Ray of Hope

Ray of Hope Rayna is a two year old little girl who was diagnosed with B-Cell Acute Lymphoblastic Lymphoma on De

Rayna had her two month check up since her last appointment in Pitt. Numbers still look great. She has impressed her doc...
09/17/2024

Rayna had her two month check up since her last appointment in Pitt. Numbers still look great. She has impressed her doctors with her behavior and learning. Saw some construction on the hospital as well. We will continue every two months until a year off treatment and expand them farther apart. Mama still gets anxious going to Pittsburgh because life changes fast. She also will be the big five tomorrow. Rayna also still absolutely hates the finger poke.

Three months off treatment and officially off her antibotic! Numbers are amazing per her doctor. Follow up with neuro to...
06/04/2024

Three months off treatment and officially off her antibotic! Numbers are amazing per her doctor. Follow up with neuro to be scheduled.

05/14/2024

Rayna had her monthly blood work today! I somehow managed to not take any pictures. But other than crying. She did amazing. Her blood work looks good. She has about another month on her antibiotic. But she looks good.

What a very busy day in Pitt. Rayna started at oncology and ended at dental. She is doing amazing. We discussed some iss...
04/17/2024

What a very busy day in Pitt. Rayna started at oncology and ended at dental. She is doing amazing. We discussed some issues and everything looks good in her blood work. Teeth may not of gotten clean but the dentist is going to work on getting her to be calm. She did let them look in her mouth with no tears which is a huge step! Next month we go to oncology and then the eye. We are also getting in with Derm. Still so many appointments to add and go. Itโ€™s crazy Rayna has been off treatment for two months. She got to be a kid this weekend and go dirty. One day at a time.

03/19/2024
Littles Roo tonight you take your last dose of oral chemo. Next step is to ring the bell on the 19!โค๏ธ๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰๐Ÿ’š๐Ÿ’›
03/01/2024

Littles Roo tonight you take your last dose of oral chemo. Next step is to ring the bell on the 19!โค๏ธ๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰๐Ÿ’š๐Ÿ’›

Roo goes to Pitt tomorrow. Prayer for her and prayer for her liver numbers to be improved. Counting down until March 1!!
02/20/2024

Roo goes to Pitt tomorrow. Prayer for her and prayer for her liver numbers to be improved. Counting down until March 1!!

36 more days of oral chemo at home! We see her main oncologist next month. It has been over a year since we have seen he...
01/25/2024

36 more days of oral chemo at home! We see her main oncologist next month. It has been over a year since we have seen her. Steroids have been hectic. Mama is ready for them to be over. But this result. Final spinal went well!

LTM day 1 Cycle 7. What a day. Mommy had one breakdown over liver labs. But talked to her doctor immediately after her l...
01/24/2024

LTM day 1 Cycle 7. What a day. Mommy had one breakdown over liver labs. But talked to her doctor immediately after her lp and got a great peace of mind. Got her results from her spinal fluid right before her time was up and no immature cells were seen!! We also didnโ€™t up her chemo as even we are slightly higher than were we need to be, her ANC is coming down like it should. 38 days until Rayna will take her last oral chemo pill. Rayna travels back to Pittsburgh Feb 20. The prayers are doing amazingโค๏ธ

Tomorrow is this girls start of her last cycle in LTM! Please send all the positive thoughts and prayers for smooth sail...
01/22/2024

Tomorrow is this girls start of her last cycle in LTM! Please send all the positive thoughts and prayers for smooth sailing. She starts steroids also tomorrow which is always an adventure.

Today was day 57 of cycle 6. Raynas ANC is decreasing which meant we didnโ€™t uo her chemo. Merry Christmas to us!!! Why? ...
12/28/2023

Today was day 57 of cycle 6. Raynas ANC is decreasing which meant we didnโ€™t uo her chemo. Merry Christmas to us!!! Why? Because the uppage would be where she plummeted and got put on a chemo hold. we are hoping it continues to trend downward. We start cycle 7 on Jan 23. This will be our last LP. Keep praying for Rayna as life is stressful and cancer is stressful! We may be counting down the days until EOT. But we continue to worry.

Address

Patton, PA

Telephone

+18149150436

Website

Alerts

Be the first to know and let us send you an email when Ray of Hope posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share