Sickle Cell Disease Foundation

Sickle Cell Disease Foundation The Sickle Cell Disease Foundation provides life-enhancing education, services, and programs for ind

We offer FREE Sickle Cell Disease services in Southern California! We provide education and programming throughout Southern California for infants, children, teens, and adults with Sickle Cell Disease.

đź’ˇ Mentorship Opportunity!The SC Crew is looking for dedicated and compassionate mentors to help guide young people (ages...
09/26/2025

đź’ˇ Mentorship Opportunity!
The SC Crew is looking for dedicated and compassionate mentors to help guide young people (ages 15–20) living with sickle cell disease.

We especially need male mentors who can serve as role models and provide guidance, encouragement, and support. 🙌🏾

Your time and commitment can truly change lives—while also building lifelong connections. 💪🏾❤️

Mentor Application link:
https://tr.ee/FqH1WwYGyq

✨ Join us today and make a difference!

Please be advised that the Sickle Cell Disease Foundation is not associated with the organization conducting this resear...
09/25/2025

Please be advised that the Sickle Cell Disease Foundation is not associated with the organization conducting this research and will not receive any form of benefit from this opportunity

* This research project is being conducted in collaboration between the University of Connecticut and Brown University. The study explores how eating habits, emotional well-being, and body weight may impact Sickle Cell Disease-related symptoms.

* The researchers are also collecting feedback to develop a healthy lifestyle program for youth with Sickle Cell Disease.

* For this project, they are administering an online survey to adolescents and young adults (ages 13-20) with Sickle Cell Disease. Parental consent is requried for minors (13-17).

* The survey will take about 30 minutes to complete, and participants will receive a $25 gift card to thank them for their time. 

Registration link:
https://uconn.co1.qualtrics.com/jfe/form/SV_cTpiPrVDL0zxUCa?Q_CHL=qr

Myth: you get sickle cell disease from one parent.Fact: All forms of sickle cell disease result from the presence of at ...
09/25/2025

Myth: you get sickle cell disease from one parent.

Fact: All forms of sickle cell disease result from the presence of at least one sickle hemoglobin (HbS) gene paired with another abnormal hemoglobin variant. Sickle cell disease is an inherited blood disorder which means you inherited one gene from each parent. You can however inherit Sickle Cell Trait from one parent.
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Mito: uno de los padres contrae la enfermedad de células falciformes.

Hecho: Todas las formas de enfermedad de células falciformes son el resultado de la presencia de al menos un gen de hemoglobina falciforme (HbS) emparejado con otra variante anormal de hemoglobina. La enfermedad de células falciformes es un trastorno sanguíneo hereditario, lo que significa que heredó un gen de cada padre. Sin embargo, puede heredar el rasgo de células falciformes de un padre.


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Myth: Blood smears will show a SCD patient is currently having a crisis.Fact: Blood smear is an inaccurate test and cann...
09/24/2025

Myth: Blood smears will show a SCD patient is currently having a crisis.

Fact: Blood smear is an inaccurate test and cannot determine whether a SCD patient is currently having a crisis. There is no actual test that can show that a SCD patient is having pain so as a community we must do better with believing our Warriors when they say they’re in pain!
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Mito: Los frotis de sangre mostrarán que un paciente con SCD está teniendo actualmente una crisis.

Hecho: El frotis de sangre es una prueba inexacta y no puede determinar si un paciente con SCD está teniendo actualmente una crisis. No hay ninguna prueba real que pueda demostrar que un paciente con SCD está teniendo dolor, ¡así que como comunidad debemos hacerlo mejor al creer a nuestros Guerreros cuando dicen que tienen dolor!


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🌟 Make a Difference. Be a Mentor. 🌟SC Crew is looking for compassionate mentors to guide and support teens and young adu...
09/15/2025

🌟 Make a Difference. Be a Mentor. 🌟
SC Crew is looking for compassionate mentors to guide and support teens and young adults (ages 15–20) living with sickle cell disease. 💪🏽❤️

By committing just a few hours each month, you can help create lasting impact — building trust, relationships, and hope for the future. ✨

âś… Monthly meetings
âś… Weekly check-ins
âś… Fun outings
âś… Stipend available!

👉 Must be 24+ to apply.
đź“© Learn more at scdfc.org/sc-crew or email crew@scdfc.org

đź’™

•Join the U.S. Department of Health and Human Services (HHS) Office of Minority Health (OMH) and Office for Human Resear...
09/11/2025

•Join the U.S. Department of Health and Human Services (HHS) Office of Minority Health (OMH) and Office for Human Research Protections (OHRP) this September for “Sickle Cell Disease (SCD) and Gene Therapies: A Two-Part Webinar Series.” 
•Hear from individuals with SCD, clinical researchers, community-based organizations, and state/federal partners as they discuss initiatives to build confidence and increase access to innovative, life-changing SCD treatments.

PART ONE: Trust, Clinical Trials, and Transformative Therapies:
Ethical Pathways in Gene Therapy and Sickle Cell Disease
Thursday, September 18, 2025, 1-2:30 p.m. ET
•Hosted by HHS OHRP, this 90-minute webinar will bring together individuals with SCD, clinical researchers, bioethics experts, and a community-based organization to explore how partners can collectively build confidence and trust around life-changing, novel SCD therapies.

