Willow Strong

11/18/2023

My little teeny tiny. Please take time to read this post for my girl. Thank you all. Also please share! Thank you so much❣️❤️❤️❤️

Willow is having a rough night. Tbh a rough almost 2 months. She has an MRI at Cincinnati Children's on the 28th of November. Hopefully we will find out the results quickly and find out if a 3rd brain surgery is necessary. We'd appreciate any donations and please do them through Facebook pay through messenger. Or you could mail it to us. Just pm me and I'll give you our address. Thank you all for being so good to our girl. It has been a rough road with Joe being laid off and me being ill.

11/18/2023

Willow is having a rough night. Tbh a rough almost 2 months. She has an MRI at Cincinnati Children's on the 28th of November. Hopefully we will find out the results quickly and find out if a 3rd brain surgery is necessary. We'd appreciate any donations and please do them through Facebook pay through messenger. Or you could mail it to us. Just pm me and I'll give you our address. Thank you all for being so good to our girl. It has been a rough road with Joe being laid off and me being ill.

11/14/2023

Please share! Also any donations are super appreciated and thanks in advance. Also we feel more comfortable using fb pay. You can do it easily and send money faster than gofundme. Willow has been in so much pain lately. It's worse than ever. I'm up with her now at 2:15 a.m.

Meet Willow. Some of our friends call her Wee Willow, because her illnesses have made weight gain a struggl… Kayla Paige Goins needs your support for Willow

11/14/2023

Willow had been doing really well for awhile..however now she's the worst I think it's ever been. She screams and holds her back of her head and says my head my neck it burns. Now she's barely eating. Also she dumps or hides her food. She's barely sleeping because she's in so much pain. She has an MRI on the 28th. of this month at Cincinnati Childrens hospital. They've talked about brain surgery again but I hope not.
Joe has been laid off at the worst possible time, so we are struggling pretty bad. Any donations would be so appreciated.

Meet Willow. Some of our friends call her Wee Willow, because her illnesses have made weight gain a struggl… Kayla Paige Goins needs your support for Willow

02/06/2023

We have several trips coming up to go to Ohio in the next month. It is for both Raelyn and Willow. Raelyn has a sleep study to prove she has sleep apnea. Willow has a swallow study since she is throwing up so much and not eating. Willow also has a sleep study again even though she does have sleep apnea related to chiari. She also has to see the neurologist for the seizures. Then also once again the neurosurgeon. We need as much help as we can possibly get, we appreciate your blessings, good vibes, prayers and donations. Thank you my Facebook family!

Meet Willow. Some of our friends call her Wee Willow, because her illnesses have made weight gain a struggle for… Kayla Lawson needs your support for Willow

11/24/2022

Willow started breaking out with hand foot and mouth disease yesterday evening. I hope this doesn't last long and she doesn't have any more fevers.

11/24/2022

Happy Thanksgiving from all of our family to yours!

11/23/2022

An update on Willow. We have had a rough week, she never got the test or seen at Childrens because she had a low grade fever. I drove us home which took much longer since she cried wo mich I kept stopping to hold her. By the time we were settled and ready for bed I felt her forehead and she was burning up. I checked her temp 7 or 8 times because I couldn't believe what I was seeing. 106.7. I got her to take motrin and put ice cold washcloths all over her body. She had a seizure. I took her to UK pediatric ER. They put us on a hallway stretcher for about a half hour. Her fever was mostly gone so they just discharged us. We got back home around 4 in the morning yesterday morning. I'm watching super closely but she's not running any fevers since.

11/19/2022

We are getting ready once again to go to Cincinnati Children's Hospital Medical Center . We leave tomorrow and appointments all day Monday. On a GREAT note, we have been accepted and will be attending the University of Iowa to see Dr. Brian on December 28th. He is world renowned in pediatric chiari malformation. Also he worked at the Chiari Institute for years too. We are so excited this is finally happening, and maybe we will get some answers and ways to make her life less painful and more manageable. I've been trying to get her in for almost 8 months now, so I can barely contain my excitement.

Meet Willow. Some of our friends call her Wee Willow, because her illnesses have made weight gain a struggle for… Kayla Lawson needs your support for Willow

11/06/2022

All the way to West Virginia to meet some of the nicest, kindest people of our lives. We are beyond blessed to have them in our lives. Thank you all so much for caring about my bug!💓💗

11/04/2022

These people are the kindest people I believe I've ever met. They are working so hard for a child they've never even met, until today. God bless them all and thank you for bringing them into our lives❣️🥰🙏💖💗

11/03/2022

We are on our way to Bluefield,West Virginia now.

10/31/2022

Happy Halloween everyone! Willow's fundraiser is Friday and Saturday this week. Please don't forget to share and make a donation if at all possible. This will help us with all our trips to Cincinnati Children's Hospital Medical Center and hopefully to Iowa to the pediatric chiari neurosurgeon specialist.

https://gofund.me/c049ece9

10/28/2022

We're nearing our trip to Bluefield, West Virginia. I can't wait for this fundraiser. We need it so bad. Thank you Anna Snyder, Lynda Russo, and Randy Hart. Your name is so fitting! You are our angels here on earth. We appreciate everyone for all your shares, donations, and prayers for my Willow Bug!

https://gofund.me/c049ece9

10/25/2022

We leave for our fundraiser next Thursday, November 3rd. We need to raise the funds for the room, gas, and food while we are there. This is a big deal, local news will report on Willow, and local businesses will buy and other kinds people who care to help our Wee Willow out. It's an honor to have been selected honestly. Please share and if at all possible donate. We need to raise around $500 dollars to make this trip. We appreciate any help possible. Thank you all for following and caring about my little bug! You all are the best🥰💖

https://gofund.me/c049ece9

10/24/2022

We are getting ready to go for the full allergy test. Wish us luck and prayers. Also in a couple weeks we will be traveling to Virginia to do a fundraiser that will hopefully help us get to the chiari specialist in Iowa. Ironically we need funds to get to the fundraiser of course. Even with Daddy working all the time, we are scraping by. Any donation isn't too small, thank you! And I have updated her gofundme page as well. Thank you all!

https://gofund.me/c049ece9

10/21/2022

Happy 3rd. Birthday Willow! You are my superhero! You amaze me every single day. You are the bravest person I know, and I love you more than all the stars in the galaxy!