Penn FTD Center

The Penn FTD Center is home to an energetic team dedicated to the investigation and treatment of FTD

The Penn Frontotemporal Degeneration Center brings together an energetic team of creative clinicians and researchers dedicated to the investigation and treatment of early onset neurodegenerative conditions. Our Center members include neurologists, neuropathologists, neuroscientists, geneticists, genetic counselors, neuropsychologists, nurses, social workers, and clinical research coordinators, all

targeting a cure for Frontotemporal degeneration . Intellectual diversity, creativity and strong collaborative partnerships uniquely position the Penn Frontotemporal Degeneration Center to deliver the highest quality of care to our patients, conduct translational research to improve diagnostic and prognostic accuracy, improve understanding of the biological basis of Frontotemporal degeneration spectrum disorders, and train the next generation of physicians and researchers as we move toward a cure.

07/25/2025

FTD Fact Friday: Heterozygous loss-of-function mutations in GRN are the second most common cause of inherited FTLD-TDP. The Penn FTD Center is here to help with information and resources!

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

07/18/2025

FTD Fact Friday: The most common genetic cause of FTLD-TDP is a mutation in the non-coding region of the C9orf72 gene. The Penn FTD Center is here to help with information and resources!

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

07/16/2025

Penn FTD Center Staff Highlight 🌟

Cayla Andrews schedules research visits, guides families through their research day, and collects data for the research.

📍Read more details on Cayla in the blog post on our website!

07/11/2025

FTD Fact Friday: MAPT was the first FTD gene to be identified, proving that tau aggregation and dysfunction alone are sufficient to cause neurodegeneration. The Penn FTD Center is here to help with information and resources!

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

07/10/2025

In this episode of The Age of Aging, caregiver and author Lisa Marshall discusses love, grief, and intimacy with Penn Memory Center Director of Social Work Alison Lynn.

Tune in for a conversation so many caregivers have – but almost never talk about.

The episode is available now wherever you listen to podcasts.

07/09/2025

In this month’s blog post, Penn FTD Center Clinical Research Project Manager Jessica Legaspi provides an inside look at a role within clinical research and what makes the job fulfilling.

Our latest blog post can be found at our website!

07/07/2025

We understand that care management can be tough. At the Penn FTD Center, we are committed to provide practical, useful tips for care management.

The first Monday of every month, we will be sharing tips on care management for those living with FTD. For July, we are sharing tips on FTD & Sundowning.

📍Check out our website for more information on Support & Resources

07/02/2025

📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?

Make sure you are following the Penn FTD Center on all your social platforms.

📍All of our social media accounts are listed below!

06/27/2025

FTD Fact Friday: The main difference between FTD and Alzheimer’s is that will usually start with memory loss. This is caused by plaques tangles in a specific part of the brain. Memory problems are not the main presenting issues when it comes to FTD. The Penn FTD Center is here to help with information and resources!

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

06/26/2025

In the newest episode of The Age of Aging, Dr. PJ Brennan and Dr. Kyra O’Brien discuss the changing landscape of the U.S. healthcare system for older adults.

From anti-amyloid therapies to the upcoming GUIDE program, hear what’s ahead for dementia care.

🎧 Available now wherever you listen to podcasts!

06/25/2025

💡In this month’s Research Roundup, Postdoctoral Fellow Rory Boyle PhD outlines ways that researchers can study resistance and resilience to Alzheimer’s disease in people with Down syndrome.

Read now by visiting our website!

06/24/2025

Curious about how genetics play a role in ALS when there is no family history? Penn FTD Center licensed, certified genetic counselor Laynie Dratch joined the I AM ALS team to present information on genetic counseling and what the counseling and testing process actually involves.

Watch the recording now at the link below:
https://www.youtube.com/watch?v=grUn2EQdJA4

Address

Philadelphia, PA

Telephone

+12153495863

Website

http://pennftdcenter.org/

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