Registration link:
7a36d5c4-1edc-4d85-aea0-425cfc865c08@d58addea-5053-4a80-8499-ba4d944910df?utm_medium=email&utm_source=govdelivery" rel="ugc" target="_blank">https://events.gcc.teams.microsoft.com/event/7a36d5c4-1edc-4d85-aea0-425cfc865c08@d58addea-5053-4a80-8499-ba4d944910df?utm_medium=email&utm_source=govdelivery

PART TWO: Innovations and Advances in Sickle Cell Disease
Gene Therapies
Thursday, September 25, 2025, 2-3:30 p.m. ET
•Hosted by HHS OMH, this 90-minute webinar will focus on the Centers for Medicare & Medicaid Services (CMS) Cell and Gene Therapy Access Model, which leverages outcomes-based agreements to reduce costs and increase access for eligible individuals enrolled in participating state Medicaid programs.
•This webinar will also include presentations from a state Medicaid director and a SCD Warrior who will share about their journey through gene therapy clinical trials.

Registration link:
10958517-2dd7-4e03-b1d2-a4cb60211fe0@d58addea-5053-4a80-8499-ba4d944910df?utm_medium=email&utm_source=govdelivery" rel="ugc" target="_blank">https://events.gcc.teams.microsoft.com/event/10958517-2dd7-4e03-b1d2-a4cb60211fe0@d58addea-5053-4a80-8499-ba4d944910df?utm_medium=email&utm_source=govdelivery

Please note there are separate registration links for each part of the webinar series.
Registration for one does not automatically register you for the other.

September is Newborn Screening Awareness Month! 👶🏾🌙🧬In California, all babies are screened for hemoglobin diseases short...
09/08/2025

September is Newborn Screening Awareness Month! 👶🏾🌙🧬

In California, all babies are screened for hemoglobin diseases shortly after birth. The screening method also identifies healthy babies with hemoglobin traits, like Sickle Cell Trait. A hemoglobin trait is NOT a disease. It will not change into a disease. It will not go away either. Most babies with a hemoglobin trait do not have any health problems caused by the trait.
The Sickle Cell Disease Foundation is a California state-certified sickle cell trait counseling center. In partnership with the California Department of Public Health, Division of Genetic Disease Screening-Newborn Screening Program, the SCDF provides FREE trait counseling & family testing to parents of infants with sickle cell trait, hemoglobin C trait, & hemoglobin D trait.

Heel Prick Test:
Newborn blood spot screening test for a group of health disorders that aren’t otherwise found at birth.

For more information please contact our NBS Department
NBS Line number: 1(866)954-2229
Or our Foundation office: (909) 743-5226
Info@scdfc.org





Myth: there is a cure for Sickle Cell Fact: there is no universal cure for sickle cell disease but there are curative op...
09/08/2025

Myth: there is a cure for Sickle Cell

Fact: there is no universal cure for sickle cell disease but there are curative options like bone marrow transplant, stem cell transplant and new gene therapies. Again note these are not universal cures but have the ability to cure Sickle Cell Disease.
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Mito: hay una cura para la enfermedad de células falciformes

Hecho: no hay una cura universal para la enfermedad de las células falciformes, pero hay opciones curativas como el trasplante de médula ósea, el trasplante de células madre y las nuevas terapias génicas. Una vez más, tenga en cuenta que estas no son curas universales, sino que tienen la capacidad de curar la enfermedad de células falciformes.

Click on this link to see the approved treatments for Sickle Cell Disease:
https://sicklecellanemianews.com/approved-treatments-for-sickle-cell-disease/


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Join Us This September for National Sickle Cell Awareness MonthSickle cell disease is a lifelong condition that affects ...
09/03/2025

Join Us This September for
National Sickle Cell Awareness Month

Sickle cell disease is a lifelong condition that affects individuals and families every single day. September is National Sickle Cell Awareness Month—a time to shine a light on the strength of the sickle cell community, raise awareness, fund research, and promote better treatments. By donating blood through The Kindest Red, you provide hope and support that lasts far beyond September.

While there is no universal cure, regular blood transfusions are vital for many patients to manage pain, prevent complications, and improve quality of life.

• Why Your Support Matters:1 in 365 African Americans is born with SCD.

• Patients may require up to 100 units of blood each year.

• A diverse donor base is essential—1 in 3 African American donors could be a match for someone living with SCD.

Blood donors who are Black or of African ancestry play a critical role in helping people with sickle cell disease, the most common genetic blood disease in the U.S. People living with sickle cell disease may rely on regular blood transfusions throughout their lives. The blood they receive must be the most compatible match possible, from someone of the same race or similar ethnicity.

Today, there aren’t enough blood donors to meet this urgent need. By donating blood, you can make a difference in the life of a person with sickle cell disease.

What if I have sickle cell trait? By donating blood, you can make a difference in the lives of moms with complicated childbirths, people fighting cancer, accident or trauma victims being raced to emergency rooms, and many more.

Register here:
https://sleevesup.redcrossblood.org/campaign/the-kindest-red-stand-strong-for-sickle-cell-disease-this-september/

For more information, don’t hesitate to get in touch with us:
Info@scdfc.org
www.scdfc.org
(909) 743-5226

Address

3602 Inland Empire Boulevard , C315
Ontario, CA
91764

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 3pm

Telephone

+19097435226

Website

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