Central Florida Pulmonary Group Adult Cystic Fibrosis Center

10/23/2025

Your Cystic Fibrosis team is in Seattle learning the latest and greatest info about CF!

12/21/2024

https://www.cff.org/news/2024-12/fda-approves-new-cftr-modulator

Exciting news!! Stay tuned for updates!!

A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that have not been approved previously for any other CFTR modulator.

12/17/2024

Are you (or someone you know) immunocompromised? This could be genetic, related to chemotherapy, immunosuppressants to treat lupus, rheumatoid arthritis, inflammatory bowel disease, or maybe post transplant….

Hesitating to go to a New Years Eve party due to risk of catching an infection?

Join the virtual party to welcome 2025!!

https://thinkofmeplease.org/immuknownetwork/

09/12/2024

https://www.facebook.com/share/r/ApedxGoBSTLt1V8e/?mibextid=UalRPS

06/23/2024

https://www.businesswire.com/news/home/20240403502200/en/CF-Foundation-Provides-Up-to-8.5M-to-SpliSense-to-Support-a-Clinical-Trial-for-a-Potential-Treatment-for-Splicing-Mutations

The Cystic Fibrosis Foundation is investing up to $8.5 million in additional funds in SpliSense to continue clinical trials for its inhaled antisense

06/14/2024

https://arstechnica.com/science/2024/06/researchers-do-gene-editing-in-lung-stem-cells-target-cystic-fibrosis/

Exciting preliminary research!

Approach relies on lipid capsules like those in the mRNA vaccines.

01/12/2024

https://winknews.com/2024/01/10/swfl-couple-to-paddle-80-miles-across-the-atlantic-for-cystic-fibrosis/

Amazing!! Let’s make CF stand for

In June the couple plans to paddleboard 80 miles across the Atlantic Ocean to raise money and awareness for families with cystic fibrosis.

11/05/2023

Your CF team was in Phoenix for the NACFC meeting getting updates on the latest research in CF!

10/24/2023

Central Florida Pulmonary Group would like to wish all Respiratory Therapists a happy Respiratory Care week! We appreciate you all year round for your dedication and excellent care!!

03/08/2023

https://cysticfibrosisnewstoday.com/news/phage-cocktail-bx004-safe-reduced-p-aeruginosa-cf-trial-data/

Exciting preliminary data!!

BX004, a phage cocktail by BiomX, safely reduced the number of Pseudomonas aeruginosa bacteria in the lungs of CF patients in a small trial.

02/14/2023

The CF Warrior Project Volume 2: Celebrating Our Cystic Fibrosis Community by Andy Lipman is hot off the presses! This first-of-its-kind, inspirational series of memoirs features people who live with the life-changing diagnosis of CF and those who advocate for those who fight the disease. All profits from the book will benefit CF-related charities. Help us raise awareness and fund a cure for this terminal disease. Order today: https://bit.ly/3Hw03zx

11/08/2022

Some people think Dr Layish needs a baseball cap with a full head of hair! 😂