ITSAN - Topical Steroid Withdrawal Syndrome Support

ITSAN - Topical Steroid Withdrawal Syndrome Support This is the official public page for the International Topical Steroid Awareness Network. Please find a supportive doctor for that purpose.

The ITSAN page offers information and inspiration about Topical Steroid Withdrawal Syndrome, but does not answer specific questions or medically advise. Please join our official ITSAN Facebook support group in the link below for discussion and support from other members:

https://www.facebook.com/groups/ITSANSupport/

Neither ITSAN nor its support group members are permitted to give medical advice or diagnose.

This is the event we have long been waiting for....A gathering of TSW thought leaders, clinicians, researchers, and tho...
05/14/2026

This is the event we have long been waiting for....A gathering of TSW thought leaders, clinicians, researchers, and those who have been fighting for their (or their loved one's) recovery.

If you haven't secured your ticket for the TSW Summit yet, now's the time! There is limited space, so we encourage you to book your tickets early to ensure we are not sold out.

We understand that going through TSW can make traveling away from home tricky and you may feel hesitant to commit (we've been there). Rest assured that we understand and are doing everything we can to make the event as TSW friendly and comfortable as possible for you! And if your skin takes a turn (as we know it can in this roller-coaster of TSW), we are happy to exchange an in-person ticket to a virtual one and refund you the difference. ❤

Book tickets by clicking here: https://www.itsan.org/tsw-summit-event/

Also, we do have a number of scholarships available to help cover ticket price. Priority is given to:
• Those facing financial hardship
• People experiencing TSW or eczema and their caregivers

If this would make attending possible for you, we encourage you to apply!

Apply by clicking here: https://form.jotform.com/261167225022043

Deadline is extended to: May 25, 2026, with awardees notified by June 1st.

TSW can affect so much more than just the skin — especially during the teen years. ❤️‍🩹Join us for a special live conver...
05/13/2026

TSW can affect so much more than just the skin — especially during the teen years. ❤️‍🩹

Join us for a special live conversation led by Reva Vaddi, a TSW teen advocate, sharing the real mental and emotional challenges of navigating Topical Steroid Withdrawal. Together, we’ll discuss the realities many young people face during TSW, including anxiety, isolation, self-image, friendships, school, and finding hope during the healing process.

Our goal is to create a supportive and honest conversation where teens and families feel understood, encouraged, and connected to others who truly “get it.”

Reva is a 17-year-old junior at Weston High School in Massachusetts. Outside of school, she has a passion for dance and singing, and dedicates her free time to volunteering at local healthcare facilities. Reva is also a dedicated advocate for awareness of Topical Steroid Withdrawal (TSW). Having experienced TSW firsthand, she is committed to sharing her story to support others navigating the same journey and to ensure that patients feel seen and heard.

🗓 May 23, 2026
⏰ 2:00 pm EST
📍 Live Webinar
🎟 Register: https://us06web.zoom.us/webinar/register/WN_RJe8Lsf9SJq4jfIDDUI6DQ

Please share with teens, parents, caregivers, and anyone impacted by TSW.

Hey ITSAN community! Next week we’re heading to Capitol Hill next week to advocate for:• Robust NIH and NIAMS FY27 fund...
05/12/2026

Hey ITSAN community!

Next week we’re heading to Capitol Hill next week to advocate for:

• Robust NIH and NIAMS FY27 funding
• Support for the Safe Step Act (S. 2903/H.R. 5509) and HELP Copays Act (S.864/H.R. 6423)
• Signing on as a member of the Congressional Skin Disease Caucus.

Will you stand with us? Sharing your story could help tip the scales.

Join us by taking action: https://skincoalition.org/take-action/ #/

Mental Health Awareness Month 🧡For those living with Topical Steroid Withdrawal (TSW), the impact goes far beyond the sk...
05/11/2026

Mental Health Awareness Month 🧡

For those living with Topical Steroid Withdrawal (TSW), the impact goes far beyond the skin.

Many in our community experience anxiety, depression, isolation, and emotional exhaustion throughout their journey. ITSAN recognizes that healing isn’t just physical—it’s deeply mental and emotional too.

If you’ve felt overwhelmed, misunderstood, or alone in this process—you are not alone.

This month, we’re holding space for the mental and emotional side of TSW, and sharing tools to help you navigate it.

🎥 Watch our recent webinar:
“Navigating Mental Wellness in TSW”
https://www.youtube.com/watch?v=EmUTjOUcrIk&t=1098s

In this conversation, we explore the mind-body connection, stress, and practical ways to support your mental well-being during TSW.



You deserve support. You deserve to feel heard. And you deserve care that sees the whole you.

A big shout out to our fabulous Healthy Skin Club Partners!ITSAN couldn't do the work we do, raising awareness of TSW an...
05/06/2026

A big shout out to our fabulous Healthy Skin Club Partners!

ITSAN couldn't do the work we do, raising awareness of TSW and supporting our community with resources and assistance, without their help.

