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Brave like Baker, Oklahoma City, OK (2026)

05/06/2026

We’ve had such a great weekend and first couple days this week! We went to the new Skyzone Monday and visited his class Tuesday. 🎗️💛

Today was his first radiation round (1/33)
He did amazing, everyone told him how brave and handsome he is in his cute jammies🥺💛truly we have had the best nurses and it makes this experience so much easier. Just 32 more days. He’s got this 🎗️💪🏼

Monday his hemoglobin was 7.7 so it’s going up slowly on its own which is exactly what we want, just makes me feel anxious with keeping a watchful eye on him (as if I don’t already) making sure his color is good, he’s not over tired, etc.

We are still nephrotomy bag free 🙌🏼 everything is still the same with that. We have urology appointment next week with ultrasound to check on kidney function and make sure he’s doing well.

We have a virtual appointment tomorrow with Dr. Dolittle, he’s the reproductive urologist here at OU. We will discuss fertility preservation for Baker and kinda decide what we are going to do. Ideally this needed to happen before chemo so😭 hoping to learn more tomorrow and be able to plan accordingly.

They told us to expect a physical activity decline over the next couple weeks but Baker has consistently surprised all of us with his energy after every appointment. The chemo and radiation is so much on his body so I just pray over him everynight that he gets to enjoy what he can of the day symptom free. 🥺

It’s been 3 months of watching my baby fight.

3 months🎗️💛

05/01/2026

I feel like this week has been harder physically on Baker, and part of it is just him over doing it from finally having some freedom. But Monday his hemoglobin was 7.4 and last time this happened it jumped back up on his own but today he’s lost more of his color 🥺 he slept for over 4 hours which again just could be him over doing it but my momma guard is up and I’m keeping a watchful eye. His transfusion is scheduled for monday.

We go in tomorrow at 7:30am for mapping CT and that’s what they will use for radiation. I’m hoping we will receive the start date as well🥺🎗️ also speaking with them about future precautions fertility wise and how to protect him the best we can.

We are almost a week bag free and he is soaking every minute up that he can. This week we’ve planted lots of flowers and we received some caterpillars from a sweet teacher friend that we will be watching and caring for, for the next 12 ish days. He’s LOVING it🐛🦋

🙏🏼Pray for my sweet boy to get some good sleep and have a great early morning tomorrow. That his hemoglobin continues to rise and he doesn’t need a transfusion over the weekend. No fevers no tummy pain and no nausea. We seem to be dealing w all these things right now🥺

04/27/2026

We are home 🎗️💛
Chemo Week 11 done ✅
Nephrostomy Bag free🎉🎊

04/27/2026

We’ve had a full weekend doing everything he’s wanted💛🎗️🥺He’s wanted to run, jump, play tag, wrestle with brother, cuddles, ride 4 wheelers, bubbles, so much more. It was amazing seeing him just be our happy 4 year old who loves life 🥺😭🎗️

Our weekend started out a little rougher than we would have liked. He struggled a lot with pain Saturday morning from lack of pooping for 3 days. He was very nauseous/puking some, by Saturday afternoon he was perking up for his first birthday party he got to attend for a bit🥺💛

I don’t know what to expect tomorrow but I have not stopped praying that whatever he needs, let that be what happens. I’ve learned Im not in control here He is. Faithfulness is a act daily that I choose regardless of the outcome 🖤

2 Corinthians 12:9 My grace is sufficient for you, for my power is made perfect in weakness.🎗️

💛🎗️My only big ask tonight is that you pray that tomorrow morning we get this ultrasound and his kidneys are functioning enough to where he doesn’t have to have the bag put back in😭🙏🏼

•He does have chemo after so just pray for minimal symptoms since hes had a rougher weekend 🥺

Heres some fun pics over the weekend✨💕🥺

04/25/2026

MRI results came in earlier this week, it’s taken several days…really months to let it sink in and really accept that my son has stage 4 group 4 rhabdomyosarcoma🎗️

The mass is not IN the bladder which we are so thankful for, however it is on the left side of his pelvis pressed against the bladder and encased around the left uteter, left internal iliac vessel, and nearby roots.
There’s possible involvement near seminal vessels/prostate. It’s about 0.7cm lymph node, doesn’t mean spread but def being watched.

This is a rare aggressive cancer. The treatment is harsh. Baker receives chemo every week sometimes multiple times a week for 66 weeks.
Radiation is 33 days. Almost 7 weeks. No weekends.
We do not have a date for starting yet. His mapping CT is next Friday.

He received chemo everyday this week and was really having a good week all together. Thursday they checked labs because Tuesday his hemoglobin was a 7.4 but had jumped on its own to a 8 so he did NOT receive a blood transfusion today. Praise🙌🏼

Today we literally get de-accessed and was loading into the wagon when he started screaming and some how his nephrostomy tube was pulled and about 3 inches from coming out.😭 He started to feel very nauseous, clammy and sweating. He threw up some and then started to feel better.
I literally had a cry sesh in the toy closet with one of his sweetest nurses (we love them all) im just so tired and i know he’s tired. It is so hard seeing him go through this and I can’t do a single thing but watch and pray😭

They went ahead and removed the tube and stayed for a couple more hours (Thank God we were still there) and let us leave for the weekend but I’m on high alert duty all weekend watching for infection, fever, extra pain ect.
But we got to come home 😭
And for the first time in over 2 months my baby ran without something attached to him. And my heart broke again because why..??😭

🎗️Prayer request for this weekend-into the week🎗️
•We do not have to go to the ER over the weekend and his body/kidney can function without this bag.
•His pain and nausea can be kept to minimum.
•His hemoglobin continues to go up.
•His body can heal this extra wound
•That he can enjoy some time bag free this weekend. Even if it’s just for this weekend. Let him have fun🥺😭

