Scarring Alopecia Foundation - SAF

12/21/2025

Scarring alopecia affects thousands, yet too many patients are misdiagnosed, unheard, or unsupported. We’re racing to raise $30,000 by December 31 to fund research, education, and patient resources in the year ahead. Your gift today helps turn isolation into hope.

Give before the year ends. scarringalopecia.org

12/17/2025

Our focus in 2026 is a prevalence study which more accurately reflects prevalence - and not the common issue of mis-diagnosis that we hear from our patient base. Sadly, there are so many patients treated by multiple physicians until they receive an accurate diagnosis. Please help us accomplish this goal and use the data to spur research.

12/10/2025

A big CONGRATULATIONS to Derek Maas, Archie Spindler, Isabella Zappi, Anna L. Brinks, Carli D. Needle, Caitlin A. Kearney, Jean Pickford, Itisha S. Jefferson, Morinola Shobajo, Dr. Maryanne M. Senna, Dr. Jerry Shapiro, MD, Dr. Kristen I. Lo Sicco, MD for their poster acceptance at the American Academy of Dermatology meeting in March!

12/05/2025

11/27/2025

This is the first of journal publications based on the results of CAPAIR study. A thousand thanks to the survey participants and the UCLA team. Publications are a great way to increase our visibility for future clinical trials!

11/23/2025

11/21/2025

Please visit Scarring Alopecia Foundation (https://scarringalopecia.org/). We are a patient funded organization.

11/16/2025

We are excited to share with you our accomplishments of 2025 and goals for 2026! Stay tuned!

11/09/2025

There are so many sub-types of scarring alopecia. Dissecting Cellulitis is less commonly known, and primarily impacts African-American men. Research associate Keyarah Grullon wrote this medical article review:

Dissecting cellulitis of the scalp (DCS) is a chronic inflammatory disorder characterized by painful nodules, draining sinus tracts, and scarring alopecia. Research on treatment is limited, and responses vary between patients.  This retrospective cohort included 106 patients with DCS seen between 2...

10/15/2025

SAF would like to introduce you to some of our volunteer medical professionals that review medical articles on scaring alopecia. These professional help bring us current information in an understandable way. Esema is a student at the Ohio State University College of Medicine and Keyarah is

10/08/2025

Dr. Keira Barr, MD— a dual-board certified dermatologist and pioneer in somatic psycho-dermatology - is featuring in this SAF webinar! It's fascinating! Please follow our YouTube channel.
https://drkeirabarr.com/

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

10/03/2025

Here is the YouTube link to Dr. Benjamin Unger's webinar on evidence-based therapies and emerging treatments! Please follow us on YouTube!