These companies understand the needs of skin patients and are committed to developing product that will make a positive difference. If you haven't been introduced to them yet - come meet them at ITSAN's upcoming TSW Summit this July in Atlanta!

We would love for you to join us this coming July 24–25 in metro - Atlanta to learn, connect, and feel less alone in yo...
05/05/2026

We would love for you to join us this coming July 24–25 in metro - Atlanta to learn, connect, and feel less alone in your TSW journey.

If you haven't secured your ticket for the TSW Summit yet, now's the time! There is limited space, so we encourage you to book your tickets early to ensure we are not sold out.

We understand that going through TSW can make traveling away from home tricky and you may feel hesitant to commit (we've been there). Rest assured that we and are doing everything we can to make the event as TSW friendly and comfortable as possible for you! And if your skin takes a turn (as we know it can in this roller-coaster of TSW), we are happy to exchange an in-person ticket to a virtual one and refund you the difference. ❤

Book tickets here → https://www.itsan.org/tsw-summit-event/

Also, we do have a number of scholarships available to help cover ticket price. Priority is given to:
• Those facing financial hardship
• People experiencing TSW or eczema and their caregivers
If this would make attending possible for you, we encourage you to apply!

Apply here → https://form.jotform.com/261167225022043

Deadline: May 20, 2026

May is Mental Health Awareness Month—a meaningful reminder that healing from TSW isn’t just physical. For those impacted...
05/01/2026

May is Mental Health Awareness Month—a meaningful reminder that healing from TSW isn’t just physical. For those impacted, the mental and emotional toll can be just as significant, and just as deserving of care and attention.

At ITSAN, we’ve partnered with two incredible women to explore how to navigate the psychological challenges of TSW and move toward a place of true healing.

Angela Tiru, a TSW mom and psychology professor, shares insights on brain chemistry and the powerful mind–body connection, especially as it relates to stress during TSW. Destiny Davis, a licensed therapist specializing in chronic illness, thoughtfully addresses the difficult questions raised by our community—offering compassion, clarity, and practical support for the journey.

We’re also honored that both Angela and Destiny will be joining us this July in Atlanta for ITSAN’s TSW Summit. We hope this webinar offers meaningful support—and that you’ll join us in person to continue the conversation and connect with these inspiring voices.

Click the link for the full video: https://www.youtube.com/watch?v=EmUTjOUcrIk

CONGRATULATIONS , Emma! Not only did you beat TSW, you went on to successfully run the London Marathon!!!! We are cheer...
05/01/2026

CONGRATULATIONS , Emma! Not only did you beat TSW, you went on to successfully run the London Marathon!!!!

We are cheering with you from all around the world 🌏!

Thank you for sharing your journey and also helping to support the work of ITSAN through your fundraiser. Your victory brings hope to us all - BRAVA!

From Emma: "London Marathon 2026 - I had THE BEST day!
I absolutely loved every minute; the high-5s, the power boosts, the crowds, strangers shouting your name and willing you to make it! Unforgettable!
Thank you to everyone who sponsored me - I really appreciate it! TSW is a totally preventable condition that no-one should go through. It needs more research, awareness and treatment options, which is what your money will support.
For anyone in the depths of TSW now, please don’t give up - it does get better! I spent years scared of sweat and the pain + bone deep itch it caused. On Sunday, I ran a marathon and didn’t think about my skin once! Keep going!💪🙌🥇"

For anyone who would like to contribute to Emma's fundraiser, you can do so on her fundraising page linked in her bio . Every donation means the world. ❤️

Scholarships are now open for the ITSAN TSW Summit 🧡If attending has felt out of reach financially, this is exactly who ...
04/28/2026

Scholarships are now open for the ITSAN TSW Summit 🧡

If attending has felt out of reach financially, this is exactly who this is for. We’re offering a limited number of registration scholarships to help bring more of our community into this space.

✨ Scholarships will cover ticket price, with attendees arranging travel & lodging.

Priority is given to:
• Those facing financial hardship
• People experiencing TSW or eczema and their caregivers

We would love for you to join us this coming July 24–25 in metro- Atlanta to learn, connect, and feel less alone in your TSW journey.

If this would make attending possible for you, we encourage you to apply!

Apply here → https://form.jotform.com/261167225022043
Deadline: May 20, 2026

May is Mental Health Awareness month and ITSAN will be hosting a webinar led by two amazing women who understand the dee...
04/17/2026

May is Mental Health Awareness month and ITSAN will be hosting a webinar led by two amazing women who understand the deep impacts of TSW on emotional and psychological health. One is a licensed therapist who specializes in chronic illness and the other, a psychologist, who also happens to be TSW caregiver.

We wanted to give our community the opportunity to ask questions ahead of time for our speakers to address in the webinar. So if you've been wondering about something or really need some extra support in an area, please let us know.

Feel free to leave a comment or question in the comments or reach out to info@itsan.org and we will make sure to share these with our speakers.

Stay tuned for the webinar coming up early May!

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