Neurodevelopmental Disorders Program

04/20/2021

Life in quarantine has been very challenging for everyone. This experience has shown us how important is it to create an environment that can help us to thrive in our own homes.

Autistic individuals may feel an extra burden by this while being at home. However, there are products available that may ease senses and help them thrive while staying safe indoors. Check out the link below for some recommendations!

If you have any other recommendation feel free to comment below!

https://www.nytimes.com/wirecutter/blog/autism-sensory-processing-products/

Sensory details are a huge factor in choosing the right products for autistic people.

04/09/2021

Puberty can be a challenging stage for all adolescents, however there has not been much focus on how this transition affects Autism.

"Up to 13 percent of children with autism have epilepsy, but that proportion may jump to 26 percent during puberty. Seizures can appear suddenly and cause language difficulties, motor problems, and regression."

Check the link below for more information!

https://www.spectrumnews.org/features/deep-dive/puberty-and-autism-an-unexplored-transition/

Researchers are just beginning to learn what happens in the brains of autistic children during adolescence to explain their unique social, cognitive and emotional challenges.

04/02/2021

Happy Autism Awareness Month! Take some time this month to educate yourself about autism in order to better support those around you. For more information about autism click the link below!

https://www.nimh.nih.gov/health/education-awareness/shareable-resources-on-autism-spectrum-disorder.shtml

12/18/2019

Baby Groot and now Baby Yoda!? Here are some things to keep in mind for all the Star Wars fans...
https://www.epilepsy.com/release/2019/12/walt-disney-studios-advises-viewer-caution-related-several-sequences-sustained

Disney Asks the Epilepsy Foundation to Help Get the Word Out. Find tips for staying safe.

10/22/2018

https://www.nfil.net/2018/10/01/helping-young-adults-explore-career-options/

Finding a career is a typical goal for a young adult. Although choosing a career can be simple for a handful of people, figuring out a career path is complicated for many.

10/21/2018

*Please consult your doctor before making any decisions about trying new products for your child's health.

10/19/2018

https://www.bustle.com/p/how-3-autistic-women-dealt-with-delayed-diagnosis-the-sexism-they-faced-along-the-way-10001900

It wasn't until four years ago, when Maria was 24, that she was finally diagnosed as autistic, as her little brother was when they were kids. Though Maria, a healthcare advocate whose name has been changed to protect her privacy, tells Bustle that…

10/18/2018

Researchers at The Mount Sinai Hospital, including our very own Dr. Dalila Pinto, discuss challenges with studying rare diseases.

WATCH HERE:

https://www.youtube.com/watch?time_continue=121&v=RV3GD8vK5TY

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10/18/2018

http://www.autismsupportnetwork.com/news/creating-home-atmosphere-solitude-help-cope-adult-autism-378222

Helpful guide on modifications you can make to your home to better manage your adult autism.

10/16/2018

https://www.spectrumnews.org/opinion/viewpoint/disclosure-autism-work-holds-risks-benefits/

Telling coworkers you are autistic can bring acceptance, but it may also hinder advancement.

10/15/2018

Many individuals with autism aspire to join the workforce and retain employment. There are often challenges in finding an employers who makes accommodations for those with special needs.

Corporations are expanding their autism employment initiatives and finding that "the meaning of an autism-friendly workplace [is] rooted in a different workplace culture, one infused by an ethos of flexibility and patience, and maintained by structures of worker support."

https://www.forbes.com/sites/michaelbernick/2018/04/18/a-look-inside-an-autism-friendly-workplace-and-culture/

A true "autism-friendly" workplace has less to do with physical accommodations and far more with workplace culture; and why this is relevant for workers beyond the autism community.

10/15/2018

Spectrum Disorder is part of a complex group of neurodevelopmental conditions. Many individuals are diagnosed in early childhood. But what happens when the diagnosis comes much later - let's say, after graduate school? After starting a family?

NPR profiles 3 individuals who did not received their diagnosis of ASD until well into adulthood. Each tells their story of being diagnosed with ASD. None of them seem surprised by the diagnosis, rather, relieved, as if they finally understand who they are.

https://www.npr.org/sections/health-shots/2016/03/27/471600733/when-an-autism-diagnosis-comes-in-adulthood

Growing up, they knew something was different, but nobody put a name to it. For many, it took years to get a diagnosis: autism. Finally hearing that word can be a relief.

10/04/2018

"The biggest challenge is how [my child] will grow up to be an independent citizen."

An overwhelming number of parents I see express this concern. As individuals with age out of programs, families look to foster security and independence in their child.

For the month of October, we will be sharing information specifically dedicated to young adults affected by ASD.

We hope this content will be helpful and invite you to like, share, and comment. 💙💙

10/04/2018

DROP a HEART for The Mount Sinai Hospital Pediatric Epilepsy Unit!

Last week our wonderful providers walked to celebrate epilepsy awareness and bring epilepsy “Into The Light.”

This team has been central to our research efforts in the genetics and genomics of neurodevelopment disorders.

Thank you for continued collaboration and work within the epilepsy community!

💜💜💜

08/18/2018

Fundraise with our team at the Autism Speaks walk in New York City to enhance the lives of people living with autism.

http://act.autismspeaks.org/site/TR?fr_id=3836&pg=entry

07/10/2018

Are you interested in learning more about the genetics of neurodevelopment?

If you or one of your family members has been diagnosed with and you may be eligible to participate in our NIH funded research program.

Take our quiz to determine your eligibility:
https://nddprogram.typeform.com/to/qgtW6p
. .

07/02/2018

Last week at the Gershwin theater our team had the pleasure to see Tommy and Isabella perform "Unstoppable", a heart warming ballad written for Isabella's brother.

Thank you Unstoppable: A Song for Autism. Your words of love have truly touched my heart and filled me with a sense of inspiration to take on the week ahead.

https://www.youtube.com/watch?v=aRVbmCt7xgQ

Purchase the song on iTunes: https://itunes.apple.com/us/album/unstoppable-a-song-for-autism-single/1365748916 Your contribution to the charities involved wi...