Children's Brain Tumor Project

Children's Brain Tumor Project But for families affected by them, every case is one too many. These family foundations and their supporters drive funding, advocacy and awareness for CBTP.
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The community of families that participate in the Children's Brain Tumor Project is dedicated to finding new options for treating pediatric brain tumors by supporting research at Weill Cornell Medicine. The families who participate in the Children's Brain Tumor Project (CBTP) are personally invested in finding new treatment options -- and ultimately cures -- for rare and inoperable brain tumors in

children and young adults. These tumors, including DIPG, gliomatosis cerebri, and AT/RT, occur so rarely that they do not get the major funding or attention that research scientists need to find a cure. The CBTP is funded in large part by a network of families who have lost loved ones to these terrible tumors, or whose families have been threatened by such a diagnosis. Dr. Mark Souweidane and Dr. Jeffrey Greenfield, Co-Directors of the CBTP at Weill Cornell, have pioneered a neuroscientific paradigm using genomic sequencing and Convection Enhanced Delivery (CED). A Phase I clinical trial is testing the safety of using (CED) to deliver a low-toxicity drug cocktail directly to the tumor site. Bench researchers are using genomic sequencing to identify genetic mutations in each patient's tumor to identify the best drugs to combat them, and investigating new ways to stop tumor progression by blocking signals from bone marrow.

Dr. Mark Souweidane and Jeffrey P. Greenfield MD, PhD host Annual Family Council MeetingAt the Children’s Brain Tumor Pr...
05/18/2026

Dr. Mark Souweidane and Jeffrey P. Greenfield MD, PhD host Annual Family Council Meeting

At the Children’s Brain Tumor Project, our work is powered by families. 💛

Our research depends on the generosity of patient families and family-founded nonprofits who share our mission and invest in the fight against pediatric brain tumors. We are especially grateful to the families who have entrusted us with their child’s tumor tissue, often during profoundly difficult times, to help advance life-saving research.

While no family should have to carry the responsibility of funding research that could improve outcomes for future children, the reality is that pediatric brain tumor research often relies on the support of our patient and nonprofit community, especially when government funding falls short.

Sharing progress with those who make this work possible is essential. We invite anyone impacted by a pediatric brain tumor diagnosis, whether you have contributed tissue, supported our lab, raised awareness, or are interested in funding this critical work, to join us.

This year’s meeting will be held in person, with an optional lab tour beforehand. A light breakfast will be provided, and a summary of materials will be shared afterward for those unable to attend.

To learn more or get involved, visit our website: https://www.childrensbraintumorproject.org/2026/03/18/family-meeting-2026/

05/17/2026

DIPG does not wait. And for far too many families, there are still no effective treatment options.

At just 2 years old, Lily was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG). Her family went in expecting answers that felt manageable. Instead, they were told their daughter had an inoperable brain tumor and were warned they may not see her third birthday.

Today, 2.5 years later, Lily is 4 years old. She’s getting ready to graduate pre-k and start kindergarten in the fall. She plays with friends and lives the kind of everyday life every child deserves. While she continues to face physical challenges from her tumor, her story is a reminder of both the strength of children with DIPG and the urgent need for more research, funding, and treatment options.

On this DIPG Awareness Day, we honor every child and family impacted by this devastating disease. And we continue fighting for better outcomes for children like Lily.

To support that mission, Lily’s parents, Tori and Rob, are running the NYC Marathon in support of pediatric brain tumor research through CBTP. Every donation helps fuel critical research and support families facing the unimaginable. ❤️

Donate to their run and support the CBTP mission at the link in our bio.🎗️

Some diagnoses are rare. Others are aggressive. ATRT is both.Atypical Teratoid Rhabdoid Tumor (ATRT) is a fast-growing p...
05/13/2026

Some diagnoses are rare. Others are aggressive. ATRT is both.

Atypical Teratoid Rhabdoid Tumor (ATRT) is a fast-growing pediatric brain tumor that most often affects infants and very young children. Its rarity makes it difficult to study, and its aggressive nature means families are often faced with urgent and complex treatment decisions early on.

Ty’s story is one of many that reflect the reality of this diagnosis. We remember him as we continue to raise awareness and push for better options for families facing ATRT. 💙

🔗https://www.childrensbraintumorproject.org/portfolio-items/do-something/

Ty Louis Campbell Foundation

05/11/2026

Survivorship isn’t just the moment treatment ends. It’s a lifelong journey that comes with victories, challenges, and unexpected hurdles.

Children who survive brain tumors may face physical changes, cognitive or learning differences, and emotional ups and downs. Families often navigate new routines, follow-up appointments, and the uncertainty of what the future may hold.

