Operation Zebra

Operation Zebra For disabled & neurodivergent zebra 🦓
By Rachel, MEd | hEDS & co | AuDHD 🩵
Supports, Guides & Glitter Glue Diaries 👇🏽

05/08/2026

The car was one task too many 🚙

Not in a “dramatic” way.
Not in a “can’t ever do anything” way.

Just in the very specific
glitter glue body way
where you stare at a completely normal task
and suddenly your nervous system
starts buffering 😰

So the backseat got excavated.
The trip survived.
And the haunted pile of water bottles,
jackets, receipts, and mobility aid accessories lost the battle this time 🩵

Image description in the comments for low vision zebras 🦓

A good day in a glitter glue body is when the haunted computer only has minor glitches 🦓😥 pain running in the background...
05/07/2026

A good day in a glitter glue body is when the haunted computer only has minor glitches 🦓

😥 pain running in the background instead of crashing the whole system.
🦴 joints staying approximately where they were originally installed.
🚫 standing up without activating an unexpected error message.
🔕 the nervous system sending mild warnings instead of full system alarms.

Not pain-free…
Not cured.
Just the body software glitching a little less today.

EDS Awareness Month | A Good Day Looks Like

Image description in the comments for low vision zebras 🩵

05/06/2026

The hospital added an extra challenge level today 🩵

Construction equipment in the blue lines.
Sidewalk taped off.
Accessibility apparently also under construction today.

Some people saw a small inconvenience.

Some of us immediately started negotiating with our glitter glue joints like:
be cool for five more minutes and I’ll buy you a heating pad later 🩵

If accessible spots are blocked for construction, equivalent accessible parking is supposed to be provided elsewhere under ADA requirements.

EDS Awareness Month | Walk & Roll Wednesday 🦓

Image description in the comments for low vision zebras 🩵

This is what “functioning” looks like for me 🩵(not the version people expect)Not cured.Not fixed.Just… managed.The brace...
05/05/2026

This is what “functioning” looks like for me 🩵
(not the version people expect)

Not cured.
Not fixed.
Just… managed.

The braces.
The heat.
The compression.
The “wait, why is that doing that?”

Living in a glitter glue body means
everything works…
until it doesn’t.

And then you figure it out in real time.

Again.
And again.
And again.

Image description in the comments for low vision zebras 🦓

“Clumsy”“Lazy”“High maintenance”Funny how often those wordsshow up when someone doesn’t understandwhat it’s like to live...
05/04/2026

“Clumsy”
“Lazy”
“High maintenance”

Funny how often those words
show up when someone doesn’t understand
what it’s like to live in this body

🦴 Joints that don’t stay where they should
🔊 A nervous system on full volume
🩹 A body constantly trying to hold itself together

demure?
absolutely not 😂

Image description in the comments for low vision zebras 🦓

I didn’t “become” a zebra…I just finally had a name for what was already happening 🦓—This is me then.Figuring out how to...
05/02/2026

I didn’t “become” a zebra…
I just finally had a name for what was already happening 🦓

—

This is me then.
Figuring out how to stand.
Holding onto whatever felt stable.

This is me now.
Still figuring out how to stand.
Still adjusting. Still holding on.

—

Nothing about this is new.

The pain.
The weird injuries.
The “why does my body do that?” moments.

They’ve always been here.

What changed
was the language.

—

I didn’t grow up knowing I had EDS.

I grew up being:
“clumsy”
“dramatic”
“just anxious”
“lazy”

—

Now I know:

My body wasn’t wrong.
It was just untranslated.

—

Diagnosis didn’t create the experience.

It just made it visible.

—

So if you’re looking at your “then”
and wondering if it counts…

It does.

It always did.

—

We’re not new.
We’re just finally being named 🩵

—

Image descriptions in the comments for our low vision zebras 🦓

It’s EDS Awareness Month…which means a lot of people are about to learn thingssome of us have been surviving for years 🦓...
05/01/2026

It’s EDS Awareness Month…
which means a lot of people are about to learn things
some of us have been surviving for years 🦓

—

You’ll see a lot of posts this month
about symptoms, tips, and definitions.

And those matter.

But this space is going to be a little different 🩵

—

I live in what I call a glitter glue body.

It holds together
until it doesn’t
and it never fully turns off.

—

So this month, I’m not just sharing information.

I’m sharing what it actually feels like
to live in a body that’s constantly adjusting
even when no one can see it.

—

We’ll be moving through this month using the awareness prompts as a guide…
but through a zebra lens.

Through lived experience 🦓
Through humor 😂
Through the messy, bendy, real parts 😮‍💨

—

If you’re new here, welcome to the herd 🦓
If you’ve been here, you already know.

We’re not just raising awareness.

We’re changing how it feels to be seen 🩵

—

Image description in the comments for our low vision zebras 🦓

Dynamic disability is like: “we’re fine” “we’re not fine”“we’re fine again”all in the same hourmy body really saidlet’s ...
04/19/2026

Dynamic disability is like: “we’re fine”
“we’re not fine”
“we’re fine again”
all in the same hour

my body really said
let’s keep things unpredictable

still in a flare today 🩵
not dramatic
just a zebra thing 🦓

Image description in the comments for low vision zebras

04/18/2026

🦓 Zebra math: caffeine = hope 🩵

Image description in the comments for low vision zebras 🦓

Tags |

The zebra body is a group project 🩵Image description in the comments for low vision zebras 🦓
04/13/2026

The zebra body is a group project 🩵

Image description in the comments for low vision zebras 🦓

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United States
New York, NY
10001

Website

https://glittergluediaries.substack.

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