Penn FTD Center

The Penn FTD Center is home to an energetic team dedicated to the investigation and treatment of FTD

The Penn Frontotemporal Degeneration Center brings together an energetic team of creative clinicians and researchers dedicated to the investigation and treatment of early onset neurodegenerative conditions. Our Center members include neurologists, neuropathologists, neuroscientists, geneticists, genetic counselors, neuropsychologists, nurses, social workers, and clinical research coordinators, all targeting a cure for Frontotemporal degeneration . Intellectual diversity, creativity and strong collaborative partnerships uniquely position the Penn Frontotemporal Degeneration Center to deliver the highest quality of care to our patients, conduct translational research to improve diagnostic and prognostic accuracy, improve understanding of the biological basis of Frontotemporal degeneration spectrum disorders, and train the next generation of physicians and researchers as we move toward a cure.

03/06/2026

FTD Fact Friday: Because of its young onset age, FTD can have a substantially greater impact on work, family, and finances than Alzheimer’s disease.

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

03/02/2026

We understand that care management can be tough. At the Penn FTD Center, we are committed to provide practical, useful tips for care management.

The first Monday of every month, we will be sharing tips on care management for those living with FTD. In National Nutrition Month we wanted to highlight information on the link between healthy diets and healthy brains.

📍Check out our website for more information on Support & Resources

02/20/2026

FTD Fact Friday: FTD is frequently misdiagnosed as Alzheimer’s disease, depression, Parkinson’s disease, or a psychiatric condition.

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

02/18/2026

In our blog post, Clinical Research Coordinator Ashlyn O'Halloran outlines the UNICORN study experience and activities.

Read now at our website!

02/17/2026

📰 Are you subscribed to the Penn FTD Center newsletter?

Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!

02/16/2026

Emma Rhodes, PhD, Penn FTD Center’s Neuropsychologist & Assistant Professor has been inducted to the International Neuropsychological Society (INS) their inaugural class of fellows (FINS). The FINS fellowship honors members of the INS who have demonstrated meaningful and sustained contributions to the society over time.

Congratulations, Emma! 🎉

02/13/2026

FTD Fact Friday: FTD affects the frontal and temporal lobes of the brain and is characterized by a decline in behavior, language, and function.

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

02/12/2026

Last chance to apply for the FTD CRLI Program! Applications close tomorrow, Friday, February 13th.

The Penn FTD Center and The Association for Frontotemporal Degeneration co-host this virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research by educating them on the clinical research process.

Check out our website to complete the application!

02/10/2026

Penn FTD Center Staff Highlight 🌟

Marianthi Harerasis a Clinical Research Coordinator at the Penn FTD Center. Marianthi works on the core UNICORN protocol and is the coordinator for the ancillary PET studies.

📍Read more details on Marianthi in our blog post found on our website!

02/09/2026

Register now for the sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST.

Find the registration link and more details now on our website!

02/06/2026

FTD Fact Friday: FTD impacts approximately 60,000 patients in the United States.

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

02/05/2026

Penn FTD Center Genetic Counselor Laynie Dratch, ScM, CGC presented at the 2026 The Association for Frontotemporal Degeneration (AFTD) Holloway Summit discussing "Evolution of ALS/FTD genetic testing practice."

Laynie is joined by Jill Goldman (Columbia University), Susan Dickinson (AFTD), and Weiyi Mu (John Hopkins Medicine).

Thank you for your work, Laynie!

Address

Philadelphia, PA
19104

Telephone

+12153495863

Website

http://pennftdcenter.org/

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