Support doesn’t stop when treatment ends. Continued care, access to resources, and understanding from the community make a real difference in helping survivors thrive. By standing with these families, we can celebrate progress, provide guidance, and ensure no one faces this journey alone.

Be part of the support network. Donate, volunteer, or share our mission to help children and families continue thriving long after treatment. 💛

🔗 https://www.childrensbraintumorproject.org/

From NYC to Berlin, from half marathons to full marathons, our CBTP runners are showing up across the world with one sha...
05/08/2026

From NYC to Berlin, from half marathons to full marathons, our CBTP runners are showing up across the world with one shared mission: to go the distance for something bigger than themselves.

Our 2026 marathon team showed incredible dedication this March, coming together to raise $15,000 in support of our mission and the communities we serve.

Now, we’re looking ahead to our Tokyo Marathon 2027 team, and the journey is already underway.

Not everyone has to lace up running shoes to make a difference. You can still be part of the impact from wherever you are.

Support Team CBTP with a monetary donation today and help our runners get to the start line in Tokyo strong, supported, and ready to run for something that truly matters 🩷

🔗 https://cbtpfoundation.org/raceteam/

Families facing pediatric brain tumors often feel isolated, but community support can make all the difference. CBTP bene...
05/07/2026

Families facing pediatric brain tumors often feel isolated, but community support can make all the difference. CBTP benefits from events where families, survivors, and supporters come together to connect, share experiences, and find encouragement. These events create networks of hope, resilience, and understanding, reminding families they are never alone in their journey.

Community involvement strengthens families, fosters connections, and gives children and parents moments of joy and support during an incredibly difficult time. CBTP’s community events empower families and help build lasting relationships between those who understand what they’re going through.

Join our community and make a difference. Attend, volunteer, or share our events to help families feel supported and connected. 💛

Understanding Clinical Trials: Phase 3 (Confirming the Breakthrough) 🏆This is where possibility becomes reality.Phase 3 ...
05/06/2026

Understanding Clinical Trials: Phase 3 (Confirming the Breakthrough) 🏆

This is where possibility becomes reality.

Phase 3 clinical trials expand to larger groups, comparing new treatments to current standards of care. Researchers confirm effectiveness, monitor long-term outcomes, and determine whether a therapy truly offers better results. This phase is what brings groundbreaking treatments closer to becoming widely available.

But getting here takes years of research, funding, and unwavering support. Donations help carry these treatments across the finish line—turning breakthroughs into real options for children and their families.

Help us bring better treatments within reach. Your support makes the difference.

https://www.childrensbraintumorproject.org/clinicaltrials/

05/05/2026

When a child is diagnosed with a brain tumor, parents are suddenly navigating a world filled with fear, uncertainty, and endless decisions. Friends, family, and even well-meaning strangers often want to help, but not every phrase lands the way it’s intended.

Avoid sayings like:
❌ “Everything happens for a reason.”
❌ “At least it’s not worse.”
❌ “Stay positive.”

These can unintentionally minimize their experience or make them feel isolated. Instead, focus on empathy and support. Ask what they need, listen without judgment, and offer practical help. Sometimes just showing up and being present is enough.

Your words matter. Learn how to support families in ways that truly help. 💛 https://www.childrensbraintumorproject.org/

Turning a breakthrough in the lab into a treatment that saves a child’s life is a long and complex journey. On average, ...
05/04/2026

Turning a breakthrough in the lab into a treatment that saves a child’s life is a long and complex journey. On average, it takes 10–15 years for a therapy to move from research to bedside.

During this time, scientists conduct experiments, run clinical trials, and navigate strict regulatory approvals. Every step is necessary to ensure safety and effectiveness—but it also means families must wait, sometimes for years, for new options.

Your support helps accelerate this process. Funding pediatric brain tumor research gives scientists the resources they need to shorten timelines, explore innovative treatments, and bring hope to children and families sooner. 💛

🔗 https://www.childrensbraintumorproject.org/

May is Brain Tumor Awareness Month. A time to go gray and stand with every child and family facing a brain tumor. 💛Behin...
05/01/2026

May is Brain Tumor Awareness Month. A time to go gray and stand with every child and family facing a brain tumor. 💛

Behind every diagnosis is a story of strength, uncertainty, and resilience. It’s a journey that doesn’t end with treatment and one that no family should have to navigate alone.

By going gray this month, we help bring visibility to a disease that needs more awareness, more research, and more support.

Wear gray. Share the message. Support the mission.
Because every child deserves a better path forward.
🔗 https://cbtpfoundation.org/donate-gray-in-may/

Address

525 E. 68th Street, Box 99
New York, NY
10065

Website

https://www.childrensbraintumorproject.org/

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