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Easton Strong, Pittsburgh, PA (2025)

09/17/2025

post transplant memories just hit different 🥹

when you’ve seen both your children fight for their lives, you’ve witnessed them hooked up to wires 24/7 for months, dealing with the gruel impacts of harsh chemos for months… seeing them live a normal, happy, healthy childhood is EVERYTHING. We love love love traveling with our babies & their Make A Wish has been something so special for us to look forward to!

Easton has been very skeptical of the characters which has surprised me! His favorite park is animal kingdom (he loves animals) & loves the pool/splash pad at GKTW Village. Princess Kori loves all things Minnie! It has been a blast so far🥰

09/10/2025

Some more pictures from the gala✨

I cant begin to express the gratitude for this foundation! I truly wish everyone knew just how much the Ronald McDonald House really does for families. I once had someone tell me during one of my kids’ treatment, that the only reason my family was in the RMH was due to connections or people we knew. That’s how misinformed so many people are about this foundation. The Ronald McDonald House in Cincinnati (and so many others across the U.S. and worldwide) continue to expand to be able to house anyone who meets the criteria of living 50+ miles and having specialty appts weekly. These fundraisers like the one on Saturday, is the reason they can continue to house so many families each year. Meeting many of these selfless people who help fund the house and seeing how much of an impact our story had on them was something that will stick with me forever. They are the reason that no HLH family is turned away during treatment. They are the reason so many of us were able to stay afloat during the most challenging time of our life. There are no politics, it’s not a club you have to know someone to get in. This is just a selfless foundation, filled with selfless people working in the house, making a difference in people’s lives who need it most. I will never stop advocating for medical families to be informed about the resources needed and available to them! It was truly an unforgettable night. As always, continue to support the RMH in your area! Round your change up if you can, because it really does benefit the families❤️

09/07/2025

We will never know the “why”. Why God chose our son to be 1 in 50,000. Why we (and the other HLH families) had to be the ones to endure the trauma of treatment. Why God then made us do it a second time. I like to think that this is the “why”. To advocate for medical families/caregivers, to share our story, to be a picture of hope to the hopeless, all while bringing glory to Jesus. If our story impacts even 1 person, or family. Whether that’s in knowledge of their resources, in their hope of circumstances, or even faith in God. All of our family’s trauma was worth it. This was such a special moment for our family. To stand before and thank the people who help make it happen, with both of our children… healthy.

09/07/2025

RONALD MCDONALD HOUSE GALA 2025

What an incredible night! It felt so surreal being able to stand up there and express our gratitude to the people who make an impact on so many people’s lives. This was truly an unforgettable night. We were so honored to represent not only RMH families but especially the HLH community. ❤️

09/06/2025

We are on our way to Cincinnati for Eric and I to speak tonight at the RMH Gala… one of their biggest fundraisers of the year. We are so honored to have been asked to speak and can’t wait to shed light on how much this foundation means to us and so many others. Please say some prayers that Jesus guides us during our speeches & speaks through us. We are so bummed our HLH friends from Hawaii Rhaiden & Rhyder's HLH Journey will not be able to attend the gala in person. Rhyder is in his post 100 day recovery and it is much more important he stays as healthy as possible and limits the risk of exposure. We will certainly miss them! As always, if you feel called to donate monetarily to this amazing foundation you can do so on their website. Also, if you have any unwanted/needed household items such as canned/dry goods, paper products, toys, etc. please consider donating it to your local Ronald McDonald House! The house guest families use all of these items while staying in the house. We can’t wait to share pics/videos from the event tonight!

09/01/2025

Today is the start of Histiocytosis Awareness Month! We wear blue for both of our HLH babies. 💙🎗️🩷

Each child had a 25% chance of having HLH, which then means we fell in the 6% chance of both children having HLH. Easton and Kori are some of the strongest, most loving, sweetest, unique, children ever. I would not change a single thing about them if I could! They along with so many other HLH children, have fought so hard to be here today living life. We are very thankful that God has guided the hands of some of the top HLH experts and given them the knowledge to treat our babies through bone marrow transplant.

This month is also Childhood Cancer Awareness Month💛🎗️. Although HLH isn’t considered a cancer, I have come to know so many families with children battling cancer between secondary HLH caused by malignancy or just having been treated on the same unit and going through similar treatments of chemo/BMT. Both diseases that desperately need more awareness and treatment options.

This month, we celebrate/honor the HLH and cancer families who have already gone through treatment, and the ones currently going through treatment because having healthy children is a luxury that so many take for granted.

08/08/2025

💙 September is Histiocytosis Awareness Month 💙

In honor of Histiocytosis Awareness Month coming up in September, the HLH Heroes Foundation is offering FREE blue awareness ribbon yard signs to families and individuals impacted by the rare disease HLH (Hemophagocytic Lymphohistiocytosis).

