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Dystrophin is a vital protein that helps muscles stay strong and protected as they contract and relax.For people with Du...
12/10/2025

Dystrophin is a vital protein that helps muscles stay strong and protected as they contract and relax.

For people with Duchenne muscular dystrophy (DMD), a genetic mutation prevents the body from making usable dystrophin. Without it, muscles become more vulnerable to damage and grow progressively weaker over time.

Because the heart is a muscle and muscles also help support the lungs, the impact of Duchenne goes beyond mobility, it can lead to serious health challenges as the condition progresses.

Learn more about DMD here: https://ow.ly/BoX250XGNQn

We’re looking forward to connecting with the Duchenne community in Phoenix at the upcoming CureDuchenne Community Dinner...
12/05/2025

We’re looking forward to connecting with the Duchenne community in Phoenix at the upcoming CureDuchenne Community Dinner! 💙

This special evening brings together families, caregivers, and advocates to share experiences, exchange knowledge, and strengthen support for those living with Duchenne muscular dystrophy.

📅 Date: December 6, 2025
🕕 Time: 6:00 PM – 9:00 PM
📍 Location: Phoenix, AZ

Reserve your seat and be part of the conversation: https://ow.ly/tGe850XCH9K

Each person’s journey deserves to be seen, supported, and valued.On this International Day of Persons with Disabilities,...
12/03/2025

Each person’s journey deserves to be seen, supported, and valued.

On this International Day of Persons with Disabilities, we celebrate the strength and resilience of individuals living with disabilities and reaffirm our commitment to advancing access, inclusion, and innovation in rare disease care.

At NS Pharma, we believe progress means ensuring every person has the opportunity to thrive. 💙

We’re proud to sponsor Duchenne Today: Inside the Experience - a community symposium and reception hosted by The Duchenn...
11/28/2025

We’re proud to sponsor Duchenne Today: Inside the Experience - a community symposium and reception hosted by The Duchenne Program at UMass Chan Medical School. 💙

This year’s symposium unites families, clinicians, and researchers for meaningful conversations about life with Duchenne muscular dystrophy; highlighting the real experiences, challenges, and progress shaping care today.

📅 Date: Tuesday, December 2, 2025
📍 Location: The Beechwood Hotel, 363 Plantation St, Worcester, MA

Through discussions on adulthood, mental health, unmet needs, and access to care, the symposium aims to deepen understanding and inspire meaningful progress for those living with Duchenne.

Finding information on effective management options for Duchenne can be difficult, but we're here to make this easier fo...
11/24/2025

Finding information on effective management options for Duchenne can be difficult, but we're here to make this easier for you and your loved ones, so you can make the best decisions.

Typical management strategies include:

Steroids – to help limit inflammation
Physical therapy – to address orthopedic issues
Heart & lung medications – to support vital muscle function

In addition, gene therapy and exon-skipping therapies are currently the only known ways to help the body increase levels of functional dystrophin, slowing the progression of DMD.

Learn more about DMD here: https://ow.ly/lwyr50XwNKO

We’re thrilled to invite Indiana families living with Duchenne muscular dystrophy to a special gathering — the Best Frie...
11/21/2025

We’re thrilled to invite Indiana families living with Duchenne muscular dystrophy to a special gathering — the Best Friendsgiving Ever!

📅 Saturday, November 22, 2025
🕓 4:00 PM – 7:00 PM
📍 Local 416 Firefighters Union Hall, 748 Massachusetts Ave., Indianapolis, IN

Join us for an evening full of gratitude, community, and connection, complete with delicious food, fun activities, and a chance for families, caregivers, and friends to share together. Each person living with Duchenne (and their families) will also receive a special Advent calendar! Travel scholarships are available so no family misses out.

Thank you as always to Laura McLinn and Best Day Ever for organizing this amazing event!

👉 Register today: https://www.bestdayeverfoundation.com/events

Today we celebrate International Children’s Day - a day to recognize the strength, courage, and limitless potential of c...
11/20/2025

Today we celebrate International Children’s Day - a day to recognize the strength, courage, and limitless potential of children everywhere. 💙

At NS Pharma, our work is driven by a shared commitment to improving the lives of children and families affected by rare diseases. Every breakthrough, every conversation, and every step forward begins with hope, and with the children who inspire us every day.

We’re proud to sponsor Austin’s Hope and their mission to bring hope and support to families impacted by Duchenne Muscul...
11/18/2025

We’re proud to sponsor Austin’s Hope and their mission to bring hope and support to families impacted by Duchenne Muscular Dystrophy 💙

The Night of Hope Gala raises funds to help families living with Duchenne through mobility equipment, home modifications, and acts of kindness that improve everyday life.

📅 Date: Saturday, November 22, 2025
📍 Location: Retreat 21, 11433 Industrial Parkway, Marysville, OH 43040

Enjoy an unforgettable evening of cocktails, hors d’oeuvres, and live music as we come together to support the Duchenne community.

Learn more and get involved at: austinshope.org

We’re excited to attend the CureDuchenne Workshop in Boston, MA! 💙This event brings together families, clinicians, and r...
11/14/2025

We’re excited to attend the CureDuchenne Workshop in Boston, MA! 💙

This event brings together families, clinicians, and researchers dedicated to improving outcomes for those living with Duchenne muscular dystrophy. It’s a meaningful opportunity to learn from experts, share experiences, and connect with the Duchenne community.

📅 Date: Saturday, November 15, 2025
🕘 Time: 8:00 AM – 4:00 PM
📍 Location: The Westin Waltham, 70 3rd Ave, Waltham, MA 02451

👉 Learn more and register: https://cureduchenne.org/event/workshop-boston-ma/

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