World Orphan Drugs Congress

05/23/2024

This just in: 2025 Sponsorship Opportunities Now Available for ! 📣

This is your chance to get your product or solution in front of the biggest names in the and space – from pharma, biotechs, governments, and payers to patients, investors, and patient advocates.

Parexel, PPD | Thermo Fisher Scientific, Volv Global SA, and more have already confirmed their spots! 👀 Get ahead of the game – 𝗹𝗲𝗮𝗿𝗻 𝗮𝗯𝗼𝘂𝘁 𝗼𝘂𝗿 𝘃𝗮𝗿𝗶𝗼𝘂𝘀 𝘀𝗽𝗼𝗻𝘀𝗼𝗿𝘀𝗵𝗶𝗽 𝗹𝗲𝘃𝗲𝗹𝘀 𝗮𝘃𝗮𝗶𝗹𝗮𝗯𝗹𝗲 𝗳𝗼𝗿 𝟮𝟬𝟮𝟱 𝗮𝗻𝗱 𝘁𝗵𝗲𝗶𝗿 𝗮𝘀𝘀𝗼𝗰𝗶𝗮𝘁𝗲𝗱 𝗯𝗲𝗻𝗲𝗳𝗶𝘁𝘀 𝗯𝘆 𝗱𝗼𝘄𝗻𝗹𝗼𝗮𝗱𝗶𝗻𝗴 𝗼𝘂𝗿 𝘀𝗽𝗼𝗻𝘀𝗼𝗿𝘀𝗵𝗶𝗽 𝗯𝗿𝗼𝗰𝗵𝘂𝗿𝗲 𝗵𝗲𝗿𝗲: https://tinyurl.com/3w2jwvew

𝗜𝗻𝗾𝘂𝗶𝗿𝗲 𝘁𝗼𝗱𝗮𝘆 𝘁𝗼 𝘀𝗲𝗰𝘂𝗿𝗲 𝘆𝗼𝘂𝗿 𝗽𝗿𝗲𝗺𝗶𝗲𝗿 𝘀𝗽𝗼𝘁 𝗼𝗻 𝗼𝘂𝗿 𝟮𝟬𝟮𝟱 𝗲𝘅𝗽𝗼 𝗳𝗹𝗼𝗼𝗿: https://tinyurl.com/sabm7cx7

Lets work together to advance orphan drug development and improve access to life-saving therapies for rare disease patients worldwide 🌎✨

05/21/2024

05/21/2024

𝗦𝗮𝘃𝗲 𝘁𝗵𝗲 𝗗𝗮𝘁𝗲! The World Orphan Drug Congress USA is returning to Boston next spring for our 2025 edition.
🗓️ Boston Convention & Exhibition Center
📍 April 22-24, 2025

Now's the perfect time to secure your spot at the world's most important rare disease and orphan drug event before the rush❗️

⭐️ Gather your friends, family, peers, colleagues, and fellow rare disease enthusiasts and 𝗿𝗲𝗴𝗶𝘀𝘁𝗲𝗿 𝗮𝘀 𝗮 𝗴𝗿𝗼𝘂𝗽 𝘁𝗼 𝘀𝗮𝘃𝗲 𝘂𝗽 𝘁𝗼 𝟱𝟬% 𝗼𝗻 𝘆𝗼𝘂𝗿 𝘁𝗶𝗰𝗸𝗲𝘁𝘀: https://tinyurl.com/4x3nwttm
⭐️ Patient advocacy groups & hospitals, 𝗰𝗹𝗮𝗶𝗺 𝘆𝗼𝘂𝗿 𝗙𝗥𝗘𝗘 𝗽𝗮𝘀𝘀 𝘁𝗼𝗱𝗮𝘆: https://tinyurl.com/3rxeefp7

⭐️ Looking to sponsor? 𝗦𝗲𝗰𝘂𝗿𝗲 𝘆𝗼𝘂𝗿 𝗽𝗿𝗲𝗺𝗶𝗲𝗿 𝘀𝗽𝗼𝘁 𝗼𝗻 𝗼𝘂𝗿 𝟮𝟬𝟮𝟱 𝗲𝘅𝗽𝗼 𝗳𝗹𝗼𝗼𝗿 – 𝗶𝗻𝗾𝘂𝗶𝗿𝗲 𝘁𝗼 𝘀𝗽𝗼𝗻𝘀𝗼𝗿 𝘁𝗼𝗱𝗮𝘆: https://tinyurl.com/sabm7cx7
⭐️ Interested in taking the stage? 𝗔𝗽𝗽𝗹𝘆 𝘁𝗼 𝗷𝗼𝗶𝗻 𝗼𝘂𝗿 𝗶𝗻𝗱𝘂𝘀𝘁𝗿𝘆-𝗹𝗲𝗮𝗱𝗶𝗻𝗴 𝘀𝗽𝗲𝗮𝗸𝗲𝗿 𝗹𝗶𝗻𝗲𝘂𝗽: https://tinyurl.com/sabm7cx7

