ElderCareWiz

03/28/2026

Everyone should read and be aware. A recent client was prescribed a course of steroids by MGB in Boston as a last ditch effort to rule out autoimmune encephalitis.

‘Why do I remember that, which is of no use to me anymore, and yet I can’t remember my son’s wedding?’

03/28/2026

Another illness that mimics dementia to look out for and advocate testing if suspected. Please read & share! out

‘Why do I remember that, which is of no use to me anymore, and yet I can’t remember my son’s wedding?’

03/25/2026

For vision impaired folks - free video chat with volunteer who helps with sighted tasks like adjusting your thermostat. Think of the possiblities!!

Experience the benefits of accessible technology with Be My Eyes. Connect with volunteers for real-time assistance via video.

02/17/2026

I am very conflicted about AI for so many reasons but especially when filling gaps in elder care. This idea sounds great for this particular woman and ofc I am skeptical of privacy. The dangers were not discussed at all - kinda like a Wirecutter ad rather than a piece of journalism. But a good read nonetheles…

The ”conversation” made me teary tho ♥️😢🌈

At 85, Jan Worrell lived alone on a remote corner of the Washington coast. Could ElliQ become her companion?

01/30/2026

Dying 😂

01/01/2026

Short answer: yes, Dementia and Alzheimer’s diseases are terminal. https://www.facebook.com/share/r/185CceZEou/

12/27/2025

“Distracted by non-pharmacological interventions like art” 😂😂😂 I grew up learning medical documentation abbreviations because she would use it to write instructions on a post-it note when she wasn’t home. And she was always brief and to the point. She preferred to hangup the phone without saying goodbye at the end of a conversation. It wasn’t rudeness. She was on to her next task, efficient as ever.

Want to get the nurse on your side?? I teach families and students a secret. Rule #1 is “if you can write it on a post-it note, you can say it to a nurse”.

12/05/2025

One social worker’s opinion & tiny rant…I agree with the person who said “I don’t care what they call what I have, giving it a name just isn’t going to change anything.”

https://www.nytimes.com/2025/11/28/health/late-dementia-alzheimers.html?smid=nytcore-ios-share

See graph from Alzheimer’s assoc where they show how Medicare spends more $$ for Alzheimer’s “care” than other diseases. More than heart disease and cancer combined. Think about that!

I bet that’s PET scans, MRIs and other expensive tests that don’t return on investment. We know it’s not on long term care where Medicaid pays for actual hands on assistance care. These docs pat eachother on the back and get accolades etc and wrap up with “now we need to develop treatments!” Which they have said for 30 years.

I’d rather we spend $ not just on research but actual help for caregivers. ’s

11/22/2025

New resource

11/22/2025

This could be a critical development in community dementia care if reimbursement is adequate to hire professional (and local) navigators. We’ll just have to see. So far only two organizations in eastern MA signed up.

Explore Medicare's GUIDE Model for dementia care: comprehensive support for patients & caregivers. Learn how to qualify & find programs in your state.

11/19/2025

I haven’t tried this but I will next chance I get!

https://www.facebook.com/share/v/1ZjuvBVN1W/

11/13/2025

Tryin’ my hand at a lil substack y’all.

I’d like this to be a repository of lessons learned in aging, dementia care & death doula-ing. The tone is unprofessional and incorrigible, I promise.

Is this the beginning of the end?