08/08/2025
We have been enjoying our last weeks of summer break with a beach trip, Descendants vs Zombies Worlds Collide Tour, and another Blood Therapy appointment.
We so enjoyed our vacation and can’t wait to go back. I got to surprise Isla with a mommy and Isla concert date and it was amazing! Disney never seems to disappoint when it comes to putting on a show.
Isla is doing very well, all of her labs came back great yesterday and her Ferritin (the lab that tests her iron levels for blood therapy) are trending now beautifully!
Scans are set for the 19th and school starts the 20th, so we will be soaking up these last days of break. I’m struggling more than they are with going back to school!
Please keep Isla in your prayers as we anticipate these next scans, after this she will have her 2 year post treatment scans in November and those are a BIG deal!! Her diagnosis of High-Risk Stage 4/Group 4 Embryonal Rhabdomyosarcoma has a 5-year survival rate of about 20-30%. I don’t like thinking about this, at all, but once her 2 years post treatment scans come back good (which I’m putting out there that they will!!) the risk of relapse decreases and at the 5 year mark it raises the long term survival rate to about 85%. We need to get to that 5 year mark, we need to get to the teenage years, adulthood, and old age.
At this point we are celebrating a birthday, an end of treatment anniversary each year, and everything in between! Thank you all for being on this journey with us 💛