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We’re excited to join our friends at the Jett Foundation for their Family Workshop in Rochester!This workshop is designe...
10/16/2025

We’re excited to join our friends at the Jett Foundation for their Family Workshop in Rochester!

This workshop is designed to empower and support families impacted by Duchenne muscular dystrophy. It’s a wonderful opportunity to learn from experts, connect with other families, and access important resources.

📅 Date: Saturday, October 18, 2025
🕙 Time: 10:00 AM – 4:30 PM
📍 Location: DoubleTree by Hilton Hotel Rochester, NY

We look forward to seeing you there!

👉 Learn more and register: https://ow.ly/wn5250XbIqj

Good nutrition is essential to overall health - and for those living with Duchenne, it plays an especially important rol...
10/15/2025

Good nutrition is essential to overall health - and for those living with Duchenne, it plays an especially important role! 💚

We love seeing our brand ambassador, Jordan, take such an active role in the kitchen and in his health.

“I love cooking for my family. I grow some of my own vegetables and herbs in an indoor hydroponics garden and try hard to follow dietary recommendations for Duchenne. One example is I use whole grain corn tortillas for tacos instead of enriched white flour ones because they’re healthier.” 🌮

We're officially inspired! Keep up the great work, Jordan! 🌱

Check out Jordan's inspiring story: https://ow.ly/G3gV50XbIeg

Last week, at the 2025 World Muscle Society Congress, the National Center of Neurology and Psychiatry (NCNP) presented n...
10/14/2025

Last week, at the 2025 World Muscle Society Congress, the National Center of Neurology and Psychiatry (NCNP) presented new 3.5-year clinical data for brogidirsen (NS-089/NCNP-02) showing encouraging long-term results for the treatment of Duchenne muscular dystrophy (DMD)!

The findings demonstrated:
✅ Sustained motor function in participants who remained ambulant after long-term treatment
✅ Robust dystrophin expression and exon 44 skipping efficiency
✅ No serious or severe adverse events reported after 3.5 years

“These long-term motor function data suggest the potential for brogidirsen to slow disease progression in DMD patients amenable to exon 44 skipping,” said Yukiteru Sugiyama, Ph.D., President, NS Pharma. “We are proud to offer hope to families and continue to demonstrate our commitment to the DMD community.”

This is another exciting step forward for the rare disease community and we're proud to be contributing to advancing innovative treatments for Duchenne!

🔗 Read the full press release: https://ow.ly/65Ew50Xb5pA

Our team had a wonderful time in Vienna last week for  !It’s always exciting to connect with the larger global scientifi...
10/13/2025

Our team had a wonderful time in Vienna last week for !

It’s always exciting to connect with the larger global scientific community and learn about the latest advances within gene and cell therapy - and this year was no exception!

It was an honor to present our latest clinical research on the promising potential of NS-089/NCNP-02 (Brogidirsen). If you missed the presentation by the National Center of Neurology and Psychiatry, you can view the poster here: https://ow.ly/eUbR50XatcC

World Mental Health Day is a reminder that wellness isn’t just about taking care of ourselves, it’s about taking care of...
10/10/2025

World Mental Health Day is a reminder that wellness isn’t just about taking care of ourselves, it’s about taking care of each other. 🌍💚

Today, we’re proud to highlight the words of our Associate Director of HR, Jenny Supple, who reminds us that our people are the backbone of everything we do. Jenny’s passion for supporting the team reflects our belief that when we care for one another, we build the strength and resilience to better serve the patients and families who count on us.

How do you and your team prioritize mental health and wellness?✨

This October, in honor of Breast Cancer Awareness Month, we’re proud to support efforts that bring communities together ...
10/09/2025

This October, in honor of Breast Cancer Awareness Month, we’re proud to support efforts that bring communities together in the fight against cancer. 🎀

Our colleague Victoria Ramirez, a survivor and volunteer with the American Cancer Society, will be joining the Making Strides Against Breast Cancer walk on Saturday, October 25 at the MetLife Stadium.

If you'd like to join Victoria or find a walk near you, visit: https://ow.ly/Gjkz50X8rI3

We’re proud to partner with the Jett Foundation in our shared mission to empower people and families living with Duchenn...
10/09/2025

We’re proud to partner with the Jett Foundation in our shared mission to empower people and families living with Duchenne muscular dystrophy. 💙

From Camp Promise to local workshops, Jett Foundation’s programs bring the Duchenne community together - creating spaces for connection, growth, and support. We’re honored to be part of that journey.

Learn more about the impact of our partnership and our vision for the Duchenne community in their latest article!

Read the article: https://lnkd.in/eixrBeFp

We're in Vienna, Austria for WMS 2025!The 30th International Annual Congress of the World Muscle Society brings together...
10/07/2025

We're in Vienna, Austria for WMS 2025!

The 30th International Annual Congress of the World Muscle Society brings together scientists, clinicians, and industry leaders from over 70 countries to discuss all aspects of neuromuscular physiology and diseases, from scientific innovation to patient care.

We’re excited to be sharing three-and-a-half-year safety and efficacy data from the Japan NS-089/NCNP-02 (Brogidirsen) open-label extension clinical trials, offering new insights into potential therapies for Duchenne muscular dystrophy.

Don't miss the poster presentation (658P) by the National Center of Neurology and Psychiatry (NCNP) in the exhibit hall on October 8.

We look forward to sharing this new data with the community and hope to see you there!

Adults living with eosinophilic granulomatosis with polyangiitis ( ) may be eligible to take part in a Phase 2 clinical ...
10/03/2025

Adults living with eosinophilic granulomatosis with polyangiitis ( ) may be eligible to take part in a Phase 2 clinical trial of NS-229, an investigational JAK1 inhibitor.

Learn more and explore participation: https://ow.ly/hXAj50X65Tr

This year’s Kindness Over Muscular Dystrophy Annual Benefit was nothing short of inspiring!From local bites and brews to...
10/01/2025

This year’s Kindness Over Muscular Dystrophy Annual Benefit was nothing short of inspiring!

From local bites and brews to exciting auctions and raffles, the energy in the room was matched only by the generosity of those supporting the Duchenne and Becker community. NS Pharma is proud to stand alongside KOMD, and we’re grateful to all who made this year’s event such a success. ✨

Here’s to kindness, community, and continuing the fight to end Duchenne!

When should we start therapy to increase our child’s dystrophin?🔍Starting therapy early can help slow the progression of...
10/01/2025

When should we start therapy to increase our child’s dystrophin?🔍

Starting therapy early can help slow the progression of Duchenne, as it may have the greatest effect before muscles weaken. Even low dystrophin levels (0.5–5% of normal) can make a difference.

However, dystrophin-increasing therapy can be started at any age in some patients, even years after diagnosis. 🧬

Learn more: https://ow.ly/msQY50X4W2U

Join us in Ontario this weekend for Project Alive’s Hunter Syndrome Friends and Family Gathering!✨Let's come together to...
09/29/2025

Join us in Ontario this weekend for Project Alive’s Hunter Syndrome Friends and Family Gathering!✨

Let's come together to connect and celebrate the county of San Bernardino officially recognizing the 3rd week of October as Hunter Syndrome Awareness Week!

📍 Big Al’s, Ontario, CA
📅 Saturday, October 4, 2025 | 12:30 PM – 2:30 PM

RSVP here: https://ow.ly/kel150X3Ky6

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