Anxiety is high in this house. For him. For me. For dad. For sister and brother. Pray and cover my house in peace💛
Everyday is a challange. A hurdle that we all hold hands and jump together. I pray as soon as i wake up…and it’s the last thing i remember doing before going to sleep. My kids ask me questions i don’t have answers to anits so unfair.
I’m ready for this battle to be over 🎗️💛

04/20/2026

Chemo week 10🎗️

We have 2 chemos everyday this week.
Tomorrow we have MRI then chemo. We are really praying for more answers, know where the mass is ect. I NEED ANSWERS
Our consult for radiation got moved to Wednesday. We really needed the MRI before the consult so this is perfect. They were talking about admitting him to ensure we got this MRI THIS week because they are swamped they said, but we were able to get scheduled while in clinics today.

ANC was great. In the thousands.
Hemoglobin was a 8 exactly. He will need a transfusion this week, but hoping he can make it till Thursday.

💛Prayer requests:
•MRI results
•His hemoglobin stays above 7 for at least 2 days
•He stays healthy
•Minimal side effects this week. This is a long week
•Radiation consult goes smoothly

He asked today when we got in the car when he’d be better. I just had to swollow tears down and say “soon baby” 😭💛

04/17/2026

I was on and off the phone with doctors all morning. It’s taken several hours to just absorb all the information we received today and process it.
Again nothing just ever prepares you for hearing how sick your child is and how far you have to go to save them. 🎗️💛

It’s decided the mass is still to large to see where exactly its at, other then it was in his whole pelvis originally, and honestly they want better imaging so they are ordering a high definition MRI hopefully it can be scheduled for next week 🤞🏼
Either way surgery is to risky for damaging other organs so he will be doing radiation + chemo.
Radiation consult is Tuesday of next week so we will get all the details then but so far radiation will be 5/6 weeks EVERY DAY…+ his chemo on days he has it. He will have to be put to sleep each time. So fasting will start the night before. This starts in a couple weeks.

He will literally have radiation on his birthday😭

He will heave a fertility doctor that will help us decide the best way we can preserve what we can. Unfortunately there’s not a WHOLE lot they can do.😭 but I will try everything in my power to protect him anyway I can. I hate having to make decisions for him that he’s not even capable of understanding. My heart just feels so heavy. The probability of him having children is low.

The nodule in his lung is stable. It’s still lighting up on scans so could be nothing but still are keeping eyes on it. Hopefully MRI will clear this up more as well.
Hasn’t grown, hasn’t shrunk.

Chemo is 66 weeks. We do chemo every week

We still don’t have ALL the answers but our biggest praise is that treatment IS working. That’s huge. Again this is an aggressive cancer and we are fighting it as such.

Each day feels like a new challenge. As a mom I wanna fight harder. I feel so angry. This was obviously worst case scenario, and I hate it here 😭😭

We are 2 months in and Baker has continued to show resilience and strength and fight everyday. He’s brave…very very brave. He makes everyone around him smile because he’s just so happy despite everything that’s truly unfair he shows up positive.
I love him so much 🥺

Leaning on Him has truly been whats helped us feel peace, we continue to praise Him through the good and bad💛

04/15/2026

I was going to wait until tomorrow when I had more information/details but so many people are praying and I have received so many messages asking for updates. You guys have held our family almost this whole journey and I want my emotions to be as fresh, raw and real as possible.

This is vague simply because tumor board meets on Wednesday and they are discussing his case. We still have limited information.

All the news we received today was GOOD NEWS!!
His scans look so different from February it’s crazy.
There’s absolutely NO new spots or spreading.
As of right now, treatment is working. 🙏🏼🙌🏼

That’s really it. That’s all we know. When I say the waiting game is the hardest part. It really is.

God is good, even when we can’t see it. I’ve said since day 1 He’s the ultimate healer. I’m literally watching him be healed before my eyes.

I hope that gave you chills, because we sure got them seeing his scans🎗️💛

04/14/2026

Jeremiah 29:11

For I know the plans I have for you. Plans to give you hope and a future 💛🎗️

*pic from 3 days before 😭

04/13/2026

I’ve been super anxious the past few days as we approach scan day (tomorrow)
Praying day and night that we receive answers we are hoping for. Specifically no new spots/ spreading, and shrinkage.
We got a call friday saying that his insurance isnt covering the PET scan, just anther stressor😭 praying and hoping it’s covered. I have no idea how much a pet scan is, but i know the Lord will provide.

Chemo tomorrow afternoon 😭

Later that day we have a meeting with one of his main pathologists to discuss further treatment plans. I know originally at week 12/14 radiation was suppose to start but we will wait for answers with that.

We have gotten very vague information about treatment, the extent of the mass, plus where the mass started from, mainly because we only have beginning scans. It’s a process and it’s a horrible waiting game. The mass was inoperable when we went in. Surgery could still be on the table but we just don’t know yet.

We’ve had lots of questions about where the mass even is and as far was we know it’s on his bladder/pelvis and a possibility that it’s in his prostate. As well as nodules in his abdomen, and a random “spot” on his lung.

These scans will tell a lot for us and our journey and I’m scared. Everyday I wake up praying and so thankful we caught this when we did.
I’m thankful. Truly.

Psalms 56:3
When i am afraid, I will put my trust in You.

Pic from this weekend🎗️💛

Brave like Baker

05/06/2026

05/01/2026

04/27/2026

04/27/2026

04/25/2026

04/20/2026

04/17/2026

04/15/2026

04/14/2026

04/13/2026

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