Easton Strong

Easton Strong Easton and Kori’s journey with HLH (hemophagocytic lymphohistiocytosis) and through bone marrow transplant

Happy 4th Birthday to our miracle boy🩵We love you so much, Easton!
02/08/2026

Happy 4th Birthday to our miracle boy🩵

We love you so much, Easton!

We got the kids’ chimerism results, both showing very stable in all cell lines…thank you, Jesus!🎉🩷 Perfect way to kick o...
02/01/2026

We got the kids’ chimerism results, both showing very stable in all cell lines…thank you, Jesus!🎉🩷

Perfect way to kick off the start of Rare disease month💜🦓

HAPPY FIRST RE-BIRTHDAY, PRINCESS KORI!🩷🎉🎀💙🎗️A re- birthday marks their transplant day, the day they received a second c...
01/28/2026

HAPPY FIRST RE-BIRTHDAY, PRINCESS KORI!🩷🎉🎀💙🎗️
A re- birthday marks their transplant day, the day they received a second chance at life. Both of the kids get TWO birthday (their real & re bday). This past year was filled with so many special HEALTHY memories that made the hospital days all worth it. Despite having advantages in knowing her diagnosis so early, her fight was not any less than Easton’s. She is so strong and such a fighter. We are so proud of her and where she has come in the last year. We love you, sis!!!🥰

RARE disease day is coming up on Feb. 28!💙🦓 The HLH Heroes Foundation is selling T shirts! This is a foundation that has...
01/28/2026

RARE disease day is coming up on Feb. 28!💙🦓 The HLH Heroes Foundation is selling T shirts! This is a foundation that has done so much for our family and many other HLH families. Easton & Kori’s name will be on the back of the shirt along with lots of other HLH warriors/angels. If you would like to order one, the link is in their post🩷

Today, we had Easton & Kori’s (first ever) annual visit together in Cincinnati!!! 💙 Our doctor said they look great. Nei...
01/28/2026

Today, we had Easton & Kori’s (first ever) annual visit together in Cincinnati!!! 💙 Our doctor said they look great. Neither of them are on any medication and both are doing phenomenal. We will get their chimerism labs later in the week/next week. We pray that they will both come back stable, as anticipated. I was really worried about this visit with Easton being at the age he’s at. I anticipated he would be fearful of the pokes and being held down with all of the scans but he proved me completely wrong. He was a total rockstar, laid still for an hour echo, and didn’t even cry while getting an “ouchy”. We are SO proud of them both. With that said, we were fortunate enough to get into the Ronald McDonald House Charities of Greater Cincinnati for the night which totally made Easton’s trip to cincy. Although he didn’t cry during labs, he did cry when we told him we were going home & not back to the RMH😂. Tomorrow, we celebrate Kori’s ONE YEAR POST BMT!🩷 She has no restrictions now! After Easton, we became pros at finding ways to live a more normal life while still taking recovery precautions. This past year really hasn’t felt too restrictive and has truly flown by! Thank you for all of the continued prayers for our babies and for following along with our family’s journey. Thank you Jesus, for carrying us through & giving us such a special testimony of Your faithfulness! We don’t take this testimony lightly and will continue to share with the world how powerful our God is and the mountains that He can move!

HAPPY RE BIRTHDAY EASTON🎉💙3 years ago today, Easton received his life saving bone marrow from his dad! Just like any fir...
01/04/2026

HAPPY RE BIRTHDAY EASTON🎉💙

3 years ago today, Easton received his life saving bone marrow from his dad! Just like any first child, with him, I was just learning how to be a mom. Not only was I learning how to be a mom with the normal basics, I was learning how to become a medical mom. While learning about things like teething, transitioning to solid food, etc.., I was learning how to draw up medication, flush a central line, read and undertstand lab work. His diagnosis taught me how to value the moments, take lots of pictures, and love while you can. I always say Easton walked so Kori could run in her HLH diagnosis/BMT. He was our first miracle baby and made me the medical mom I am today.

