SaDona's Kidney Transplant Journey

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SaDona's Kidney Transplant Journey This page details my Polycystic Kidney Disease (PKD) and quest for a living kidney donor.

I will be providing updates on my status, donor information and information on my transplant journey.

26/06/2022

Kidney donation: Life changed for everyone involved
Updated: Apr 5

Photo courtesy of Erin Dupre.
Saving someone’s life does not require a medical degree or a baptism. All it requires is a healthy 18-year-old kidney.

The United States’ shortage of kidney donations is a public health crisis. According to Penn Medicine News, “more than 90,000 patients are waiting for kidney transplants, yet only about 20,000 transplants are performed each year.” Annually, around 5,000 patients die before receiving a kidney transplant.

Having a healthy kidney is vital to life. The kidneys act as chemical filtration systems. Their main functions include removing waste products from the body, balancing the body’s fluids, releasing hormones that regulate blood pressure, producing an active form of Vitamin D that builds strong bones and controlling the production of red blood cells.

If kidneys fail, the body begins to build up excess wastes and fluids, which leads to illness. Kidney failure is unable to be completely cured, but patients who receive dialysis (which removes excess wastes and fluids from your body through treatment) oftentimes can live a long, active life.

However, dialysis is not always recommended or effective for patients. Here lies the need for kidney transplants.

A wonder of the human body is that it can function normally with one kidney. This allows for donors to undergo surgery that removes one of their healthy kidneys and gives it to a matching patient in need. The benefits of a living-donor transplant include reduced wait time, better quality organs and better medical outcomes.

The term “surgery” is daunting for many people, yet the process of donating a kidney is relatively seamless. The preferred method, called laparoscopy, removes the kidney through a small incision near the abdominal wall and includes a short recovery time, shorter hospital stay and few to no post-operative complications. Following the kidney removal, patients may feel itchiness or tenderness until the incision heals and undergo less physical activity. Every recovery rate is different amongst individuals.

According to Erin Dupre, these effects carried no weight in comparison to saving someone’s life.

In 2018, Dupre anonymously donated her kidney at the University of Kentucky’s hospital. Her interest in donating originated on Instagram after she watched 10-year-old Hunter Dale participate in the viral “organic egg challenge” to spread awareness for her grandpa needing a kidney.

Dupre felt compelled toward a living donor transplant. First, she offered to donate to her ex-husband Greg. He gave her the OK to donate to Johnston, Dale's grandfather. From there, she took the first steps toward donation, but her compatibility tests did not align.

After three failed attempts at donating to someone she knew, her conviction remained. Dupre told WKT, “I was like, you know what, no, I'm not off the hook. I still want to do this. Why don't you guys just pick someone for me?"

With that, Dupre became an “altruistic” or “non-directed” donor. She matched with Kentuckian Robin Hinton and proceeded with donating her kidney.

Dupre explained this as being the most beneficial thing she’s done in her life.

Years later, she still feels determined to find donors and for people to understand the benefits that come from this experience.

“I just want college students to know that they are not too young to save a life,” Dupre said. “They can donate and then continue to live a perfectly normal life. And no, you don’t have to stop drinking after donating."

Aside from the priceless benefits of saving a life, kidney donors at the University of Kentucky hospital (and any hospital that pairs with the National Kidney Registry) benefit from the Donor Shield. This involves cost reimbursement, kidney prioritization (in the unlikely event of the donor needing a kidney in the future), legal support and donation insurance. With the Donor Shield, the realistic worries of undergoing surgery affecting donors' everyday lives are taken care of.

Another common worry is the question, “What if my family member needs a kidney and I have already given mine away?” The National Kidney Registry (NKR) brings ease to this through the “kidney voucher” program. With this, a non-directed donor can choose to name a recipient at another NKR hospital to receive a “voucher” for a kidney. The donor can also choose up to five friends and family members who can use that “voucher” should any of them ever need a kidney transplant. By doing this, the donor can potentially many more lives than the one their kidney goes to.

The process of becoming a living donor has been simplified to make it an inviting experience. Dupre described her process of donating a kidney as an “honor.”

It is not only life-changing to the patient but the donor as well. All those close to Dupre saw how becoming a donor changed her life.

Her niece described her life change. “I saw my aunt’s outlook on life completely change. She saw her power to save lives," she said. "This continued even after she donated. Others view her as someone who can help. People have approached her asking for help finding a kidney and to speak on how this experience affected her. Many more lives have been changed than just Hinton, her donor.”

Dupre agreed. “It’s definitely true. I’ve done so many radio shows, TV appearances, podcasts and live speaking engagements about it. Just today, the pilot who picked up my foster puppy asked me to find a kidney for his cousin. It happens all the time," Dupre said.

“I have also seen a huge change in my aunt’s confidence through this experience," Dupre's niece said. "Selflessness is a huge part of her character and I think she realized how powerful that aspect of her truly is. This confidence has made her happier ever since.”

