05/03/2026
💜 May is Ehlers-Danlos Syndrome (EDS) Awareness Month 💜
Most people hear “EDS” and think it just means being flexible…
But it’s so much more than that.
I have hEDS (Hypermobile Ehlers-Danlos Syndrome)—a complex, genetic connective tissue disorder that affects my entire body, every single day.
EDS can look like:
✨ Joint hypermobility, frequent sprains & dislocations
✨ Chronic pain, muscle fatigue, and weakness
✨ Soft, stretchy, fragile skin & easy bruising
✨ GI issues (bloating, reflux, constipation, gastroparesis)
✨ Dysautonomia (like POTS), heart palpitations
✨ Brain fog, migraines, and memory issues
✨ Sleep problems, extreme fatigue
✨ Pelvic floor dysfunction, bladder issues
✨ Anxiety, depression, sensory sensitivities
✨ Temperature regulation problems
✨ And so much more…
And it rarely comes alone.
Common comorbidities can include:
➡️ POTS & Dysautonomia
➡️ MCAS (Mast Cell Activation Syndrome)
➡️ Fibromyalgia & Chronic Fatigue Syndrome
➡️ IBS & other digestive disorders
➡️ Migraines & neurological issues
➡️ Endometriosis & PCOS
➡️ TMJ dysfunction
➡️ Sleep disorders
➡️ Chiari malformation, tethered cord
➡️ And many others…
There are 13 types of EDS, all affecting collagen in different ways—
but hEDS is the most common and often the most misunderstood.
This is an invisible illness.
Just because you can’t see it… doesn’t mean it’s not real.
Some days I look “fine”…
But behind the scenes, my body is working overtime just to function.
💜 Living with EDS means:
• Pacing, not pushing
• Listening to my body
• Canceling plans sometimes
• Fighting through pain & fatigue
• Advocating for myself
• Holding onto hope
If you know someone with EDS—
please be patient, be kind, and try to understand.
And if you’re living with it too…
you are NOT alone. 🦓