Penn FTD Center

Penn FTD Center The Penn FTD Center is home to an energetic team dedicated to the investigation and treatment of FTD

The Penn Frontotemporal Degeneration Center brings together an energetic team of creative clinicians and researchers dedicated to the investigation and treatment of early onset neurodegenerative conditions. Our Center members include neurologists, neuropathologists, neuroscientists, geneticists, genetic counselors, neuropsychologists, nurses, social workers, and clinical research coordinators, all targeting a cure for Frontotemporal degeneration . Intellectual diversity, creativity and strong collaborative partnerships uniquely position the Penn Frontotemporal Degeneration Center to deliver the highest quality of care to our patients, conduct translational research to improve diagnostic and prognostic accuracy, improve understanding of the biological basis of Frontotemporal degeneration spectrum disorders, and train the next generation of physicians and researchers as we move toward a cure.

FTD Fact Friday: Two rare neurological movement disorders associated with FTD, corticobasal syndrome and progressive sup...
10/10/2025

FTD Fact Friday: Two rare neurological movement disorders associated with FTD, corticobasal syndrome and progressive supranuclear palsy, occur when the parts of the brain that control movement are damaged. The Penn FTD Center is here to help!

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

The Penn FTD Center spoke with the Caregiver Conference keynote speaker Linde Jacobs for a highlight to her background, ...
10/09/2025

The Penn FTD Center spoke with the Caregiver Conference keynote speaker Linde Jacobs for a highlight to her background, Cure MAPT FTD, and her advocacy journey. Read the October blog post now on our website!

Register now for the Penn FTD Center Caregiver Conference on Monday, November 3rd. This event is in-person at the Smilow Center for Translational Research and free to attend!

We understand that care management can be tough. At the Penn FTD Center, we are committed to provide practical, useful t...
10/06/2025

We understand that care management can be tough. At the Penn FTD Center, we are committed to provide practical, useful tips for care management.

The first Monday of every month, we will be sharing tips on care management for those living with FTD. This October, we are sharing tips on cognitive managing compulsive behaviors.

📍Check out our website for more information on Support & Resources

FTD Fact Friday: Frontotemporal disorders are not a single brain disease but rather a family of neurodegenerative diseas...
10/03/2025

FTD Fact Friday: Frontotemporal disorders are not a single brain disease but rather a family of neurodegenerative diseases. The Penn FTD Center is here to help!

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

PhD candidate at the University of Pennsylvania’s School of Nursing Lauren Fisher has been awarded a grant to support he...
10/02/2025

PhD candidate at the University of Pennsylvania’s School of Nursing Lauren Fisher has been awarded a grant to support her dissertation study examining how empathy loss in bvFTD influences caregiver stress by contextualizing quantitative results from surveys in the lived experiences of caregivers captured in interviews. This funding is pivotal to support her education and research focused on advancing science, evaluating the social and psychological factors that impact the relationship between caregivers and PLWD, and their physical and mental health.

Congrats Lauren! 🎉

Penn FTD Center Staff Highlight 🌟 Quinn Hlava, MRA is a Senior Clinical Research Coordinator who works on observational ...
09/29/2025

Penn FTD Center Staff Highlight 🌟

Quinn Hlava, MRA is a Senior Clinical Research Coordinator who works on observational research, specifically the ALLFTD study and various imaging studies.

📍Read more details on Quinn in the blog post found on our website!

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and inf...
09/26/2025

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information about a variety of topics, including caregiver strategies, clinical trials, genetics, research and so much more.

Today, the Penn FTD Center Assistant Director Lyles Clark provides an overview of research at the Penn FTD Center. Visit our website to watch the video and get more information on FTD Awareness Week!

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and inf...
09/25/2025

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information about a variety of topics, including caregiver strategies, clinical trials, genetics, research and so much more.

This afternoon, Penn FTD Center Clinical Research Project Manager Emily Xie provides an introduction into observational research. Visit our website to watch the video and get more information on FTD Awareness Week!

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and inf...
09/25/2025

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information about a variety of topics, including caregiver strategies, clinical trials, genetics, research and so much more.

This morning, Penn FTD Center Clinical Research Coordinators Riya Chaturvedi & Alexandra Tavani provide an overview on clinical trials. Visit our website to watch the video and get more information on FTD Awareness Week!

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and inf...
09/24/2025

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information about a variety of topics, including caregiver strategies, clinical trials, genetics, research and so much more.

Today, the Penn FTD Center Genetic Counselor Laynie Dratch, ScM, CGC provides details on genetics in FTD, genetic testing, and more information on genetic counseling. Visit our website to watch the video and get more information on FTD Awareness Week!

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and inf...
09/23/2025

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information about a variety of topics, including caregiver strategies, clinical trials, genetics, research and so much more.

Today, the Penn FTD Center Nurse Practitioner Gillian Bradley, MSN, CRNP provides details on caregiver strategies for symptom management. Visit our website to watch the video and get more information on FTD Awareness Week!

World FTD Awareness Week takes place September 21-27, 2025! The Penn FTD Center will be sharing informational videos thr...
09/19/2025

World FTD Awareness Week takes place September 21-27, 2025! The Penn FTD Center will be sharing informational videos throughout the entire week to highlight different areas of expertise here at the center.

You can join the movement by following World FTD United and AFTD as they share information and resources throughout the entire week! Share your story and get connected!

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Philadelphia, PA
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