Avery’s Army

Avery’s Army Welcome to Avery’s page where you can follow our journey with Morquio Syndrome!

04/30/2026

Last year at this time, Avery couldn’t do this by herself at the park. I have always had to stay close by to help push her up the steps. This was the first time in her life that I was able to go to the park, sit, and watch her play and just be a kid. You can see how proud she is when she looks over at me. All of her hard work after surgery is paying off.
I may have shed a tear or two. 🥹

The plan for the future: repeat X-rays in September of her legs. If Dr. Mackenzie is pleased with her results, we will fly out for the removal of the hardware that was placed. We plan to follow up with neurosurgery at that time to check her neck with X-rays as well.

The fun run/walk is June 6th! Please register and join us for the fun. We would love to see Nevada decked out in purple. 💜

‼️ Mark your calendars!! ‼️Saturday, June 6th at 9amThe lovely owners of Bricktown Bakery in Nevada, IA are supporting A...
04/08/2026

‼️ Mark your calendars!! ‼️
Saturday, June 6th at 9am

The lovely owners of Bricktown Bakery in Nevada, IA are supporting Avery and Harper. Harper has MPS IIIA and Avery has MPS IVA. Come for a fun run, laughs, and of course….the best donuts in the world. 🤤🤤 Not kidding.

We would love to see everyone’s faces 🫶🏻💜

11/11/2025

We are blown away by Avery’s progress! She has been working on walking again and gaining strength these last few weeks! She’s been juggling physical therapy and starting school again. We are so happy she’s back with her friends. 🩷She also may or may not be annoyed with me in this video…you be the judge. 🤣

We have lift off people!! This girl never ceases to amaze me. 😭🩷
10/26/2025

We have lift off people!! This girl never ceases to amaze me. 😭🩷

Cast off ✔️ Pants ✔️ Natural grind ✔️ Sitting upright to watch TV ✔️ Next up, physical therapy on Friday. 👏🏻
10/22/2025

Cast off ✔️
Pants ✔️
Natural grind ✔️
Sitting upright to watch TV ✔️

Next up, physical therapy on Friday. 👏🏻

09/28/2025

Avery wanted to give everyone a video update on how she’s doing! She’s loving all the gifts and crafts from her classmates and friends! Cast is set to come off October 22nd…not like she’s counting down or anything. 😆

We are so happy to be home!
09/15/2025

We are so happy to be home!

Ice cream for the win! 💛
09/12/2025

Ice cream for the win! 💛

09/11/2025

Avery had a decent night of sleep! She is comfortable and resting. When she’s awake she’s demanding foot rubs and sugar toast. Glad to have our spunky girl on the mend of this long road of recovery! 💜

09/10/2025

He just came out and said Avery’s surgery could not have gone better. She is getting some nerve blocks to help with pain and her cast on in the OR. We are hopeful to see her in the next hour and a half. 💜

09/10/2025

Halfway through update. She is doing well! Dr. Mackenzie came out to talk and just let us know he does think she will need that shelf built in her hips. By doing this, it gives her femoral head more coverage and help her later in life. This means she will need the cast. She requested rainbow earlier in the week, so rainbow she gets! Thank you everyone for your continued prayers.

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Parkersburg, IA
50665

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