
09/17/2025
Thrilled to again have spoken before representatives from the FDA about day-to-day life as a family affected by low vision. This time it was via the Duke-Robert J. Margolis, MD, Institute for Health Policy. (Don't worry, there were other Carolina alumni there, Go Heels!)
It was an honor and a pleasure to represent my family, BCM Families Foundation, and all those affected by inherited retinal diseases before this group of stakeholders from the FDA, academia, biotech, and patient advocacy. Especially in these wild times with the National Guard presence in DC and public health under attack, today was a great reminder of what can be accomplished when everyone comes to the table with a singular focus.