Kidney donation inspires all kinds of life-change, from literally saving a life to the mental benefits of self-sacrifice.

If you feel compelled towards this life change in any way or would like to discuss living donor transplants, please contact the University of Kentucky Living Donor Transplant Team by calling (859) 323-2467. To start the initial conversation, Dupre also would love to talk. You can contact her at (502) 655-0228.

26/05/2022

Just a quick update. Went to UK Transplant Center for my yearly evaluation on Monday. They renewed my listing on their renal transplant list for another year.
I had an appointment with my nephrologist today. My GFR is now 10, down from 12. That’s not what I wanted to hear, but it’s not totally unexpected. Dialysis is not far off. I ask him to send a referral to St.Louis University transplant Center. That will make 3 centers I’m listed at, UK, Vanderbilt, & soon SLU. Hopefully one of them will find a kidney for me soon.
On June 21st, I’m having my final surgery for my fistula for dialysis access. Please continue to pray that a living donor comes forward or cadaver kidney becomes available before I have to start dialysis.
If you or someone you know is interested in giving the gift of life, you can contact one of the 3 renal transplant centers I’m listed at. You can either call them or go on their websites to get tested. All expenses are covered by my insurance and the testing process is strictly confidential.
🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏

Such a meaningful & respectful ceremony.
10/05/2022

Such a meaningful & respectful ceremony.

Team members and family lined the halls last week for an Honor Walk which is a ceremonial event to commemorate a patient prior to organ donation. We continue to pray for peace and comfort for the family.

Give the gift of life and register to be an organ donor: https://apps.ilsos.gov/organdonorregister/

Please consider being an organ donor. It’s the greatest gift you can give.
19/04/2022

Please consider being an organ donor. It’s the greatest gift you can give.

15/04/2022
I didn’t realize April is National Donate Life Month. Please share and consider giving the gift of life.
11/04/2022

I didn’t realize April is National Donate Life Month. Please share and consider giving the gift of life.

Today is World Kidney Day
10/03/2022

Today is World Kidney Day

10/03/2022

Several people have asked who to call if they are interested in donating a kidney.
Here's the info:

For University of KY Renal Transplant Center call 859-323-2467. You can read about their program at UKhealthcare.uky.edu and go to renal transplant.

For Vanderbilt University Renal Transplant Center call 615-936-0695. You can read about their program at vanderbilthealth.com/program/living-kidney-donor-transplant.

Thank you for all the prayers & support. I'm overwhelmed by all the love and kindness. Please share this info with your friends.
Thank you!

09/03/2022

Had a echocardiogram and chemical stress test today. It’s a yearly requirement to stay active on kidney transplant lists.
My kidneys may suck, but my heart is strong and healthy! 😜

07/03/2022

From my cousin Leigh Ann Leigh Ann Abernathy Kristiansen

SaDona Gray is one of the most fun, crazy family members I have! Everyone adores her! She's my Dad's cousin and an incredibly giving person. She's a nurse in Paducah, KY. Due to adoption, she's not a blood relative. We're trying to get the word out about her search for a living donor and spread her story. It's a story that so many share. Please share to raise awareness and hopefully help find the lifesaving kidneys that she and so many others are in search for. See the details of her story below.

Most of you know that I am not openly one to share my private life; perhaps because it is already openly known to the pu...
06/03/2022

Most of you know that I am not openly one to share my private life; perhaps because it is already openly known to the public. 🤪

For those who do not know, I was born with Polycystic Kidney Disease (PKD). I inherited this from my father, who began dialysis in his early ‘40s. PKD took his life at age 57. Thus far, my kidney function has been stable, however, at this point I am nearing the need for dialysis.

I have been approved for transplant and am on waiting lists at Vanderbilt and University of Kentucky, yet the average transplant wait is 4 – 8 years. For that reason, I am also in search of a living donor. A living donor could greatly improve my survival rate.

Every person born with two normal kidneys has four times the function they need. The average kidney donor is in the hospital for 2 – 3 days and recovers for
2 – 3 weeks at recipient’s insurance expense. Although becoming a donor is not the only way to help.

You can help me fight this battle with PKD in several ways:

1. Spread the word to your family and friends who might know someone who is willing to serve as a donor. And please share this message.

2. Prayers and positive support and always appreciated and welcomed.

3. Learn more about the donation process from the National Kidney Foundation at www.kidney.org/transplantation/livingdonors

I would never make this request lightly, but I do wish to extend my time on this Earth with family and friends and in my career. If you are interested in learning more about assisting me directly, go to https://www.vanderbilthealth.com/program/living-kidney-donor-transplant

Thank you so much for taking the time to read this and sharing it with your friends and family.

Sincerely,
SaDona Gray

It is against the law to buy or sell organs, including kidneys. If someone contacts you to buy or sell a kidney, please disregard the request.

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