Omaha Scleroderma Support Group

06/04/2024

Please keep Barb Heenan in your thoughts and prayers.

I am Barb Heenan; scleroderma warrior, wife, sister, aunt, best friend… Barbara Jo Heenan needs your support for Support Barb's Double Lung Transplant Journey

01/10/2024

HAPPY NEW YEAR!!! Invitations to our first 2024 "Localized Scleroderma Support Group Meeting" were just emailed! It's not too late If you or a loved one has localized scleroderma and/or Morphea & would like to join us! Our VIRTUAL meeting will be:
JANUARY 16 2024 @ 7PM (EASTERN)
If you are not already on our ZOOM invitation list and want to be you can email us at
localizedsg@scleroderma.org

01/01/2024

12/27/2023

Sad news. So sorry for your loss.

Debra H. Houghton February 18, 1956 – December 23, 2023 It is with profound sadness that we acknowledge that our family has lost its center. Debra’s journey ended on December 23, 2023. We are confident that she was welcomed into a greater life – one without pain, fatigue, or constraints. Altho...

12/27/2023

Don’t forget to take out some time and rest.

12/13/2023

Oh, such a busy time of the year! We will be here for you on DECEMBER 19, 2023 @ 7PM (EASTERN).
If you want to connect with others who have localized scleroderma (morphea), ZOOM invitations went out today... if you are not on the list it is not too late! For more information...
email: localizedsg@scleroderma.org

12/03/2023

Thank you for all those who attended 2023 Heartland Education Day.
We love you!

Dr Enos https://www.healingrootsclinic.com/
Sign up for free newsletter and AIP diet info.

Will post Jan Nitti’s suggestions when we receive the list.

Healing Roots Naturopathic clinic in Denver, Colorado (720) 295-9439 - Dr. Erika Enos

12/01/2023

REMINDER Last Chance to Register. Education Day Tomorrow 9am central

Register for the Heartland Education Day. 2 fabulous speakers.
19 giveaways valued over $800.

Register at

Saturday, December 2nd, 2023 9:00 AM - 12:00 PM Central Time Speakers: Dr. Erika Enos N.D., Naturopathy and Scleroderma Jan Nitti, Raynaud's Association, Keeping Warm with Raynaud's Raffles and connections too!

11/16/2023

ZOOM invitations were just sent for our NOVEMBER 21, 2023 Localized Scleroderma Support Group meeting! It is not too late if you wish to join! Just email: localizedsg@scleroderma.org

11/13/2023

Register for the Heartland Education Day. 2 fabulous speakers.
20 giveaways valued over $800.

Register at

https://us02web.zoom.us/webinar/register/WN_0YXs254dSkGEhr5Sm8bmIg #/registration

11/03/2023

Some of our giveaway prizes for Heartland Education Day include
Ocoopa Handwarms!

Heartland Education Day. Saturday December 2nd.

11/03/2023

Join us for the Heartland Chapter Patient Education Day, December 2, 2023
9:00am till noon

Use this link to register!

https://us02web.zoom.us/webinar/register/WN_0YXs254dSkGEhr5Sm8bmIg #/registration

10/25/2023

Please Save the Date! Registration open. Great Speakers and Giveaways!

https://us02web.zoom.us/webinar/register/WN_0YXs254dSkGEhr5Sm8bmIg #/registration

10/12/2023

It's finally here!

You can now enrol in the SPIN-SELF Trial. Eligible participants will be able to enrol immediately and may be randomized to test the program.

Learn practical skills to help manage living with scleroderma and coping with its symptoms, before the toolkit's public release.

Click the link to participate:
https://spinsclero.qualtrics.com/jfe/form/SV_0D3Qmjk1yBpfuGW

SPIN-SELF est là!

Vous pouvez désormais vous inscrire à l'essai SPIN-SELF. Les participants admissibles pourront s'inscrire immédiatement et seront répartis au hasard pour tester le programme.

Apprenez des compétences pratiques pour vous aider à vivre avec la sclérodermie et à faire face à ses symptômes.

Cliquez sur le lien pour vous inscrire:
https://spinsclero.qualtrics.com/jfe/form/SV_0D3Qmjk1yBpfuGW

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