NYU FACES

FACES (Finding A Cure For Epilepsy and Seizures) Most importantly, we are committed to finding a cure.

FACES (Finding A Cure for Epilepsy and Seizures) is affiliated with NYU Langone Medical Center and The NYU Comprehensive Epilepsy Center. FACES began when a group of parents, adult patients, and doctors came together in 1994 to advance research, clinical care, and education, and to tackle the social and behavioral problems that complicate epilepsy. FACES seeks to improve the quality of life for all people affected by epilepsy through research, education and awareness, and community-building events.

09/25/2025

Prepare for lift off! FACES Game Day: Galaxy Quest is almost here.

Register here: https://facesgameday2025.rsvpify.com/

Game Day is an annual free event for children and teens with epilepsy and their families to come together for games, food, and fun. Register today to confirm your family's attendance at Game Day 2025. Brought to you by the NYU Langone Health Comprehensive Epilepsy Center and FACES (Finding a Cure for Epilepsy and Seizures).

Saturday, October 25, 2025
3:00 - 5:30 PM
The Field House at Chelsea Piers
West 23rd Street and the Hudson River between Piers 61 and 62

Activities include: space mission bounce and slide, a galactic goo station, rock climbing, soccer, gymnastics, lollipop game, batting cages, spin art t-shirts, bear factory, a Halloween costume contest and so much more!

Questions? Please contact the FACES team at 646-558-0900 or email us at facesinfo@nyulangone.org.

09/19/2025

Last Tuesday, the FACES community gathered at Industry City, Brooklyn for freshFACES 2025 for another unforgettable evening. With 210+ guests in attendance, we raised over $180,000 to support research and programs at the NYU Langone Comprehensive Epilepsy Center.

We’re especially grateful to our inspiring parent speaker, Carly Ginor, and our patient speakers, Amanda Gopie and Angie Siefert, who reminded us why we gather: to celebrate resilience, share hope, and build a future free from epilepsy.

A huge thank you to Industry City for hosting us for the second year in a row, and to our amazing volunteers, vendors, sponsors, and attendees who made the evening spectacular!

09/17/2025

FACES is returning to NYULH Brooklyn for another Peace of Mind lecture. Blanca Vazquez, MD joins us to speak about anti-seizure medications and answer questions you may have on this topic. We hope you can make it to this in-person lecture!

To register, click here: https://forms.gle/ZfWZcbqcDmG5BSzV6

09/15/2025

FACES was proud to support yesterday’s 13th Annual Walk to End Epilepsy by

09/04/2025

freshFACES is in 12 days and tickets are still available! We are excited to announce some of the several vendors that will be entertaining us all night long: Enjoy mocktails and cocktails by Industry City's own Standard Wormwood and delicious food offerings from The Frying Pan and Hometown BBQ. Hesta Prynn will be the evening's DJ! For the first time, freshFACES will feature a magician and mentalist with many more surprise games and activities in store.

All proceeds from the night will support FACES research and programs at the NYU Langone Comprehensive Epilepsy Center.

Get your tickets here: https://give.nyulangone.org/events/freshfaces-2025/

09/03/2025

For the first time ever, FACES is hosting an in-person lecture at the NYULH Garden City Welcome Center. We hope you can join us as Claude Steriade, MD reviews how hormonal changes can impact seizures, how to safely plan for pregnancy when also dealing with epilepsy, and how epilepsy and anti-seizure medications can impact contraception and fertility.

To register, visit this link : https://forms.gle/7XSAcxZgG23aqknc8

08/13/2025

Next week a highly requested lecture topic returns for our Peace of Mind series. Dana Amaya, MS, RD, CDN, CDCES will review the basics of the ketogenic diet and the associated benefits of this diet for epilepsy control. Mark your calendars and register now!

To register, click here:
https://nyulangone.zoom.us/webinar/register/WN_SU9TIERrTEug7X120trIMA

06/30/2025

🚨Save the Date! 🚨

FACES is excited to welcome you back to freshFACES, happening Tuesday, September 16, 2025, at The Landing (formerly Camp David) in Industry City, Brooklyn. Early Bird tickets start at $175 and are available through August 15 before they increase.

freshFACES is more than a fundraiser—it’s a lively evening that brings together young adults and families affected by epilepsy and seizures. It’s a chance to connect, celebrate, and support FACES’ mission to find a cure.

Your ticket—which supports our research, programs, and upcoming support groups—includes access to the full evening: great food, drinks (alcoholic and nonalcoholic), engaging activities, and a few unexpected surprises along the way.

For more information, please email facesinfo@nyulangone.org or call 646-558-0900.

To buy tickets or a sponsorship, click here:

https://give.nyulangone.org/events/freshfaces-2025/

06/23/2025

Today, we observe Dravet Syndrome Awareness Day. Previously known as Severe Myoclonic Epilepsy of Infancy, Dravet syndrome is a rare form of epilepsy that is most caused often by a mutation in the SCN1A gene which leads to frequent, prolonged seizures that are often resistant to treatment.

On this day, we stand with the individuals, families, caregivers, and medical professionals who face Dravet syndrome every day. Awareness fuels research, advocacy, and hope for better treatments — and ultimately, a cure.

05/13/2025

Register now for our next Peace of Mind lecture hosted by Benjamin Blond, MD. This virtual lecture will discuss different options for rescue medications, how to use them and situations where people with epilepsy may benefit from using rescue medications for seizures, such as seizure clusters. Don’t miss out on May 22, 2025!

To register, click here: https://nyulangone.zoom.us/webinar/register/WN_TnPbcFmGRyKeLxQnm_a3OQ

05/01/2025

After seven years of research, the results of a new, groundbreaking study that included several NYU Langone patients moved experts closer to one of life's biggest mysteries: How does consciousness happen?

By testing two major theories - Integrated Information Theory and Global Neuronal Workplace Theory, researchers tracked the brain activity of 256 study participants and found that consciousness comes from how information is connected and shared, mostly in the back of the brain.

Understanding consciousness helps us determine if someone who appears unresponsive is actually aware, but unable to communicate. This leaves room for innovative measures such as a consciousness meter for patients who can't speak or move which can prove to be crucial in deciding whether or not to withdraw life-sustaining treatment.

Access more information regarding this study here: https://www.geekwire.com/2025/new-clues-roots-consciousness/

04/21/2025

Thank you to everyone who attended the 2025 FACES Epilepsy Conference for Patients and Families, which occurred on Sunday, April 6. We also want to express our thanks to the amazing speakers and sponsors who helped make the conference a success! We hope you enjoyed a day filled with informative discussions, talks, and Q&A sessions. If you were not able to attend or happened to miss a session you wanted to catch, you can click the link below to view all the available recordings from this year's conference:

https://bcove.video/42lQo9e

Address

223 E 34th Street
New York, NY
10016

Website

https://nyulangone.org/give/funds/faces-finding-a-cure-for-epilepsy-and-seizures/donate

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