Children's Brain Tumor Project

09/30/2025

09/19/2025

Children’s Brain Tumor Project has a meaningful connection to the families of many children taken by GC. We missed the Fishers, Kathleen Clark, Stacey Gravina, and Julie Lichty Balay this week in London but are forever grateful for their efforts in moving GC research forward. Dr. Jeff Greenfield remains committed to finding better treatment options. He was a Co-Chair of the recent Conference and two members of his team attended and contributed. Plans are already in place for a 6th Conference in Boston in 2027!

09/19/2025

Team CBTP enlisted three incredible athletes to run the streets of Berlin on Sunday, taking on one of the world’s biggest and best marathons. 🏃🏽‍♂️‍➡️

With 45,000 runners taking part, the Berlin Marathon is a once-in-a-lifetime event and one of the coveted World Marathon Majors. They can't wait to have the honor of passing iconic landmarks such as Brandenburg, the Reichstag, Siegessäule, Berliner Dom, and Potsdamer Platz, all while knowing this once in a lifetime experience has helped so many children as a result of their fundraising. 💛

09/17/2025

We can’t stop smiling—No Laughing Matter 2025 is just around the corner!
📅 Tuesday, October 14 | 7–10 PM
📍 New York Athletic Club

Brain tumors are no laughing matter… but sometimes laughter truly is the best medicine. Join us for an unforgettable night of comedy, connection, and hope—all in support of pediatric brain tumor research.

Past performers have included stars like Jim Gaffigan, Freestyle Love Supreme, Jordan Klepper, Roy Wood Jr., and more. This year’s lineup will be announced soon and trust us—you won’t want to miss it!

🎟 Tickets and sponsorships make life-changing research possible. Learn more at nolaughingmatter2025.org

09/16/2025

🏃‍♀️ Countdown to 2025: Celebrating Our 2024 Champions!
As we gear up for this year’s TCS New York City Marathon, we’re taking a moment to honor some of the incredible runners who made an impact in 2024.

Today, we’re highlighting Kayla and Grace Guerin, who went above and beyond—raising an incredible $8,904.34 for the Children’s Brain Tumor Project! 💛 Their dedication helps power groundbreaking research and brings hope to families facing pediatric brain tumors.

👏 Let’s give a big round of applause to Kayla and Grace! Ready to cheer on the 2025 team or support the cause? Click the link below to get involved.

🔗 https://cbtpfoundation.org/campaign/tcs-nyc-marathon-2025/

09/15/2025

September is Childhood Cancer Awareness Month.

Every day, 47 children are diagnosed with cancer in the U.S.—and brain tumors are the leading cause of cancer-related death in kids. For families facing this diagnosis, time is precious, and treatment options are often limited.

At the Children’s Brain Tumor Project, our mission is to change that reality. Through innovative research, collaboration, and a commitment to the rarest and most difficult pediatric brain tumors, we are working toward safer, more effective treatments—and brighter futures.

✨ You can make a difference. Whether you donate, fundraise, or simply share our mission, your support fuels the hope and progress these children deserve.

💛 This September, stand with us in the fight against childhood brain tumors. Together, we can turn awareness into action.

Start here: https://www.childrensbraintumorproject.org/mission/

09/12/2025

✨ Meet Tyler Fleischer, one of our incredible 2025 TCS NYC Marathon runners! ✨

By day, Tyler is a dental hygienist, and by night he’s a competitive cheerleading coach from Morgantown, WV. Running has always been his happy place, but this year it carries an even deeper purpose.

In November 2024, one of Tyler’s athletes, 12-year-old Cali, was diagnosed with a Pilocytic Astrocytoma—a rare brain tumor that required emergency surgery and months of recovery. Watching Cali’s strength, resilience, and determination inspired Tyler to dedicate his marathon journey to her. 💛

“This is much more than 26.2 miles. This is an opportunity to do something good, to honor Cali, and to support the Children’s Brain Tumor Project. I promise not to take this responsibility lightly.” – Tyler

We are honored to have Tyler running with and carrying Cali’s story with every step. 🏃‍♂️💛

👉 Support Tyler’s journey and help fund groundbreaking pediatric brain tumor research.
🔗 https://cbtpfoundation.org/campaign/tcs-nyc-marathon-2025/fundraiser/106/

09/11/2025

You don’t need a medical degree to save a life—just the willingness to act.

Every child with a brain tumor deserves a chance at a brighter future. When you donate or fundraise for the Children’s Brain Tumor Project, you’re supporting the groundbreaking research that makes those futures possible. 💛

Whether you give, share, or start your own fundraiser, you’re helping turn hope into real, life-saving progress.

Do something great today.
🔗 https://www.childrensbraintumorproject.org/portfolio-items/do-something/

09/10/2025

A gift no family should ever have to give—yet one that brings hope to so many.

The Gift from a Child program empowers families who’ve faced the unimaginable loss of a child to help fuel the search for cures. As one of only six Regional Centers of Excellence, Weill Cornell Medicine plays a leading role in honoring these extraordinary donations with the care, urgency, and purpose they deserve.

Post-mortem brain tissue donation allows researchers to study the most aggressive pediatric brain tumors in ways that living tissue simply cannot—unlocking new insights through genetic, cellular, and molecular analysis. Every donation becomes a legacy of love and a powerful step toward progress. 💛

We are deeply grateful to the families who choose to say yes—even in the hardest moments—and to the children whose courage drives everything we do.

09/09/2025

💛 A huge thank you to the Cristian Rivera Foundation for their incredible generosity!

As a result of their annual 5K Walk/Run, the foundation was able to donate an amazing $20,000 in support of the Dr. Mark Souweidane's DIPG research at the Children's Brain Tumor Project. Here’s a special moment captured as John Gungie Rivera presented the check to Dr. Mark Souweidane yesterday.

It’s through partnerships like this that we can continue driving forward lifesaving research and bringing hope to children and families facing brain tumors. We are so grateful for this support!

09/02/2025

What if surgery could do more than remove a tumor—what if it could unlock a cure?

Years ago, pediatric brain tumor treatment was failing kids. There wasn’t enough genetic data, and few options existed for rare or inoperable tumors. But Dr. Jeffrey Greenfield and Dr. Mark Souweidane saw an opportunity—in every biopsy, every surgery—to spark discovery.

By collecting tissue samples, sharing data, and pushing the boundaries of neurosurgery, they’ve built a research model that doesn’t just study tumors—it works to outsmart them.

From the operating room to the lab bench, their team is transforming how we understand and treat the most devastating childhood brain cancers. And it all starts with one bold idea: Let surgery lead the science.

09/01/2025

What makes one child’s tumor respond to treatment—and another’s resist it?

The answer often lies in their genes. Through genomic sequencing of both DNA and RNA, researchers can uncover the unique mutations fueling each child’s brain tumor.

This isn’t just about identifying treatable mutations today—it’s about paving the way for therapies tomorrow. By understanding these changes at the molecular level, scientists can match kids with targeted drugs, fine-tune treatments, and build the foundation for future cures. 🧠

Your support fuels this breakthrough research. Let’s keep pushing forward.