: 10.1002/lio2.1120

- 86% of participants reported acid reflux (LPR) symptoms.
- 79% experienced swallowing difficulties (dysphagia)—including choking, food getting stuck, and throat fatigue.
- Over 50% reported voice problems (dysphonia) such as hoarseness, loss of voice, or creaky/dry vocal quality.
- Temporomandibular joint (TMJ) issues were also highly prevalent, especially in hEDS patients (57.3%).
- hEDS patients had the most severe symptoms compared to other EDS/HSD subtypes.

Why does this happen?
The muscles in the throat, tongue, and voice box are affected by hypermobility, leading to fatigue, instability, and difficulty with swallowing or speaking. Just like other muscles in EDS, they can become weak or uncoordinated over time.

Why Research Matters
A 2023 study asked 1,620 participants to fill out surveys online. Many members of EDS UK took part, enabling researchers to measure symptoms like acid reflux, trouble swallowing, and voice issues. Without their input, these issues would remain under-recognised!

What Can Help?
✅ A referral pathway is recommended: GP → ENT → Speech & Language Therapist (SALT).
✅ Tailored therapy and voice training can help manage symptoms.
✅ Small, frequent meals (instead of large ones) can ease swallowing difficulties.
✅ Textured foods (avoiding mixed consistencies) may improve swallowing.
✅ Voice rest & gradual strengthening—find the right balance between use and recovery.
✅ Temperature & carbonation adjustments (cold, hot, or fizzy drinks) may help with swallowing awareness.

Find this paper here: https://pubmed.ncbi.nlm.nih.gov/37899864/