ATTR-Amyloidosis.net

03/13/2026

"What often goes underrecognized in conversation, and even in published literature, is the heavy weight that sits with the gene carrier...." Read Erin's perspective on the weight carried by gene carriers of , and how she copes with uncertainty. hATTRNextGen https://attr-amyloidosis.net/?p=266

03/12/2026

See what people are saying in the discussion forums about ATTR. It's a great place to ask questions and find support! https://attr-amyloidosis.net/?p=247

03/06/2026

What's everyone up to this weekend?

03/04/2026

Have you had a chance to meet others living with ? It can make a big difference to find someone who has been where you are now. Find out what people are saying in our here: https://attr-amyloidosis.net/?p=247

02/27/2026

How do you support a loved one with ? Read more of Erin's story, as she shares: "Caring for and supporting our ill loved ones is so important. But respecting their autonomy where possible in my opinion is that much more..." https://attr-amyloidosis.net/?p=176

02/23/2026

ATTR doesn't always look the way people expect - we need to widen the perspective! Faye Adams shares about how ATTR does not always "fit the mold." https://attr-amyloidosis.net/?p=206

02/20/2026

Do you have a pet? Members of the ATTR community have shared how meaningful these companions can be when coping with health challenges. Share about your pet (or post a pic!) in this discussion forum.

https://bit.ly/46fRAwt

02/16/2026

Figuring out when and how to talk to your loved ones about your health isn't always easy. Erin remembers the conversation with her father: "Olive Garden, early 2014. It’s where my family often gathered for important events. Happy ones. Birthdays. Graduations. You get the picture. But not that day. That day there would be more..." Read the whole story here: https://attr-amyloidosis.net/?p=163

A daughter shares the experience of learning of her father's hATTR diagnosis and the denial, stress, and support that followed.

02/13/2026

February is a time to recognize and raise awareness for rare diseases. Rare Disease Awareness Day is at the end of the month. Learn more about people are coping with this unique health challenge https://attr-amyloidosis.net/?p=173

02/11/2026

What type of ATTR impacts you or your loved one?

02/06/2026

"My brother had no answer to his condition. No diagnosis. He said, “the docs are working on it..." The road to diagnosis is not easy. Can you relate? https://attr-amyloidosis.net/?p=175

02/04/2026

A diagnosis of ATTR-Amyloidosis can impact every part of someone's life. Tell us what it's really like: https://bit.ly/4sTHriT