We are a nonprofit organization committed to conquering and curing brain tumors--once and for all.
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10/30/2025
We are deeply grateful to Focus Partners Wealth for their generous ongoing support of the National Brain Tumor Society.
Yesterday, we were honored to join Focus Partners teams from both NYC and Long Island, together with their CEO (NBTS board member emeritus and brain tumor survivor) Michael Nathanson, for an event to celebrate our partnership, raise awareness, and inspire staff to get involved with our organization.
It was a joy to welcome Michael into the GNE family as he laces up to run the Disney marathon this winter. The program also featured moving speeches from several Gray Nation Endurance athletes — including NBTS board member Kabir and survivors James and Courtney — who will be running the NYC marathon this Sunday.
Focus Partners’ team created thoughtful gift bags for all 58 athletes who will be putting meaning behind their miles this weekend for NBTS.
💡 Looking for ways to support the brain tumor community through corporate engagement opportunities? Email us at partnerships@braintumor.org
10/29/2025
Today, in honor of International Brain Tumour Awareness Week, we’re spelling “tumor” a little differently.
Together, let’s end this disease and make this word obsolete in every format, in every language.
Support the and community this week by resharing these facts to raise awareness.
10/27/2025
Curious about brain tissue donation? Our blog post sheds light on the process and provides questions to help make informed decisions.
Join our Caregiver Support Conversation on Monday, November 3, at 7 p.m. ET to connect with fellow care partners who understand the challenges of supporting someone with a brain tumor.
Share, listen, and find community in a welcoming, safe space.
✨ Interested in truly making a difference this holiday season?
Whether it’s hosting a holiday light show, bake sale, gingerbread house contest, holiday craft show, or another festive activity you enjoy, turn your annual holiday tradition into a moment of impact by planning an NBTS event.
Nancy M.’s family transformed a cherished Thanksgiving mimosa walk into the annual to honor Nancy and raise funds for brain cancer research.
After Kim and Brian S. lost Kim’s father to glioblastoma in 2015, they decided to bring holiday cheer to their community every year by hosting their Holiday Light Spectacular in support of NBTS.
Inspired by these families and their efforts to turn their annual traditions into a moment of impact?
Create your own event and reach out to our Fundraise Your Way team at community@braintumor.org or visit braintumor.org/FYW
10/24/2025
Come be part of the 8th annual Virginia Brain Tumor Walk & Race with NBTS on Sunday, November 2, in Richmond, VA.
Set against the stunning backdrop of Bryan Park’s vibrant fall colors 🍂🍁, this 5K walk/run is the perfect way to honor survivors, remember loved ones, and celebrate the progress being made in the fight against brain tumors.
Register before Monday, October 27 to get $5 off your registration fee!
Sign up today at: BrainTumor.org/Virginia
DC, MD & VA Brain Tumor Community
10/23/2025
Earlier this week, NBTS was proud to attend the 2025 Georgia Wireless Association (GWA) David Downie Memorial Golf Classic in Braselton, Georgia.
This annual event is held in memory of David Downie, a GWA board member who passed away in 2019 after a 16-month battle with glioblastoma. The 2025 event brought together 300 golfers over two days in order to support the National Brain Tumor Society’s mission and honor David’s memory.
In their three year history of supporting NBTS through their Fundraise Your Way event, they have raised an impactful $75,000 to drive discoveries and fuel breakthroughs ahead for the brain tumor community. Congratulations and a heartfelt thank you to the Georgia Wireless Association for their significant support!
Ready to make an impact like these golfers?
⛳ Start your own event: Braintumor.org/FYW
10/23/2025
⏳ Last chance to register!
Join us tomorrow, Oct 24, for the latest MyTumorID webinar, "Let’s Talk About Clinical Trials: With MyTumorID, I Decide."
Learn how clinical trials work and when to talk to your doctor about them.
