National Brain Tumor Society

National Brain Tumor Society We are a nonprofit organization committed to conquering and curing brain tumors--once and for all.
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Get ready for Head to the Hill 2025!Join the National Brain Tumor Society and your fellow volunteer advocates on Capitol...
01/24/2025

Get ready for Head to the Hill 2025!

Join the National Brain Tumor Society and your fellow volunteer advocates on Capitol Hill in Washington, D.C. from May 4-6, 2025 to share your story and urge policymakers to address the critical issues affecting the brain tumor community.

Register today: BrainTumor.org/HeadtotheHill

01/24/2025
01/23/2025

January is almost over — it’s time to start brainstorming your 2025 brain tumor fundraiser with NBTS!

Watch this video to learn more and help fuel the breakthroughs ahead.

Submit an interest form on our website, and Lauren or Ashlyn on our Fundraise Your Way team will be in touch: https://braintumor.org/events/fundraise-your-way/

Samantha Tavino joined the National Brain Tumor Society community in 2021 when her husband, Tom Tavino, was diagnosed wi...
01/22/2025

Samantha Tavino joined the National Brain Tumor Society community in 2021 when her husband, Tom Tavino, was diagnosed with glioblastoma (GBM).

She went on to run the Boston Marathon with Gray Nation Endurance®, participating in the Carolinas Brain Tumor Walk and Race, and most recently, recruiting her two children, Tommy and Codie, to run the Walt Disney World 5K in memory of their father.

On January 9, the Tavino family crossed the finish line in the most magical place on Earth while representing Tom's strength and perseverance.

Samantha said, "I am passionate about sharing and fundraising for GBM for my children. I want them to know that just because they lost their father doesn’t mean we can’t continue to help others. We don’t have to be stagnant … we can grow in our grief."

Adam Holland writes about his experience moving forward after his diagnosis with  .He reflects on all that he has gone t...
01/22/2025

Adam Holland writes about his experience moving forward after his diagnosis with .

He reflects on all that he has gone through and provides insight into the process of accepting his new normal.

In this blog article, Adam reminds us all of the power of telling our story: https://www.cern-foundation.org/news/survivorship-whats-next

Spots are still open for popular spring races! Join our Gray Nation Endurance teams in the United Airlines NYC Half, Los...
01/17/2025

Spots are still open for popular spring races! Join our Gray Nation Endurance teams in the United Airlines NYC Half, Los Angeles Half, and Big Sur 11-Miler and 12K.

You’ll be joining enthusiastic team members as you put meaning behind your miles on one or all of these iconic race courses.

Apply now while spots are available at BrainTumor.org/GNE.

Turn your passion into progress in 2025 when you start a fundraiser in your community with our Fundraise Your Way progra...
01/14/2025

Turn your passion into progress in 2025 when you start a fundraiser in your community with our Fundraise Your Way program!

Take an activity you love — a walk, sporting event, happy hour, fitness class, craft, bake sale, trivia night — and use it to rally support in your community for brain tumor research, advocacy, and personalized navigation and support.

Learn more: https://braintumor.org/events/fundraise-your-way/

Congratulations to our 62   athletes who participated in the 2025 Walt Disney World® Marathon Weekend Run Disney for NBT...
01/12/2025

Congratulations to our 62 athletes who participated in the 2025 Walt Disney World® Marathon Weekend Run Disney for NBTS. 🏰✨

Our team consisted of athletes who ran in honor and in memory of their loved ones and the brain tumor community, including nine brain tumor survivors who ran in honor of their own brain tumor journeys. This weekend was filled with magic, smiles, meaningful miles, and a shared love of running in the most magical place on Earth. As our first official team in this race, our 62 runners raised an impactful $88,500 to support NBTS's mission.

Learn more about putting meaning and magic behind your miles with NBTS: https://braintumor.org/GNE

🏃🪄🏰

Sign up for our newsletter to receive important updates and research news, learn about support options for patients and ...
01/10/2025

Sign up for our newsletter to receive important updates and research news, learn about support options for patients and care partners, and explore ways to take action and raise awareness.

Together, we can conquer and cure brain tumors — once and for all!

Stay connected: BrainTumor.org/Subscribe

January is Children Facing a Parent’s Cancer Month — a time to spotlight the unique challenges families face when a pare...
01/09/2025

January is Children Facing a Parent’s Cancer Month — a time to spotlight the unique challenges families face when a parent is navigating a brain tumor diagnosis. Balancing treatment, family life, and emotional well-being is no small task.

That’s why we’ve teamed up with Pickles Group and parents like you to share tips on:
✅ Validating your child’s feelings
✅ Maintaining family routines
✅ Managing treatment-related fatigue

Read more: https://braintumor.org/news/parenting-with-a-brain-tumor-practical-tips-for-families/

We at the National Brain Tumor Society stand with the thousands of people affected by the catastrophic Southern Californ...
01/09/2025

We at the National Brain Tumor Society stand with the thousands of people affected by the catastrophic Southern California wildfires. From near and far, we support you and hope that those battling the blazes are able to further mitigate the destruction and lives lost. We extend our thoughts to and beyond our brain tumor community to all Southern California residents.

Please stay cautious. Please stay safe.

(Photo: California Department of Forestry and Fire Protection)

For many patients and care partners, understanding and managing balance challenges is a common part of the brain tumor e...
01/08/2025

For many patients and care partners, understanding and managing balance challenges is a common part of the brain tumor experience.

In recognition of January as , learn how to assess one’s risk of falling and how physical therapists can help patients improve balance and minimize falls:

In this post, assess your balance and fall risk factors and learn how physical therapy might help through your brain tumor experience.

Reminder: the due date for liquid biopsy Letters of Intent to the Brain Tumor Funders Collaborative is next week!Apply t...
01/07/2025

Reminder: the due date for liquid biopsy Letters of Intent to the Brain Tumor Funders Collaborative is next week!

Apply today.

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02458

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What is our mission?

WHY WE ARE DIFFERENT

We believe we can move the needle faster and drive more new discoveries by influencing and funding research, and actually bringing together policy makers, researchers, clinicians doctors and industry organizations to collaborate and share information in order to find better treatments and a cure for brain tumors. We are the only brain tumor organization that has an active public policy agenda, and we directly advocate to policymakers to give brain tumor patients a voice in Washington, D.C.

We are intimately connected with top brain tumor researchers, academics and clinicians. Some of the top brain tumor experts are scientific advisors on our programs, and we hire PhDs to help create informative content and translate new research developments into language that brain tumor patients and their families can understand and act on.

We don’t just write blank checks. We drive a thoughtful research agenda and hold our researchers’ feet to the fire by monitoring their progress and having them report on findings to the community to justify funding.