MDA of Connecticut

03/03/2025

To better serve our community and provide you with more streamlined updates, the [TAG] Muscular Dystrophy Association (MDA) is consolidating this local page with our National MDA page: https://www.facebook.com/MDAOrg

By centralizing our communications, we’ll:
✅ Share stories that show how your support and impact at home is driving impact and momentum in your hometown and across America.
✅ Provide consistent updates on research, resources, and programs.
✅ Keep you informed about upcoming events, advocacy efforts, and ways to get involved.

We’re so grateful for your support here and invite you to Follow our national page to stay connected and up to date. Together, we’ll continue to make a difference for individuals and families impacted by muscular dystrophy, ALS, and related neuromuscular diseases.

Click here to join us: https://www.facebook.com/MDAOrg/

Thank you for being part of our incredible community!

MDA is the #1 voluntary health organization in the US for people living with neuromuscular diseases.

01/08/2025

MDA Summer Camp, offered in-person and virtually, is provided at no cost to families of children and young adults living with neuromuscular diseases. 2025 also marks the 75th Anniversary of the Muscular Dystrophy Association. New York, Tuesday, January 7, 2025 – The Muscular Dystrophy Association ...

10/24/2024

MDA partners including International Association of Fire Fighters, National Association of Letter Carriers, CITGO Petroleum Corporation, and more, to participate in the reveal of the winners’ dream costume in 2025. NEW YORK, Thursday, October 24, 2024 – The Muscular Dystrophy Association (MDA), ...

10/15/2024

Olivia Holler’s experiences made her want to embrace her differences and help others understand life with a disability.

10/14/2024

A.J. Bardzilowski, who lives with a rare double diagnosis, shares how he adapted to physical challenges in his career.

09/26/2024

09/26/2024

Thank you to our Muscular Dystrophy Association community and volunteers for joining us at the 2024 CITGO Braintree Terminal Golf Classic presented by The Foth Companies Infrastructure and Environment! This event raised over $35,000 to fund MDA's mission to empower the people we serve to live longer, more independent lives. Special thanks to CITGO Fueling Good for their continued support of MDA families in MA and in communities across America.

09/13/2024

We are so grateful to our Gold Sponsor AmSpec Group for their support at the upcoming CITGO Fueling Good Linden Terminal Golf Classic presented by Auchter Industrial Vac Service! Your support brings the neuromuscular community together to raise awareness and funds for the mission of Muscular Dystrophy Association.

09/13/2024

September is National Preparedness Month. Check out our MDA Virtual Learning Preparing for Emergencies session with Roger Lopez, MDA- International Association of Fire Fighters National Coordinator, retired Captain & Safety Officer San Antonio Fire Department, and Derek Pollnow, MDA State Coordinator, Federated Fire Fighters of Wyoming and Engineer/Paramedic & Wildland Coordinator, Cheyenne Fire & Rescue. This webinar addresses preparing for the unexpected and will help attendees understand potential risks in their geographical area and the different types of emergencies they might encounter, how to make an emergency plan, and how to build an emergency kit. Watch on-demand here: https://www.youtube.com/watch?app=desktop&v=OI0x41Mm3-0

09/04/2024

The day is finally here! We’re happy to finally announce the virtual premiere of Good Bad Things, streaming on VEEPS from Friday, September 20th at 6 pm PST - Sunday, September 22nd at 11:59 PST. 25% of your ticket price will benefit MDA's mission to empower the neuromuscular community to live longer, more independent lives.

“Good Bad Things is the movie I wish I had seen on a screen 20 years ago as a young adult living with a disability, unsure of how I fit into the world around me. Living your life, never seeing anyone on a screen, in a magazine or on a stage who looks like you is lonely. This movie and the inclusion it stands for is so needed and the reach of the cinema is powerful. This is how we will change the world for the 61 million people living in the United States with disabilities,” said Mindy Henderson, Vice President, Disability Outreach & Empowerment, Muscular Dystrophy Association.

Purchase your ticket today: https://veeps.events/goodbadthings-mda

08/26/2024

Over 420 IAFF ‘Fill the Boot’ events nationwide with local fire departments over Labor Day Weekend celebrating 70 years of partnership with MDA and IAFF NBC KSDK’s ‘Show of Strength’ Broadcast on September 1 live from Grants Farm in St. Louis from 8-10 p.m. MDA on the Hill from September 8...

08/23/2024

📝 August is Make A Will Month! Your estate planning today can secure a better tomorrow for people living with neuromuscular diseases. By including MDA in your will, you can help continue this incredible work, funding research, care, and advocacy efforts that change lives.

Visit MDA's Planned Giving Page to learn how your legacy can make a lasting impact. Together, we can ensure that the fight against muscular dystrophy, ALS and related neuromuscular diseases carries on for generations to come. Get started here: https://mdalegacy.org/

08/22/2024

Join us on August 29, September 5, and September 12 for this in-depth learning series all about advancements and considerations in gene therapy across neuromuscular diseases. This multi-day series is free for people living with neuromuscular disease and their caregivers.

Presentations from experts in the field include: Craig Zaidman, MD and Natalie Goedecker CPNP, WashU Medicine, Barry J. Byrne, MD, PhD UF Health, Michael Storey, PharmD from Nationwide Children's Hospital, Paul Melmeyer, VP of Public Policy and Advocacy at MDA, and Aravindhan Veerapandiyan, MD from Arkansas Children's.

Each presentation will also offer a live Q&A. Register today! https://mdausa.webex.com/webappng/sites/mdausa/webinar/webinarSeries/register/4bfad64d0f6a4cc0b8d71beb80d124d4

08/19/2024

In recognition of SMA Awareness Month, MDA is hosting a Q&A this Thursday, August 22 at 4pm ET with expert clinicians including Anne Connolly, MD from Nationwide Children's Hospital, Jason Howard, MD from Nemours, and Kara Arps, PT from Monroe Carell Jr. Children's Hospital at Vanderbilt. Write down your questions as you watch their on-demand presentations and then get them answered at the live Q&A! Register today here: https://www.mda.org/care/community-ed/mda-virtual-learning/2024/mda-learning-series-sma

Special thanks to our program supporters Biogen, Genentech, and Scholar Rock.

08/12/2024

We are proud to announce the 10 recipients of the inaugural MDA College Scholarship program from across the country! 🎓 Students were selected based on their commitment to community involvement, leadership potential, and personal growth and the scholarship funds will go towards their pursuit of higher education goals. Congratulations scholars! 🎉 Thank you to our sponsors Certina and Numotion Foundation.

Learn more: https://www.mda.org/press-releases/2024/mda-announces-recipients-of-inaugural-mda-college-scholarship-program

08/09/2024

Join us Tuesday, August 27 and Wednesday, August 28 from 5 - 8pm on both dates for the MDA Next Steps Seminar for newly diagnosed ALS patients and their families. Topics will include medical care, equipment and home modifications, mental wellness, financial planning, and more. Expert clinicians and members of the ALS community will provide insights, guidance and support in Q&A sessions. Register free today: https://www.mda.org/care/community-ed/next-steps-seminars

Thank you to our webinar supporters, Biogen, Mitsubishi Tanabe Pharma America, Inc., and Reinsurance Group of America, Incorporated.