Penn FTD Center

08/28/2025

🎙️ Our amazing genetic counselor Laynie Dratch was featured on the DNA Dialogues podcast to share insights from the recent publication: “Patient-reported outcomes for remote and in-person visits for genetic counseling in adult neurology.”

💡 Tune in to hear her perspective on how different visit formats impact the patient experience.

👉 Listen now: https://dnadialogues.podbean.com/e/neurology_APOE_telehealth

08/27/2025

Penn FTD Center Staff Highlight 🌟

Jessica Legaspi, MS manages the center's observational studies primarily focusing on the ALLFTD and CReATe ALS studies.

📍Read more details on Jessica in the blog post found on our website!

08/18/2025

In our August blog, Penn FTD Center Clinical Research Coordinator Samantha Dengel interviews a spouse of a research participant to shed light on what it is like to care for and love someone with FTD and amplify caregiver voices.

Our latest blog post can be found at our website!

08/15/2025

FTD Fact Friday: Research has shown that those with dominantly inherited FTLD due to MAPT, C9orf72 and GRN mutations, individual age at onset is significantly correlated with parental age at onset and mean family age at onset and death. The Penn FTD Center is here to help with information and resources!

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

08/13/2025

📰 Are you subscribed to the Penn FTD Center newsletter?

Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!

08/07/2025

Check out the recently published Neurology Viewpoint article linked below led by the Penn FTD Center’s genetic counselor Laynie Dratch. Laynie and co-authors assert that all people diagnosed with FTD should be offered the opportunity to have genetic counseling, and testing if elected by the patient and family after counseling. This approach is critical to the advancement of precision medicine in FTD, and parallels recently published guidelines in the ALS community.

The Importance of Offering Genetic Counseling and Testing to All Persons Diagnosed With Frontotemporal Degeneration Spectrum Disorders

08/06/2025

In this month’s Research Roundup, Postdoctoral Fellow Sheina Emrani, PhD outlines how researchers are studying whether neuroinflammation worsens cognitive outcomes during life in patients with frontotemporal lobar degeneration (FTLD).

📍Read now by visiting our website!

08/04/2025

We understand that care management can be tough. At the Penn FTD Center, we are committed to provide practical, useful tips for care management.

The first Monday of every month, we will be sharing tips on care management for those living with FTD. For August, we are sharing tips on managing habits related to hiding, hoarding, and losing items.

📍Check out our website for more information on Support & Resources

07/30/2025

Today, two Penn researchers showcase their work at !

▪ Nadia Dehghani, PhD explores brain telomere length associated with hippocampal p-tau
▪ Rory Boyle, PhD explains how epigenetic age acceleration is faster in Black adults and is associated with plasma amyloid

Stay tuned for a recap on all things in the coming weeks!

07/29/2025

Day 3 of and Penn continues to showcase research and findings! Today, be sure to check out posters from Allison Snyder, MD, Nadia Dehghani, PhD, and Seth Talyansky.

07/28/2025

At day 2 of the Penn team are showcasing their research!

Some of today’s presenters include:
📍Christopher Brown MD, PhD
📍Sheina Emrani PhD
📍Daniel Ohm PhD
📍Briar Nowling PhD

Swipe through to read more about the research being presented! And follow along for more coverage of Penn researchers at AAIC!

07/28/2025

Day 2 of in full swing! Staff from Penn continue to present their research and findings via posters and presentations!

Be sure to check out their posters before the end of the conference!