Are you living with a benign brain tumor? Share your experience in the comments below.
01/23/2026
Head to the Hill is back!
🏛️ Register today at BrainTumor.org/HeadtotheHill to join the National Brain Tumor Society and fellow volunteer advocates from May 3-5, 2026, on Capitol Hill in Washington, D.C.
Share your story, raise your voice, and urge policymakers to take action on the issues that matter most to the brain tumor community.
01/22/2026
NBTS is honored to exhibit at the 13th Neuro-Oncology Brain Tumor Symposium on Friday, January 30.
This educational event brings together medical professionals, patients, caregivers, and advocates to learn current innovative approaches to brain tumor care.
The symposium can be attended in person or virtually — register today at: med.upenn.edu/brain2026/
01/20/2026
🏀⚽⛳ Turn your favorite sport into a force for good!
From lacrosse and golf tournaments to pickup games and everything in between, sports fundraisers are a powerful way to rally your community and help accelerate world-class brain tumor research with the National Brain Tumor Society.
Melissa runs with Gray Nation Endurance in memory of her late aunt Debbie, who passed from glioblastoma.
She’s turning her loss into action, putting meaning behind her miles by running and fundraising for NBTS. 💙
Watch her story to see why every mile matters.
Learn more about Gray Nation Endurance and how to put meaning behind your miles at: BrainTumor.org/GNE
01/17/2026
“It’s powerful, isn’t it, sharing stories with others who’ve gone through similar experiences,” said acclaimed British actor/writer and brain tumor survivor Miles Jupp.
“People come up to me after [my show] and say it meant so much to feel seen — and even to laugh a bit in the process.”
This week, NBTS’s Anne was honored to attend Jupp’s comedy show, *On I Bang,* at the SoHo Playhouse in NYC. Jupp was diagnosed with a meningioma after collapsing while filming in London.
The witty, warm *On I Bang* tells the story of his diagnosis and brain surgery experience while sharing some side-splitting moments about the life of an actor, son, husband, and father of five.
🎭 NYC-area brain tumor community, tickets are still available for shows tonight, Saturday, and Sunday!
Special thanks to Soho Playhouse for the tickets, and to the The International Brain Tumour Alliance and The Brain Tumour Charity for inviting us to the show.
01/16/2026
Take an activity you love — such as golfing, running, baking, or enjoying happy hours — and turn it into a fundraising event that will help drive brain tumor research, advocacy, and support for patients and caregivers.
Learn more at BrainTumor.org/FundraiseYourWay
“If someone is considering starting a fundraiser in honor of their loved one, I would say do it. It’s been one of the most meaningful things in my life. It’s meant a lot to my family. It’s meant so much to me. It’s been meaningful to the National Brain Tumor Society, and we really think it’s helped make a difference.” — Lido Ramadan
01/16/2026
“My brother was my hero from the day I was born.” — Pat S.
After Pat’s beloved brother Emilio passed away due to , she found healing through tin punching — an art form that became more than just a creative outlet.
Now, the proceeds from every piece she sells are donated to NBTS to support brain tumor research, in the hopes that other families will not have to endure the same heartbreak.
As we step into 2026, we’d like to thank you for the incredible work you've done in 2025.
Your advocacy has made a real impact for the brain tumor community. Here's a quick look back and a peek at the road ahead:
In 2025, we saw record-breaking engagement, with 7,313 advocates responding to our action alerts! From Head to the Hill to Advocate From Your State, over 500 volunteers across 46 states shared their stories with Congress, pushing for key issues like:
- Increasing medical research funding
- Advancing the BRAIN Act
- Supporting pediatric cancer research
- Ensuring continuity of critical pediatric brain tumor research
For Amanda B., those words didn’t match the reality of living with a brain tumor.
She shares how a meningioma diagnosis reshaped every part of her life — from treatment decisions and long stays away from home, to permanent side effects, parenting, finances, and learning how to slow down and accept help.
Her message is clear: benign is not fine, and brain tumors can have a lasting impact on someone’s life.
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We believe we can move the needle faster and drive more new discoveries by influencing and funding research, and actually bringing together policy makers, researchers, clinicians doctors and industry organizations to collaborate and share information in order to find better treatments and a cure for brain tumors. We are the only brain tumor organization that has an active public policy agenda, and we directly advocate to policymakers to give brain tumor patients a voice in Washington, D.C.
We are intimately connected with top brain tumor researchers, academics and clinicians. Some of the top brain tumor experts are scientific advisors on our programs, and we hire PhDs to help create informative content and translate new research developments into language that brain tumor patients and their families can understand and act on.
We don’t just write blank checks. We drive a thoughtful research agenda and hold our researchers’ feet to the fire by monitoring their progress and having them report on findings to the community to justify funding.
We support more than 23 signature, regional walks, races and rides and many other community and scientific events, so our mission is strong.
OUR IMPACT
Money raised by the generous donations of our supporters has specifically funded groundbreaking discoveries and programs including:
Funding and leading research initiatives with the foremost brain tumor experts in the world,
Treatment discovery and development initiatives,
Clinical trials with leading biopharmaceuticals companies to increase drug development and create new options for treatment,
Critical platforms and processes for sharing cutting-edge medical and research information,
Advocacy and public policy initiatives to influence government legislation, regulations, and policy,
And finally, investing in our talented, unique and influential staff in order to drive these research and public policy advancements.
WHY INVEST IN THE NATIONAL BRAIN TUMOR SOCIETY
It takes the combined knowledge, expertise and dedication of many individuals and organizations to fight brain tumors and develop new treatments. This includes academic researchers, clinicians (neuro-oncologists, neuro-radiologists, neurosurgeons, etc.), biopharmaceutical companies, patients, survivors, caregivers, philanthropists, policy makers and regulators. When you give to one medical institution, you are helping just that one organization’s efforts. But, when you give to NBTS, you are investing in the combined power of the entire brain tumor community. Funding will go to many organizations and research efforts, giving brain tumor patients the best chance for better treatments.
This multi-pronged, community-based approach will help find treatments faster while promoting better information sharing and collaboration between experts around the world to find a cure for brain tumors. Only NBTS can convene these various forces through our programs and mission agenda in order to create rapid progress toward a cure.
