Kids Have Migraine Too

10/28/2025

DHE is an old treatment. But it was a life saver for me years ago when nothing else worked. But a neighbor who was a nurse had to come over and give me the injections at the time. I was fortunate to not have to go into the doctor’s office every time I needed treatment though. These self injectors are expensive so I expect there will still be access issues for a while.

Exciting treatment news! 💉 📣 Brekiya® (dihydroergotamine mesylate), the first and only self-administered, ready-to-use DHE autoinjector is now available by prescription! 💙

Brekiya® is FDA approved for the acute treatment of migraine with or without aura and cluster headaches in adults. This ready-to-use autoinjector offers a new option for those who need access to DHE treatment outside of clinical settings.

🔗 Learn more in the Amneal Pharmaceuticals press release: https://investors.amneal.com/news/press-releases/press-release-details/2025/Amneal-Launches-Brekiya--the-First-and-Only-DHE-Autoinjector-for-Adults-with-Migraine-With-or-Without-Aura-and-Cluster-Headaches/default.aspx

📘 This post is for educational and awareness purposes only. It is not sponsored and does not promote or sell any specific product or treatment. The content is not a substitute for professional medical advice, diagnosis, or treatment. Always talk with a qualified healthcare provider about any questions regarding your health or treatment options.

09/12/2025

Parenting a child with pain is already a full-time emotional and logistical challenge.⁠
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But for 61% of parents, the story doesn’t end there—they live with chronic pain themselves.⁠
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That means managing their own medications, appointments, fatigue, and flare-ups while also advocating, comforting, and caregiving. It’s a dual burden that rarely gets acknowledged.⁠
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When a parent and child are both living with pain, it’s not just hard.⁠
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It’s layered. Compounding. Unrelenting.⁠
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Let’s unmask the complexity of families living with pain on multiple fronts—and the resilience it takes to face it every day.⁠
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Because pain is more than a chart. It’s a life.⁠
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09/12/2025

Wow! This looks like a great opportunity! I’ve not been to a walk/run/relax event but I have heard it’s an incredible experience!

08/08/2025

Life. Changing. News.

FDA Approves Fremanezumab as First Anti-CGRP Preventive Therapy for Pediatric Episodic Migraine!!! 💜

This milestone offers new hope for children and families navigating life with migraine and expands prevention options for pediatric patients.

Read more: https://www.neurologylive.com/view/fda-approves-fremanezumab-first-anti-cgrp-preventive-therapy-pediatric-episodic-migraine

📢 Join us in sharing this news with the migraine community.

06/19/2025

One letter can change everything.
And when it comes to migraine, that one letter can make people take you less seriously.

People with migraine are often dismissed, misunderstood, or told it’s “just a headache.” But language matters — and the way we talk about migraine plays a huge role in how the world treats those who live with it.

We live with migraine, not “a migraine” or “migraines.”
Why? Because migraine is a genetic neurological disease, not a one-time event.

Even when we’re not in an active attack, we’re managing symptoms, taking meds, avoiding triggers, or preparing for the next wave. It’s there — every day.

That’s why the migraine community encourages phrases like “I have migraine” or “I’m having a migraine attack” instead of “I get migraines.”
It’s not just semantics. It’s about accuracy, validation, and advocacy.

💬 What do you think — does language change how people understand migraine? Let’s talk about it in the comments.

04/18/2025

🎤 Open Mic Night: You’re Invited! 🎤⁠
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Join us Monday, April 21, from 7–8 p.m. ET for a powerful evening of storytelling and connection.⁠
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Writers from our Writing Room community will take the virtual stage to share powerful 3-minute “I AM” pieces—poems, letters, and personal reflections exploring resilience in the face of pain.⁠
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Hear raw, honest, and deeply moving reflections on perseverance and personal transformation.⁠
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Come listen. Come feel seen. Come connect.⁠
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Visit the link below to register today! ⁠

https://us02web.zoom.us/webinar/register/WN_92owf985Q-2JsBS1OYNCIA #/registration

03/02/2025

Applications are open for Pediatric Pain Warrior Summer Camp. Apply by March 15th!

📢 Exciting Announcement! 📢

We are thrilled to announce that the 4th Annual Pediatric Pain Warrior Family Summer Camp is happening June 22-26, 2025, at Morgan’s Camp in San Antonio, Texas! 🎉

This incredible five-day, four-night camp is designed specifically for pediatric pain warriors (under 18) and their families—providing a place to connect, find support, and make unforgettable memories. Immediate families and caregivers are welcome, including siblings over 18. Best of all, camp is completely FREE for families, with the only cost being travel to and from the camp.

What to expect:
Equine therapy, ropes courses, swimming, educational sessions, and daily peer support groups (for pain warriors, siblings, and parents or guardians). Plus a few new surprises from our favorite mascot, Pete the Penguin! 🐧

Applications are now open and due March 15! Don’t miss this opportunity to be part of a life-changing experience. Apply today and join us for a summer of fun, friendship, and healing. ❤️

📍 Apply now: https://survey.alchemer.com/s3/8162239/2025pedpainwarriorsummercampapp
📆 Dates: June 22-26, 2025
📍 Location: Morgan’s Camp, San Antonio, TX

Tag a family who would love this experience! 💙

02/27/2025

02/17/2025