01/16/2026
Picture of Hope. Dr. Mark Souweidane with his patient, Lisha, who benefitted from his DIPG clinical trial more than ten years ago.
For families facing a DIPG diagnosis, clinical trials are their only hope. And right now, that hope is being threatened.
Dr. Mark Souweidane, one of the world’s leading neurosurgeons in DIPG research, interviewed with The Guardian to share how significant cuts in government funding are bringing clinical trials to a halt.
Souweidane completed a successful trial using convection-enhanced delivery that has helped some children live years beyond their diagnosis — with several long-term survivors, including one child still here 12 years later.
But funding cuts have halted the nationwide expansion of his most promising trial. Seven groundbreaking studies — including his — are now closed to new patients. And families who need options today are being told there are none.
This is why continued funding, advocacy, and awareness matter. Children don’t have time to wait. Their futures depend on keeping research moving forward.
Read more the article through the link below — and help this research move forward by contributing today.
🔗 https://www.theguardian.com/us-news/ng-interactive/2026/jan/15/childhood-brain-cancer-trump