These yard signs are a symbol of strength, hope, and unity for the HLH community. Whether you're a family currently affected or an advocate spreading awareness, we want to help you show your support for the HLH and Histiocytosis community.

🔹 Request your FREE yard sign here (can only ship to US address). Donations appreciated to help cover costs, but not required. https://forms.gle/QEGUEZNKDpjTke8L6

Additionally, if you're able to support to help cover the cost of the yard signs and other initiatives, or just want to donate check out this link! Every donation helps make a difference!

🔹 Donate here: https://secure.givelively.org/donate/hlh-heroes-foundation-not-for-profit/hlh-heroes-september-awareness-2025

Together, we can spread awareness, support those impacted by HLH, and spread hope. 💙

08/03/2025

Today we celebrated Kori’s 1st birthday party! Although her immune system is basically up to par, we kept her party to pretty much family only (or people closest to us who are like family). It was a great time to celebrate a special milestone!🩷

Kori is 6 months post transplant and thriving! She is all caught up developmentally to other babies her age. Our doctor here in Pgh gave us the clear to minimize most restrictions & even to fly for travel (although we don’t plan to fly until Nov). Her only lingering restrictions are 1) to be careful in the sun, as well as 2) no super crowded areas especially indoors. Thank you to everyone who has shown our family so much support over the years.🥰

08/02/2025

Our sweet girl is 1 year old today!🩷

She is the sweeetest, sassiest, most fierce baby girl ever. Her first year was more challenging than most so we are looking even more forward to this next year. We love you to the moon baby girl! Cant wait to celebrate you today & tomorrow🎉

07/25/2025

Day +178❤️

We got home from Cincinnati late Tuesday night after she received her boost! We had received her lab results and her recovery has continued to trend in the right direction. Before her boost, they drew a chimerism lab (anticipating it go down further hence why they were giving the boost anyways). PRAISE JESUS! Every cell line dramatically increased on its own. This was all prior to the boost. We are assuming the boost will just further stabilize it. This was fantastic news for us.

While we were in Cincinnati, staying at the Ronald McDonald House Charities of Greater Cincinnati . We were beyond honored to have been asked to speak at their annual RMH GALA, a formal event with the many sponsors and donors who make the house possible. We can’t wait to attend the event and shed light on the impact that the house has had on our journey as well as life after the medical. ❤️

07/16/2025

day +168💦
Kori is just about 6 months post transplant! We are in Cincinnati all this week & half of next week. Kori will receive a CD34 boost (just like Easton). Her chimerism (donor cell %) seems to be trending just like his was at this point. The team feels it makes the most sense to boost her now to push her cells to stabilize sooner than later! In the meantime, Eric has to prep his body to draw the massive amount of cells by receiving shots of GCSF once daily for 5 days (starting Thursday). Yesterday, Eric got labs drawn & had his consent signing. Today, Kori had her appt w her doctor for her consent signing along with her 6 month follow up! We now have nothing until Thursday. While waiting on a room to open up at the Ronald, we decided to take a detour to Kalahari Waterpark to try to make this feel as much like a vacation as possible for Easton. It was a perfect time being a Tuesday, it’s much less crowded than on a weekend! Although Kori’s immune system is pretty close to being up to par, we opted to keep her out of the public pool. Kori did what Kori does best….EAT! We can’t wait to fill the rest of the week with different activities & visit our favorite places. Kori and Easton have been THRIVING since being home. Easton starts preschool in less than 2 months, then shortly after we go to Disney for his Make a Wish. We have so much to look forward to the rest of this year. Thank you Jesus for a life full of memories with my babies, and may we never take their health for granted. 🩷

05/31/2025

✨Kori’s post transplant life photo dump✨

Kori just hit 4 months post transplant a couple of days ago! We are just taking in being home and enjoying every moment. We have so many things to look forward in the next coming months/year. It’s been much needed seeing all of our friends and family that we’ve been away from over the last 6 months. I’ve loved being able to see Kori’s personality explode while being home. We don’t realize how much the medical environment hinders them until we get away from it. Kori’s transplant was certainly the most trying time of our life between navigating the medical and also trying to keep Easton (and ourselves) mentally sane, but God continues to pull us through every time. I am so thankful to everyone who has been so supportive of our family over both Easton & Kori’s transplants. I will continue to post more spaced out/long term updates (God willing that there is nothing more needing updated medically!!) of all the progress both kiddos have been making. It’s so crazy to look back and especially see how far Easton has come since starting this page. Thank you everyone that’s been following along my babies’ journey❤️

Easton Strong

09/17/2025

09/10/2025

09/07/2025

09/07/2025

09/06/2025

09/01/2025

08/08/2025

08/03/2025

08/02/2025

07/25/2025

07/16/2025

05/31/2025

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