Seize the Bag: Life After Colostomy

Seize the Bag: Life After Colostomy Thoughts on living with a colonostomy, resources and recommendations for supplies. Author also suffers from fibromyalgia, COPD, sleep apnea, and arthritis.

Sharing resources and equipment recommendations for all these conditions.

09/27/2025

But wait there’s more… my latest development is what I’m calling selective lactose intolerance. I can drink all the chocolate milk I want, eat bags of baby bels and eat all the queso and chips I can hold; but a small blizzard from DQ and my bag fills up like a hot air balloon! ?????

09/25/2025

I try not to complain too much. I know there are those with far more to deal with than what I face. I have my days, though. I just feel like I’m constantly trying to catch up and I can’t. My colon was abscesses and burst. Sepsis set in and they did emergency surgery to remove half my colon and give me a stoma. In less than a week they moved me from ICU to a specialty hospital, then a week later into rehab for physical therapy. In the specialty hospital and the rehab, they were only concerned with getting me walking again, no medical care. While in rehab, my kidneys failed and they sent me for surgery for a permanent catheter. That failed do they took it out and never gave me another catheter. They gave me meds when I got home that helped my kidneys work again and my bladder empty on its own. They kept me in rehab for two months and I was too sick to do the physical therapy so they sent me home. I was still sick so even home healthcare physical therapy was too much. A month after being released from everything, I was back in the hospital for another emergency surgery for saddleback pulmonary embolisms. They released me after 3 days in ICU. I just don’t feel like my medical needs were taken care of before passing me off to the next level down or sending me home. So now I’m home-it’s been two years, and I’m still sick and I still have no relief from the arthritis pain and I still can’t walk. I’m sorry to be a whiney butt. I’m in a lot of pain, nauseated, and I can’t see any relief on the horizon.

Another day of planning way more than I can do. Another day of frustration. Grump.
09/25/2025

Another day of planning way more than I can do. Another day of frustration. Grump.

09/22/2025

While in rehab recovering from the surgery to remove half my colon, I was given lots of advice from the nurses. Some of it was good advice, but some was more like an old wives’ tale.
They told me I could no longer drink coffee because it would aggravate my stoma. I still have my two cups every morning and have had no problems. I think each ostomy patient has different needs and you have to see how your body reacts to specific food or drinks and go from there.

09/21/2025

I didn’t accomplish a whole lot today. But I did get a new pillow thing that fits on the footrest of my recliner. It helps take the pressure off my knees. Got my new adjustable bed. Still rearranging my room. Hope to sleep in there tomorrow night.

09/19/2025

G’day Ostomates!
Have a great weekend!

09/15/2025

I can honestly say that my current condition (immobile and wearing an ostomy bag) has made me a more positive thinking person. I don’t get sad about the whining of friends and family. I do fight the urge to scream at them “Seriously! I ride around on a scooter all day with a sack of crap attached to my abdomen”. But then I also have awesome moments when I remember how blessed I am to be alive.

09/13/2025

One of the best things to come from all this is that I now have a primary physician who comes to my home once a month. She handles all my prescriptions and I can text her anytime with questions or concerns. She orders lab work as needed and the lab nurse comes to my home as well. This is all covered by Medicare. My copay is $30.

09/13/2025

Just realized I forgot to mention weeping edema. As the result of several surgeries, my lymphatic system was compromised so now fluid builds up in my legs and then “weeps” out leaving my skin on my legs scaly. I spend two hours a day with my legs in a compression pump boot to help force the fluid out.

09/13/2025

I’ve been a guinea pig for doctors and pain management professionals. They have tried all sorts of pills, exercises, and devices to get me pain free and walking again.

Still a work in progress, but I think we may have hit on a winning combination: Lyrica twice a day, Tramadol once a day, each followed by Tylenol time released arthritis strength.

Favorite pants. Neer from Amazon. I have them in every color they make! Comfortable, high waist, plenty of room to conce...
09/12/2025

Favorite pants. Neer from Amazon. I have them in every color they make! Comfortable, high waist, plenty of room to conceal the ostomy bag.

My two favorite things that help with arthritis pain and mobility. The bamboo knee sleeve is from onecompression.com. Th...
09/12/2025

My two favorite things that help with arthritis pain and mobility. The bamboo knee sleeve is from onecompression.com. The stand assist bar is from Amazon.

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Pensacola, FL

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