We the Be

05/26/2023

Have you checked out the Psychological Development section on the Bladder Exstrophy app? This is where you can find information about the psychological aspects of BE from birth through adulthood. Download the app today!

05/19/2023

Let's celebrate life with Bladder Exstrophy! Share your happiest photo while living your best life with Bladder Exstrophy.

05/15/2023

Have you explored the Psychological Development section on our app? It provides valuable psychosocial resources and videos covering every stage from birth to adolescence. You can also join the forum to connect with OKC Kids therapist Jason for further discussions.

05/12/2023

Dr. Kropp has over 30 years of Pediatric Urology experience, and is an expert in bladder exstrophy! He and his team help patients manage BE throughout their lifespans! We love watching our patients grow and succeed! Photo thanks to Sarah Nicole!

05/08/2023

Bladder exstrophy is the most common of the larger group of birth defects called the bladder exstrophy-epispadias complex (BEEC).

Learn more about each of these complexes under the "treatments" tab on our App. Link to download the app in BIO!

05/05/2023

We love seeing how much you have grown since your last BE visit!

When properly managed, Bladder Exstrophy patients should only need to see their doctor once a year!

05/04/2023

Check out our NEWEST Blog post by OKC Kids Urology Nurse Practitioner Jake Klein!

There are thousands of adults and children who are required to perform clean intermittent catheterization (CIC) as part of their daily lives. Catheterizations have to be performed secondary to a wide array of medical conditions. Conditions such as these may be caused by problems with neurogenic (neu...

05/01/2023

The first step to being a Bladder Exstrophy genius 🤓 is downloading our FREE bladder exstrophy app today! Link in BIO!
Association for the Bladder Exstrophy Community

04/28/2023

Yearly urodynamics are essential for Bladder Exstrophy patients! Did you book your urodynamics visit yet?

04/24/2023

Abby is one of our BE patients! She stopped by to donate some of the catheters she no longer uses! We love seeing and supporting our Bladder Exstrophy patients!