Be sure to stay tuned for updates from us as we announce our newly joined speakers, sponsors, partners, and more! 👀

05/15/2024

🥁 Drum roll please...
We are so excited to kick off our speaker announcements for 2025 and welcome Pamela Gavin, Chief Executive Officer, National Organization for Rare Disorders, Inc. (NORD), to the World Orphan Drug Congress USA's industry-leading speaker lineup❗️

Stay tuned for more announcements from us for our 2025 edition – you won't want to miss this. Plus, beat the crowd by registering today and securing you spot alongside the biggest names in and . Did we mention you can 𝘀𝗮𝘃𝗲 𝘂𝗽 𝘁𝗼 𝟱𝟬% on your tickets when you register as a group? 👀

What are you waiting for? Gather your friends, family, peers, colleagues, and fellow rare disease enthusiasts and 𝘀𝗮𝘃𝗲 $𝟭,𝟳𝟮𝟬 today ➡️ https://tinyurl.com/4x3nwttm

Hospitals & patient advocacy groups, claim your 𝗙𝗥𝗘𝗘 𝗽𝗮𝘀𝘀 here ➡️ https://tinyurl.com/2puserrw

🗓️ April 22-24, 2025
📍 Boston Convention & Exhibition Center

𝘓𝘰𝘰𝘬𝘪𝘯𝘨 𝘵𝘰 𝘨𝘦𝘵 𝘪𝘯𝘷𝘰𝘭𝘷𝘦𝘥? Download our prospectus to learn more about available opportunities ➡️ https://tinyurl.com/3w2jwvew

05/14/2024

🗞️ Hot off the Press: World Orphan Drug Congress 2024

Extra, extra, read all about it! 𝗢𝘂𝗿 𝟮𝟬𝟮𝟰 𝗽𝗿𝗲𝘀𝘀 𝗿𝗼𝘂𝗻𝗱𝘂𝗽 𝗶𝘀 𝗵𝗲𝗿𝗲 ➡️ https://tinyurl.com/5ckvzr6x

Browse our press page to discover key takeaways, session highlights, and more from the world's most important orphan drug and rare disease event.

Plus, join us back in Boston next April 22-24 for our 2025 edition! ⭐️

𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿 𝗮𝘀 𝗮 𝗴𝗿𝗼𝘂𝗽 𝗮𝗻𝗱 𝘀𝗮𝘃𝗲 𝘂𝗽 𝘁𝗼 𝟱𝟬% 𝗼𝗻 𝘁𝗶𝗰𝗸𝗲𝘁𝘀 𝗵𝗲𝗿𝗲 ➡️ https://tinyurl.com/4x3nwttm

05/07/2024

Advocates at WODC 2024 stressed the importance of early detection and treatment of rare diseases in adults.

05/07/2024

Clinical experts and advocates called for improving children's access to essential health care by streamlining Medicaid provider screening and enrollment.

05/07/2024

Sharing knowledge helps healthcare professionals provide better care in rare disease, supporting their mental health and reducing stress.

05/07/2024

MELBOURNE, AUSTRALIA AND SAN FRANCISCO, USA – 29 April 2024:  Alterity Therapeutics (ASX: ATH, NASDAQ: ATHE) (“Alterity” or “the Company”), a biotechnology company dedicated to developing disease modifying treatments for neurodegenerative diseases, today announced that important new data ...

05/07/2024

The CoRDS registry, the largest international rare disease registry, benefits patients and researchers and facilitates data sharing.

05/07/2024

Last week, TargetCancer Foundation Chief Executive Officer Jim Palma returned as a speaker at the World Orphan Drugs Congress in Boston. Jim provided the advocacy perspective on a panel titled "Five Headwinds Facing Rare Cancer Drug Developers (and what to do about it)”.

05/07/2024

YHEC staff were delighted to be at World Orphan Drugs Congress last week. Here is what Stuart Mealing had to say about his time there.
If you'd like to get in touch, email us at yhec@york.ac.uk