The Path Network

The Path Network PaTH is a patient-empowered clinical data research network in the Mid-Atlantic United States.

PaTH is a Clinical Research Network comprised of Boston Medical Center, Geisinger, Johns Hopkins University, Johns Hopkins Health System, Penn State College of Medicine, Penn State Milton S. Hershey Medical Center, RUSH, Temple Health System, Lewis Katz School of Medicine at Temple University, the University of Pittsburgh, UPMC and UPMC Health Plan, The Ohio State University, The Ohio State University Wexner Medical Center, University of Michigan, and Michigan Medicine. By working together as one network, we’re able to learn from larger and more diverse populations than a single health care system could. Further, we work directly with patients, care providers, and the larger health care community to better understand what’s truly relevant to patients and improve care delivery.

"Kidney transplant is only a treatment for a disease, not a cure"https://www.storybooth.pitt.edu/HealthStory.aspx/1E4E82...
03/13/2025

"Kidney transplant is only a treatment for a disease, not a cure"
https://www.storybooth.pitt.edu/HealthStory.aspx/1E4E82

A caregiver shares her story of her son's health declining because his kidney function started to decrease after having extremely high blood pressure, and genetic testing determined a kidney transplant was the only treatment for his condition.

PERSPECTIVE: Caregiver
29m 57s

"...with medical professionals...any pain I mention that is associated with me being a woman...has not been taken seriou...
03/11/2025

"...with medical professionals...any pain I mention that is associated with me being a woman...has not been taken seriously."
https://www.storybooth.pitt.edu/HealthStory.aspx/lAPfvs

This storyteller shares the challenges they've dealt with medical professionals when it comes to treatment around endometriosis and other gender related care.

PERSPECTIVE: Patient
23m 18s

"…keep trying, because it makes a difference."https://www.storybooth.pitt.edu/HealthStory.aspx/i1XuNlThis storyteller sh...
03/06/2025

"…keep trying, because it makes a difference."
https://www.storybooth.pitt.edu/HealthStory.aspx/i1XuNl

This storyteller shares their experience seeking appropriate and prompt treatment for Multiple sclerosis, over the last 20 years.

PERSPECTIVE: Patient
19m 18s

"She was willing to do the research, read studies that are specific to them."https://www.storybooth.pitt.edu/HealthStory...
03/04/2025

"She was willing to do the research, read studies that are specific to them."
https://www.storybooth.pitt.edu/HealthStory.aspx/K6l6LB

This storyteller is a mother of five, one of them having been diagnosed with Down Syndrome, listen as she shares the medical challenges in care when advocating for appropriate health care.

PERSPECTIVE: Caregiver
22m 16s

I got to fight for other individuals who have this disorderhttps://www.storybooth.pitt.edu/HealthStory.aspx/26CE71After ...
02/28/2025

I got to fight for other individuals who have this disorder
https://www.storybooth.pitt.edu/HealthStory.aspx/26CE71

After being diagnosed with a rare blood disorder, his storyteller talks about her journey and the importance of self-advocacy

RACE/ETHNICITY: Black, African American, African, or Afro-Caribbean
PERSPECTIVE: Patient
15m 02s

..you know there's always gonna be studies available...https://www.storybooth.pitt.edu/HealthStory.aspx/HSFMQjThis story...
02/27/2025

..you know there's always gonna be studies available...
https://www.storybooth.pitt.edu/HealthStory.aspx/HSFMQj

This storyteller shares their exeprince with being a research participant, navigating deadlines, the ease of access through the research registry and communication. with researchers.

RACE/ETHNICITY: Black, African American, African, or Afro-Caribbean
PERSPECTIVE: Participant
10m 35s

My story is about being a caretakerhttps://www.storybooth.pitt.edu/HealthStory.aspx/C4C188In this story, a woman shares ...
02/20/2025

My story is about being a caretaker
https://www.storybooth.pitt.edu/HealthStory.aspx/C4C188

In this story, a woman shares her experience as a caretaker for father, brother, and mother; she explains the importance of taking care of yourself while you focus on the health of others.

RACE/ETHNICITY: Black, African American, African, or Afro-Caribbean
PERSPECTIVE: Caregiver
09m 00s

...so I know now that I have to rest me body.https://www.storybooth.pitt.edu/HealthStory.aspx/pr4dRHThis storyteller sha...
02/13/2025

...so I know now that I have to rest me body.
https://www.storybooth.pitt.edu/HealthStory.aspx/pr4dRH

This storyteller shares their five year health journey to diagnosis for Cardiac Sarcoidosis; while the only consistent symptom was fainting, as heart failure became likely.

RACE/ETHNICITY: Black, African American, African, or Afro-Caribbean
PERSPECTIVE: Patient
20m 18s

...and I just feel more better about myself today, than I did in the past...https://www.storybooth.pitt.edu/HealthStory....
02/07/2025

...and I just feel more better about myself today, than I did in the past...
https://www.storybooth.pitt.edu/HealthStory.aspx/6cwLji

This storyteller shares their experience since the 90's on managing their HIV; challenges with adhering to medications and finding a medical professional with experience with LGBTQ+ related health concerns.

RACE/ETHNICITY: Black, African American, African, or Afro-Caribbean
PERSPECTIVE: Patient
16m 21s

Because of COVID...I found a new me, and I definitely like the new me.https://www.storybooth.pitt.edu/HealthStory.aspx/6...
02/06/2025

Because of COVID...I found a new me, and I definitely like the new me.
https://www.storybooth.pitt.edu/HealthStory.aspx/6nyNis

This storyteller shares how the COVID-19 pandemic made her felt not in control so she took it as a sign to quit smoking and improve her diet and lifestyle.

RACE/ETHNICITY: Black, African American, African, or Afro-Caribbean
PERSPECTIVE: Patient
14m 24s

Cancer is a mind, body, and spiritual experiencehttps://www.storybooth.pitt.edu/HealthStory.aspx/70A3C0This man shares h...
02/05/2025

Cancer is a mind, body, and spiritual experience
https://www.storybooth.pitt.edu/HealthStory.aspx/70A3C0
This man shares his emotional experience overcoming cancer by combining Eastern and Western medications.

RACE/ETHNICITY: Black, African American, African, or Afro-Caribbean
PERSPECTIVE: Patient
20m 36s

"The cost of medication, both personally and with patients, has been a part of the healthcare system that has frustrated...
01/30/2025

"The cost of medication, both personally and with patients, has been a part of the healthcare system that has frustrated me..."
https://www.storybooth.pitt.edu/HealthStory.aspx/2cZMTL

After trying 15 different medications with severe side effects for depression, a patient finally finds a treatment that works for her. Unfortunately, the cost of this medication is hard to afford despite having health insurance coverage. She shares her st

PERSPECTIVE: Patient
22m 17s

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