ITSAN - Topical Steroid Withdrawal Syndrome Support

ITSAN - Topical Steroid Withdrawal Syndrome Support This is the official public page for the International Topical Steroid Awareness Network. Please find a supportive doctor for that purpose.

The ITSAN page offers information and inspiration about Topical Steroid Withdrawal Syndrome, but does not answer specific questions or medically advise. Please join our official ITSAN Facebook support group in the link below for discussion and support from other members:

https://www.facebook.com/groups/ITSANSupport/

Neither ITSAN nor its support group members are permitted to give medical advice or diagnose.

Do you feel the calling to take on TSW? 💪Do you want to turn the pain you’ve endured into a force for good?💥 Waking up t...
02/25/2026

Do you feel the calling to take on TSW? đź’Ş
Do you want to turn the pain you’ve endured into a force for good?

💥 Waking up the medical world to the harm they’re causing
đź’Ą Fueling research to find answers and treatments
đź’Ą Supporting this incredible community
đź’Ą Preventing others from ever going through TSW

We know that feeling well…
That’s why we've put together our top 10 TSW-friendly fundraising ideas anyone can do, no matter how your skin is feeling. Big or small, online or offline – there’s a way for you to make an impact.

What will you choose to do?

We can’t wait to cheer you on, share your fundraiser, and help you reach your goal.
Together, we can turn the tide on TSW. đź’™

Check out our fundraising guide at the link below and get started today!
https://actionhub.itsan.org/fundraising/

You lived it. Now let’s prove it.Every person who joins our TSW registry strengthens the evidence.This data will help us...
02/24/2026

You lived it. Now let’s prove it.

Every person who joins our TSW registry strengthens the evidence.
This data will help us get doctors, researchers, and regulators to listen.
This is how we prove TSW is real – and demand better.

To date, 500 people around the world have added their experience! But we need more to collect the kind of data that will change the system and uncover clues in our collective stories. We are aiming for 5,000. Will you help prove TSW by joining the registry today?

Find out more by clicking the "TSW Patient Registry" link in our bio's linktree

02/22/2026

Those in TSW are particularly vulnerable to the skin virus, Eczema Herpeticum, which can become dangerous very quickly. Know what signs to look for and when to seek medical help.

Watch the full video here: https://youtu.be/kT-FL9NZSko

02/19/2026

"I can’t believe I’m running the London Marathon after everything TSW put me through. If you’re struggling right now — please keep going. It does get better.
My full story is on my fundraising page in my bio . Every share and donation means the world. ❤️ - Emma

THANK YOU for raising awareness and supporting ITSAN, Emma!

When you’re living with Topical Steroid Withdrawal, even the smallest moments can feel overwhelming. The long nights… th...
02/18/2026

When you’re living with Topical Steroid Withdrawal, even the smallest moments can feel overwhelming. The long nights… the relentless itch… the isolation… the feeling that no one truly understands.

That’s why we created the TSW Survival Guide – a crowdsourced collection of real ideas, tips, and lived-experience from people who have been exactly where you are.
Inside, you’ll find community-shared ideas to help you get through the hardest days, soothe the endless nights, and bring even a small amount of relief or comfort when you need it most.

Visit ITSAN.org to download your copy from our homepage. Keep it on your phone, print it out, or share it with someone who’s supporting you through this.
You don’t have to face TSW alone.

Get your TSW Survival Guide now at www.ITSAN.org

Sharing another insightful TSW study led by Dr. Olivia Friedman and Dr. Peter Lio, recently published in the Journal of ...
02/17/2026

Sharing another insightful TSW study led by Dr. Olivia Friedman and Dr. Peter Lio, recently published in the Journal of Integrative Dermatology. The paper highlights how four TSW cases may be approached differently from Western and Traditional Chinese Medicine (TCM) perspectives to illustrate considerations in treatment and learning opportunities from both approaches.

Full paper can be read here: https://jintegrativederm.org/doi/10.64550/joid.sz9jaz87

SAVE THE DATE, July 24-25, for the TSW event of the year!!! Come join us in Atlanta, Georgia this summer for a big old ...
02/11/2026

SAVE THE DATE, July 24-25, for the TSW event of the year!!! Come join us in Atlanta, Georgia this summer for a big old TSW and eczema community reunion - a place to finally meet those you've known for years online and an opportunity to make new friends and learn all the latest on TSW and eczema, treatments, and ways to work toward real health from the inside out.

There's nothing like being with people who TOTALLY get you - who completely understand the silent, internal battles this condition puts us all through and can provide the encouragement and solidarity that touches the deepest parts.

