Addy's Army

Addy's Army Addy's Army will:
1. Sustain the Addy Kate Kaczmarski Memorial Scholarship
2. Support families in crisis due to a cancer diagnosis
3.

Support cutting edge research based on the newest and most promising clinical trials, wherever they may be occurring

09/25/2025

Nothin'...I literally have nothing....nothing to say, nothing to do to help.....the cumulative toll of watching your child go through this.....just nothin' left.....sorry isn't even close to being enough for this family.....

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09/24/2025

If you follow Addy's Army at all.......God......I just don't get it......just take a quiet moment and try to shoulder one ounce of the burden this family is feeling.....as one who experienced it, those little ounces add up and really do help the absolute crushing weight they are feeling.....

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And your legacy goes on.....
09/04/2025

And your legacy goes on.....

09/03/2025
Hey babygirl, I've been sitting on this one for awhile; it's got me pretty confuzzled to be honest.  I have mixed emotio...
08/25/2025

Hey babygirl, I've been sitting on this one for awhile; it's got me pretty confuzzled to be honest. I have mixed emotions about this; why did YOU have to be one of the nine (9) adolescents in the world to have this disease and be chosen for THIS particular arm of THIS particular study? I'm selfish.....someone else could have been heroic and provided this knowledge.....and then I think; what if YOU were the only one, at the time, that was actually STRONG enough to forge this new breakthrough? What if it was YOU all along that was supposed to teach the healthcare professionals what it took to get to this milestone? And then I'm PROUD.....so PROUD....

Selfishness vs. Pride.....I've decided to let myself be both.....

YOU DID THIS ADDY KATE....YOU.....NOBODY ELSE.....God your family and friends love you and you still continue to change the world....

FDA approval of ONC201 (DORDAVIPRONE, now MODEYSO™) is the first and only treatment for recurrent H3 K27M-MUTANT Diffuse Midline Glioma. Pre-clinical studies by PNOC’s DMG Working Group members contributed to this historic milestone, FDA approval will further bolster PNOC’s combination therapy...

08/08/2025

Hey Representative Tom Tiffany, now that California/LA is back on fire, don't you think it would be appropriate to mail Canada and apologize in advance for the US ruining the rest of our Canadian friends summer? Only seems fair to reciprocate your asinine complaint to the Canadian government about ruining ours?

Addy's Army is grateful to donate towards the loss of Sydney Hein's father; https://l.facebook.com/l.php?u=https%3A%2F%2...
07/11/2025

Addy's Army is grateful to donate towards the loss of Sydney Hein's father; https://l.facebook.com/l.php?u=https%3A%2F%2Fshare.google%2FbbwQaQnbbwuWf34Hp%3Ffbclid%3DIwZXh0bgNhZW0CMTEAAR50jTif7SE9yVZH_dhk_vLDfkXHyi624jm5dGyixrgU1M_o0WuIy0s0r4Jrng_aem_xlvUiY8j2KP09fDUvwDiVg&h=AT1d__8W64bdcFcOVWsLGtghYZJ6sGjXyTICqLC5PFB-Jnvu7vsspJPiJAXkToVjrHB3cfflAHzIVFm50NL6BtNHFr1LuggyqyKXHowRjuu5TYEIKv3O9sWw5GgpH_WMuy8Y6Fh1b0qQohHR&__tn__=H-R&c[0]=AT3nQto2qst5ry1u071np-SImZPZdRWytjqNttrPuVqbGATIRlLJCJeOQ6CbF5BJWt-F0pt_PvzOBeHVPJQUasetbnbZ9iavqv-o1YE1y_Dz6FrZ2kpMcxhvfEuh-eLNLk9wAbPV-wTs3LIoAKxoLgpSDEicSilm8BTQMay9Qhh9QsNlMn4U

For those who may be unaware, Sydney was a huge part of Addy's cancer journey, and they formed a special and unique bond. Addy always enjoyed and looked forward to 'Syd Visits.' Syd was also a rock for the family during Addy's final arrangements. She will always be 'family' to us. Our entire Army is behind you Syd....

Peter Joseph Joe Hein III, 64, lifelong Guymon resident, passed away unexpectedly, Monday evening, July 7, 2025 at the Memorial Hospital of Texas County. The son of Peter Joseph Hein II and Mary Helen Kohler Hein, he was born June 2, 1961 in Boise City, Oklahoma. Joe attended school in

Sic' em Addy's Army
07/07/2025

Sic' em Addy's Army

This Congressman literally dumped stock in a Medicaid provider company right before this bill came to the Floor. Don’t be fooled—these guys know exactly what they’re doing.

PLEASE, YOU HAVE NO IDEA WHAT THIS MEANS TO A FAMILY RIGHT IN THE MIDDLE OF THE FIRE.....
03/17/2025

PLEASE, YOU HAVE NO IDEA WHAT THIS MEANS TO A FAMILY RIGHT IN THE MIDDLE OF THE FIRE.....

Help ensure no one goes through a health journey alone.

10/23/2024

It's your Angel birthday today....show your angel pals how to throw a real party...set up a beer dart tourney....

I struggle with time; sometimes it drags on, sometimes it flies by. My flawed human brain can't square what happened one year ago with the fact that it was one year ago...blurred lines, colors, memories, touches, smells, and things I must have blocked out of my head at the time for self-preservation. As today approached, I tried to crawl back into the dark, the fog, the suck, just to see if I could remember some details. I'm afraid of forgetting details because I want to hold onto every single thought. I came up with a list; I know you're totally familiar with it. Heck, you remember everything. But for those besides me that are hurting today, and there are a lot of people who have you on their mind and in their hearts, I want them to know just how goddamn tough you are;

• 1 – the number of years this Earth has been without you
• 365 – the number of days I’ve cried about you
• 032006 – your Earthly birthdate
• 102323 – your Angelic birthdate
• 17 – the number of years I got to be your daddy on Earth
• Forever – the length of time I’ll be your daddy
• 081221 – the day of the diagnosis
• 081621 – the day of your first surgery
• 10.5 – the number of hours of your first surgery
• 46 – the number of radiation treatments that you endured
• 0220 – the moment you took your last breath on Earth
• 0220 – the moment I died on the inside
• 0330 – the time your death certificate was signed
• 0440 – the moment your earthly body was taken by the funeral home
• 2.75 – the number of hours I sat alone with you in the cremation room, staring blankly at you
• Unknown – how I made myself push the button to have you cremated
• 1300 – the temperature in degrees at the peak of cremation
• 0 – the number of days I’ve moved on since I lost you
• 2 – the number of Memorial benches in your name in New Richmond
• 1 – the number of scholarships that have been awarded in your name
• 8 – the number of families that the generosity of your Army has allowed us to support
• 4 – the number of donations we’ve been able to make to research and university hospitals in your name
• 0 – the number of times we will EVER stop supporting Addy’s Army’s mission
• Countless – the number of people you touched in 17 short years
• Zero – the number of things I’ve changed in your bedroom
• 11 months, 4 days – the average life expectancy for your type of cancer
• 26 – the number of months you fought

You have and continue to move mountains down here. There's a reason you're an angel; I hate it, but I know there's a reason.....and if what I've learned over the course of 1 year is true, I believe your soul, your energy, your spirit is going to start something; something big. I'm not sure what that is yet, but you're a gifted soul, and gifted souls keep on making things better, making people better, even when they're gone. I'm a better person because of you. Hal, Blake and Lex are better people because of you....

It's funny how the strongest person I have ever known can have the safest, most innocent, kind and soft-hearted soul I've ever experienced. And THAT is why you're special my dear girl...

Dad

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New Richmond, WI

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