03/22/2024
In June 1989, after the birth of my second child, I experienced HELLP syndrome (Hemolysis, Elevated liver enzymes and low platelets). I was then given a blood transfusion due to the low platelet levels.
Around 2006, I began feeling tired all the time, joint pain, abdomen pain, nausea and no desire to eat. This continued for many years and the doctors could not properly diagnose the issue.
Then, in November 2011 my gallbladder was removed and the surgeon advised us of the condition of my liver. My liver showed severe scarring known as cirrhosis. At that point a blood test was taken and Hepatitis C was confirmed. They believe it was transmitted through tainted blood I received in the blood transfusion.
In March 2012 I began Hep C treatment and by September the disease was no longer detected in my blood.
By March 2020 I was experiencing some degree of nausea, lack of appetite, bruises, hair loss, swelling in the legs and feet, fluid build-up in my abdomen and extreme fatigue. Over the next few years I was given treatment for a variety of medical issues including diabetes, hypertension and congestive heart failure. None of these treatments helped.
January 2024, I had to resign from my work-at-home job and in February 2024 we went to Mayo Clinic. After almost 2 weeks and numerous tests, they ruled out all of the previous diagnosis. It was then determined my liver was damaged and we spoke with the transplant specialist regarding possible treatments.
Unfortunately, the medication originally prescribed caused issues with my kidneys so I had to stop taking the liver medication. Due to the swelling in my legs and abdomen, I am not able to walk, however I can transfer pretty well from my wheelchair.
We are going back to Mayo next month to reevaluate the plan of care. Earlier in this process the Doctor talked about a transplant possibly in the fall. Due to the medication issues, however, I believe it will be much sooner.