We are so excited to announce this event that will bring together TSW familiar physicians, researchers and practitioners, along with those who have been through the fires of TSW and eczema and have come out on the other side to share insights, pearls of wisdom and hope for the journey.

As a sneak peek: you'll hear from speakers like Dr. Peter Lio, Dr. Ian Myles and Dr. Olivia Friedman, as well as licensed therapists who understand the extra burden an under-recognized condition can put on individuals and parents. As eczema patients and caregivers, we at ITSAN are creating the event we all wish we had decades ago, so get ready for awesomeness!!!

Registration opens early March - we've got room for 250 people (individuals, parents and families), so you'll want to jump on this one! For those unable to attend in person, there will be an option to join us virtually.

Got something you'd really like to learn about? Drop it in the comments and we'll add it to the list....

ITSAN welcomes Skin Solace Clinic in the UK as the newest member of our Healthy Skin Club!Skin Solace Clinic provides Ul...
02/09/2026

ITSAN welcomes Skin Solace Clinic in the UK as the newest member of our Healthy Skin Club!

Skin Solace Clinic provides Ultra-Pulse Contact Cold Atmospheric Plasma (CAP) treatments along with a holistic care protocol as its care approach for individuals navigating topical steroid withdrawal (TSW). Clinical research has explored the potential of CAP in supporting skin regeneration and addressing bacterial presence. The Skin Solace Clinic care team has received training in a specialized method developed by Jay and Dr. Chanchai, the founders of the treatment. The clinic is committed to offering a supportive and compassionate environment for individuals experiencing TSW.

We are so grateful for this amazing group and the services they offer to help support those going through TSW, and for helping advance the work of ITSAN to raise awareness and help end this crisis. Welcome aboard, Skin Solace!

We are so excited to welcome BALMONDS to ITSAN's Healthy Skin Club!Balmonds has been such a friend and ally to the TSW c...
02/06/2026

We are so excited to welcome BALMONDS to ITSAN's Healthy Skin Club!

Balmonds has been such a friend and ally to the TSW community, giving a platform to voices that haven't been heard loudly enough, representing real skin on their channels, and supporting the important work of ITSAN.

While Balmonds acknowledges that skincare is never a magic bullet – and that managing itchy, inflamed skin takes a whole toolkit of strategies – their aim is to provide gentle products, including washes, creams, oils, and their popular Skin Salvation balm, to help people going through eczema flare-ups or TSWS feel more comfortable day to day.

We are grateful for the great work Balmonds is doing in both championing the TSW cause and also providing great products for the skin community. Thank you, BALMONDS!

Today we celebrate Claire Daley, who has made amazing headway in the UK, pushing for TSW recognition. Not only has she ...
02/04/2026

Today we celebrate Claire Daley, who has made amazing headway in the UK, pushing for TSW recognition. Not only has she been working with her Member of Parliament and local doctors, but she recently had her case study published by Dr. Fatima Hamed in the British Medical Journal (BMJ), "Topical steroid withdrawal: a serious, under-recognised skin condition." Claire relayed that it took two years and a complaint to her local hospital, but she was finally given an official TSW diagnosis and it was Dr. Hamed and her amazing colleagues who wrote the report.

Claire has additionally published a book, as a blog for free access to all. It is the story of sixty years of steroid use, from when topical steroids were new for skin conditions and shows her lifelong experience with the medical profession and with the reality of living with 'eczema' for all her life. The book is also a plea to the medical community to re-think what they have always known and to accept, diagnose and prevent TSW. Claire hopes her story helps to raise awareness and adds to evidence based knowledge about TSW. We are so grateful for her work to help better recognize TSW and push for better care and treatments.

You can access Claire's book here:
https://topicalsteroidwithdrawal2.wordpress.com/?_gl=1*18vkylb*_gcl_au*MTE2MjgzOTY0Ny4xNzY2OTUzNDgy

02/04/2026

We are blown away by how many of you shared vulnerably and honestly about your experience with TSW yesterday. Thank you for your willingness to turn your pain into purpose. The more our community speaks up, the less this condition can be ignored. Don't stop!

Help spread the word and bring an end to TSW! Whether by sharing your story with friends and family, a post on social m...
02/03/2026

Help spread the word and bring an end to TSW!

Whether by sharing your story with friends and family, a post on social media, joining ITSAN's TSW patient registry, or even reaching out to your local news station - every experience matters in helping raise awareness to this terrible, yet preventable, condition. Will you join us in adding your voice?

ITSAN has created a number of ways to get involved on our new Action Hub. Click the link to get started!: https://actionhub.itsan.org/

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