You’ll hear from Dr. Grace Tobin, a neuro-oncologist at the University of Minnesota with training from Johns Hopkins and the NIH, and Tosha B., a registered nurse and community member who has been thriving on a clinical trial with ONC201 since 2019.
Eli T. was honored to represent the National Brain Tumor Society at this week’s 2025 NORD Rare Diseases and Orphan Products Breakthrough Summit in Washington, D.C.
Thank you, NORD Summit, for convening experts and advocates to advance breakthroughs in research, treatments, and policies for the entire rare disease community.
10/22/2025
“It sounds funny, but itch your nose before the radiation mask goes on!”
That’s just one of the nine patient-tested tips shared by people who’ve been through brain tumor radiation therapy.
🍂 This weekend, over 2,100 participants and 132 teams participated in the New England Brain Tumor Walk.
As of this morning, the event has raised $546,000 — and counting!
Sending a huge thank you to our top teams, DMG v GBM, Team Oligo, and Dave’s Babe, as well as to everyone who joined the walk or contributed.
Together, we’re driving meaningful progress in the mission to end brain tumors.
New England Brain Tumor Community
10/20/2025
We’re pleased to welcome Leah Recht as the new Chair of our Board of Directors! 🎉
Leah, a partner at Orrick, is both a respected leader in her field and a passionate advocate who has been part of the NBTS community since losing her father to a malignant brain tumor in 2007.
We are deeply grateful to Dr. Edjah Nduom (Winship Cancer Institute of Emory University) for his remarkable tenure as Board Chair, and we look forward to all that Leah will help us achieve in this next chapter.
Join us in thanking Edjah and congratulating Leah by leaving your words of support below!
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We believe we can move the needle faster and drive more new discoveries by influencing and funding research, and actually bringing together policy makers, researchers, clinicians doctors and industry organizations to collaborate and share information in order to find better treatments and a cure for brain tumors. We are the only brain tumor organization that has an active public policy agenda, and we directly advocate to policymakers to give brain tumor patients a voice in Washington, D.C.
We are intimately connected with top brain tumor researchers, academics and clinicians. Some of the top brain tumor experts are scientific advisors on our programs, and we hire PhDs to help create informative content and translate new research developments into language that brain tumor patients and their families can understand and act on.
We don’t just write blank checks. We drive a thoughtful research agenda and hold our researchers’ feet to the fire by monitoring their progress and having them report on findings to the community to justify funding.
We support more than 23 signature, regional walks, races and rides and many other community and scientific events, so our mission is strong.
OUR IMPACT
Money raised by the generous donations of our supporters has specifically funded groundbreaking discoveries and programs including:
Funding and leading research initiatives with the foremost brain tumor experts in the world,
Treatment discovery and development initiatives,
Clinical trials with leading biopharmaceuticals companies to increase drug development and create new options for treatment,
Critical platforms and processes for sharing cutting-edge medical and research information,
Advocacy and public policy initiatives to influence government legislation, regulations, and policy,
And finally, investing in our talented, unique and influential staff in order to drive these research and public policy advancements.
WHY INVEST IN THE NATIONAL BRAIN TUMOR SOCIETY
It takes the combined knowledge, expertise and dedication of many individuals and organizations to fight brain tumors and develop new treatments. This includes academic researchers, clinicians (neuro-oncologists, neuro-radiologists, neurosurgeons, etc.), biopharmaceutical companies, patients, survivors, caregivers, philanthropists, policy makers and regulators. When you give to one medical institution, you are helping just that one organization’s efforts. But, when you give to NBTS, you are investing in the combined power of the entire brain tumor community. Funding will go to many organizations and research efforts, giving brain tumor patients the best chance for better treatments.
This multi-pronged, community-based approach will help find treatments faster while promoting better information sharing and collaboration between experts around the world to find a cure for brain tumors. Only NBTS can convene these various forces through our programs and mission agenda in order to create rapid progress toward a cure.
