Penn FTD Center

12/15/2025

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12/10/2025

Penn FTD Center Staff Highlight 🌟

Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies in coordinating observational research operations to support both participants and research team throughout their time at the center.

📍Read more details on Emily in the blog post found on our website!

12/09/2025

In our December blog, Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director Dahlia Kamel, MS provides some helpful tips for navigating the holiday season when a loved one is living with FTD.

Our latest blog post can be found at our website!

12/05/2025

FTD Fact Friday: FTD that runs in a family is often related to variants (permanent changes) in certain genes. The Penn FTD Center is here to help!

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

12/04/2025

📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?

Make sure you are following the Penn FTD Center on all your social platforms.

12/03/2025

Congrats to the Penn FTD Center team on their posters and presentations at the Institute on Aging Annual Research Retreat and Poster Session! This year’s theme was “Aging Reimagined: Innovation in the Era of AI".

Special congrats to Ashlyn O’Halloran for her awarded poster titled, "Neuropsychiatric Features of Concomitant LATE and Alzheimer’s Disease.”

12/01/2025

We understand that care management can be tough. At the Penn FTD Center, we are committed to provide practical, useful tips for care management.

The first Monday of every month, we will be sharing tips on care management for those living with FTD. This December, we are sharing tips on managing the holidays.

📍Check out our website for more information on Support & Resources

11/21/2025

FTD Fact Friday: In general, changes in the frontal lobe are associated with behavioral symptoms, while changes in the temporal lobe affect language and emotions. The Penn FTD Center is here to help!

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

11/20/2025

Penn FTD Center's Emma Rhodes worked alongside collaborators to publish a paper in The American Journal of Geriatric Psychiatry regarding accelerated cognitive decline in late life depression.

Read the paper using the link below 👇

11/19/2025

Laynie Dratch, ScM, CGC, Penn FTD Center Genetic Counselor, presented two posters at the National Society of Genetic Counselors (NSGC) Annual Conference in Seattle, WA. One poster explored pilot data from the Penn FTD Center’s study of individuals’ experiences with FTD predictive genetic counseling, while the other poster outlined data from a survey of neurology patients’ experiences receiving genetic testing results via the electronic medical record patient portal.

Laynie also presented on genetic counselors’ roles in gene-targeted clinical trials and approved therapies during a gene therapy session; there were no empty seats in the room!

Thank you for sharing your research, Laynie!

11/18/2025

Penn FTD Center researchers recently published an article featured in Alzheimer’s & Dementia: Behavior & Socioeconomics of Aging on neighborhood deprivation in bvFTD.

Read the article below 👇

INTRODUCTION Neighborhood deprivation is associated with shorter survival, cognitive impairment, and neurodegeneration in aging and Alzheimer's disease. However, the association of neighborhood depr...

11/13/2025

Happy Genetic Counselor Appreciation Day!🧬 Join us as we celebrate Penn FTD Center Genetic Counselor, Laynie Dratch! From guiding patients through genetic testing to helping patients adapt to living with or at risk for a genetic condition, these professionals are key members of healthcare teams, empowering patients to make informed decisions.

Discover more about the role of Genetic Counselors and if genetic counseling may be right for you by looking at our website!