Not every HLH case ends up with the outcome we did. This is something I will never take for granted. Each re-birthday is just as special as transplant day. As much as we hated enduring the medical life, we are thankful and feel blessed that God gave us this testimony with both of our children. Our family is living proof of his faithfulness. If our experience helps even just 1 person in their own circumstances, it was worth it. Today, we celebrate 3 years of Easton being healthy! Happy re-birthday to my little man!!💙

Happy 2026!!!!✨This month is a month of celebrating, as we celebrate both Easton & Kori’s rebirthday!! 🎉💙🎗️. Easton will...
01/01/2026

Happy 2026!!!!✨

This month is a month of celebrating, as we celebrate both Easton & Kori’s rebirthday!! 🎉💙🎗️.

Easton will be 4 years old next month & 3 years post transplant in just a few days! He started school this past September, and absolutely loves it. He loves all things animals, and music! He loves to be silly & makes us laugh all day long. Medically speaking, we have his annual appointment in cincy at the end of the month to do yearly labs. We pray everything will come back as anticipated, normal and stable. Overall, he is thriving and living life to the fullest!

Kori is 17 months old, and will be one year post transplant in a few weeks! She is developmentally right where she should be. She has over 20 words and has not required any therapies after leaving Cincinnati. She is our girly girl! She loves purses and baby dolls. She also loves to dance! She is sooo sassy and has such a big personality in such a little body. Medically, Kori will follow up with Cincinnati at the end of the month as well. This will be the longest she’s gone with out labs (3 months). Her last labs showed her chimerism increased and in a stable place. We are praying these next labs show the same!

Thank you Jesus for the last 3 years of health for Easton and the first healthy year for Kori!!!🙏💙🎗️🩷✨🥰

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12/13/2025

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THANK YOU❤️
I am overwhelmed by the generosity of all of our customers. Because of you, we were able to bring a little bit of Christmas joy to the families at the Ronald McDonald House of Pittsburgh. This was certainly a full circle moment having spent both of my kids’ first Christmas in a Ronald McDonald House going through their treatment.

It has been a while since I’ve given any medical update on either of the kids!We are still watching Kori’s chimerism, an...
11/15/2025

It has been a while since I’ve given any medical update on either of the kids!

We are still watching Kori’s chimerism, and still do monthly labs for that. We go to clinic this Monday and depending on her chimerism, we may be able to space appointments even further. She is almost 10 months post transplant. She continues to recover great and overall, is living a normal 1.5 yr old life!🩷

Easton has been at annual labs so no real medical update on him. However, he started preschool in Sept. and absolutely loves it! He still receives speech therapy once a week but is world’s away from where he was even just 6 months ago with his communication skills. His biggest obstacle right now is just working on his socialization. 💙

We thank Jesus everyday for blessing us with our miracle babies and the unique testimony that we carry with us. Thank you to all of you who have continued to support our family through this journey.

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11/15/2025

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As the holiday season approaches, we are collecting donations in store for the Ronald McDonald House of Pittsburgh. Parents- if you’re looking to make space for new toys, now is not a better time! If you have unwanted new or gently used toys, household items, pantry items, paper goods, etc., please consider donating to this amazing organization. There are many foundations that our family holds a special place in our hearts for, and this is one! We are collecting items now through Dec 1., and will present all donations the first weekend in December. We will not be accepting any monetary donations for the house, as all monetary donations can be made via their website!❤️

💙 We will also be looking forward to doing fundraising for HLH Heroes Foundation in the near future as well! Another org...
10/14/2025

💙 We will also be looking forward to doing fundraising for HLH Heroes Foundation in the near future as well! Another organization who has done so much for us and so many other HLH families. If you’re looking to donate somewhere this holiday season, consider one of these amazing foundations!

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Pittsburgh, PA
15239

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