Central Florida Pulmonary Group Adult Cystic Fibrosis Center

10/23/2025

Your Cystic Fibrosis team is in Seattle learning the latest and greatest info about CF!

12/21/2024

https://www.cff.org/news/2024-12/fda-approves-new-cftr-modulator

Exciting news!! Stay tuned for updates!!

A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that have not been approved previously for any other CFTR modulator.

12/17/2024

Are you (or someone you know) immunocompromised? This could be genetic, related to chemotherapy, immunosuppressants to treat lupus, rheumatoid arthritis, inflammatory bowel disease, or maybe post transplant….

Hesitating to go to a New Years Eve party due to risk of catching an infection?

Join the virtual party to welcome 2025!!

https://thinkofmeplease.org/immuknownetwork/

09/12/2024

https://www.facebook.com/share/r/ApedxGoBSTLt1V8e/?mibextid=UalRPS

06/23/2024

https://www.businesswire.com/news/home/20240403502200/en/CF-Foundation-Provides-Up-to-8.5M-to-SpliSense-to-Support-a-Clinical-Trial-for-a-Potential-Treatment-for-Splicing-Mutations

The Cystic Fibrosis Foundation is investing up to $8.5 million in additional funds in SpliSense to continue clinical trials for its inhaled antisense

06/14/2024

https://arstechnica.com/science/2024/06/researchers-do-gene-editing-in-lung-stem-cells-target-cystic-fibrosis/

Exciting preliminary research!

Approach relies on lipid capsules like those in the mRNA vaccines.

01/12/2024

https://winknews.com/2024/01/10/swfl-couple-to-paddle-80-miles-across-the-atlantic-for-cystic-fibrosis/

Amazing!! Let’s make CF stand for

In June the couple plans to paddleboard 80 miles across the Atlantic Ocean to raise money and awareness for families with cystic fibrosis.