ITSAN - Topical Steroid Withdrawal Syndrome Support

ITSAN - Topical Steroid Withdrawal Syndrome Support This is the official public page for the International Topical Steroid Awareness Network. Please find a supportive doctor for that purpose.

The ITSAN page offers information and inspiration about Topical Steroid Withdrawal Syndrome, but does not answer specific questions or medically advise. Please join our official ITSAN Facebook support group in the link below for discussion and support from other members:

https://www.facebook.com/groups/ITSANSupport/

Neither ITSAN nor its support group members are permitted to give medical advice or diagnose.

When your skin feels out of control, relief can feel impossible. Join us next Saturday in recognition of World Atopic Ec...
09/05/2025

When your skin feels out of control, relief can feel impossible. Join us next Saturday in recognition of World Atopic Eczema Day for an interactive session that goes beyond creams and prescriptions to help you find calm, connection, and hope.

Virtual Event takes place: September 13th at 11 am PST - 2 pm EST - 7 pm GMT.

No need to put your camera on if you'd rather not - just come as you are!

Register at the link below
http://bit.ly/4g6Ocrx

Living with eczema or topical steroid withdrawal can feel overwhelming, especially when you feel like you’ve tried everything and nothing works. This isn’t another lecture about creams or prescriptions. It’s an interactive session where you’ll discover how stress and emotions fuel flare-ups and, more importantly, how to gently calm your body and mind so your skin can catch its breath. Together, we’ll explore simple practices you can use anytime, anywhere to ease the chaos, reclaim moments of relief, and feel less alone in the struggle. You’ll leave not just informed, but supported, with practical tools and renewed hope.

Our facilitator, Dr. Keira Barr, is a dual board-certified dermatologist, certified somatic trauma therapy and stress release practitioner, and the founder of the Center for Mind Skin Medicine.

Thank you (SDPA) for being the 1st professional derm association in the US to publish a position statement on prolonge...
08/28/2025

Thank you (SDPA) for being the 1st professional derm association in the US to publish a position statement on prolonged use of Topical Steroids! 👏 👏 👏

Link in chat

This story doesn’t need a caption. Alayna’s photos and spirit say a thousand words. This is why we continue this fight. ...
07/30/2025

This story doesn’t need a caption. Alayna’s photos and spirit say a thousand words. This is why we continue this fight.

Thankful for our newest sponsor . It is with your generosity and support that we can continue our work for this communit...
07/21/2025

Thankful for our newest sponsor . It is with your generosity and support that we can continue our work for this community.

In a matter of days, our new TSW Action Hub is going to launch, and we’d like to show the world what this condition has ...
07/09/2025

In a matter of days, our new TSW Action Hub is going to launch, and we’d like to show the world what this condition has really done to us.

Not just the visible damage – but the emotional wreckage, the missed milestones, the broken relationships, the isolation, the financial strain, the moments you didn’t think you could push on but did – and those times you simply couldn’t.

Because without stories like yours, the true cost of topical steroid withdrawal will stay hidden. And that silence will only fuel more suffering.

will you share your pain?

All you need to do is click on the link in our story, click below or comment below.

It can be a word.

A sentence.

A memory.

A moment.

Whatever rises up when you think about what TSW has stolen – or what you’re still fighting to get back.

You can remain anonymous. Or add your name. It’s entirely up to you.

Your story deserves to be heard.

https://surveys.questionpro.com/a/TakeSurvey?tt=yehZjEzc05wECHrPeIW9eQ%3D%3D&mc_cid=49df19eddf&mc_eid=51278af6db

Today is World Skin Health Day. It’s a day to raise awareness about how important our skin is to our overall well-being,...
07/08/2025

Today is World Skin Health Day. It’s a day to raise awareness about how important our skin is to our overall well-being, and a day to empower people to “take their power back” when it comes to skin health.

If there is anything we can all agree on as a community, it’s that people have a right to know about the real risk of TSW and to be given true informed consent when prescribed topical steroids. For too long, the TSW community has suffered while our injuries go unrecognized, unaddressed and swept under the rug by a medical system that denies and refuses to deal with what’s really going on.

For years, ITSAN has walked a diplomatic path, attempting to build bridges with authoritative bodies that are in a position to address and prevent TSW – and while some brave doctors have heard our cry for help and have responded, the establishment at large has not taken action.

We cannot stand idly by.

As we focus today on Skin Health, it’s the perfect time to let you know that ITSAN will soon be launching our New TSW Action Hub – giving you, and untold numbers around the world, a platform to fight back from: A way to be seen, to be heard, and to make a real and lasting difference in the fight against TSW.

Stand by for more…

We are rolling out some new and exciting campaigns! Be a part of a TSW poem heard around the world! DM us if you’d like ...
07/01/2025

We are rolling out some new and exciting campaigns! Be a part of a TSW poem heard around the world! DM us if you’d like to share your video. Looking for all ages!

We’ve been busy! Let’s take a trip down memory lane! Every volunteer behind ITSAN is working everyday to put an end to T...
06/27/2025

We’ve been busy! Let’s take a trip down memory lane! Every volunteer behind ITSAN is working everyday to put an end to TSW. We are grateful for the support from the community and also so humbled to be able to advocate for you. It’s touched all of us and brought us together. We are strong and will not falter from our mission.

Making it through to the other side of TSW is something that seems unreachable at times. But when it does happen, sharin...
06/13/2025

Making it through to the other side of TSW is something that seems unreachable at times. But when it does happen, sharing your story may help someone else just make it through the day. Please share your stories with us.
Words from a TSW mom:

I never thought we’d see this day it feels like a miracle.”

“Just wanted to share pictures taken this month. We are now 15 months steroid free and have managed her skin 100% naturally with immune supplements, balmonds and drought secret, dead sea salt baths and organic cotton clothing. These are some photos of her now, proving that TSW is absolutely 100% real and that steroids did this to my little girl, Thanks for all your resources and groups, the TSW community, I could never have done this without you all, especially with dermatologists telling me I was a googler and bad mum and that children couldn’t go through TSW!”

Grateful for the support of the National Eczema Association
06/09/2025

Grateful for the support of the National Eczema Association

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