Changing Hemophilia

Changing Hemophilia Changing Hemophilia® is a community for people affected by hemophilia and rare bleeding disorders. Product Mention. Side Effects. Links and Tags. Medical Advice.

Terms of Use & Comment Guidelines

We’d like to be clear, direct, and up front about the restrictions within which the Changing Hemophilia® page must operate. The Changing Hemophilia® page exists to bring together the community of people, from patients to caregivers to friends and relations, whose lives are affected by hemophilia, and to offer support and education through that community. Because the page is sponsored and owned by Novo Nordisk, a pharmaceutical company, it is governed by FDA regulations and other federal laws. While it is the goal of the Changing Hemophilia® page to foster open communication and a candid exchange of ideas, stories, and sentiments, there is simply some content we are restricted from publishing, or allowing to be published, on the page. It is not our intention to censor our community members in any way; however, we must operate within the rules. The following Commenting Guidelines explain the restrictions of this page. Thank you for your understanding and for ensuring that your comments fit within these guidelines. While Novo Nordisk reserves the right to remove any posting at its sole discretion, we are working to foster communication and candor; in this spirit, we will only remove comments that violate these guidelines. Please contact us via private message with any questions or concerns.

1. Please don’t reference the products of any pharmaceutical company, whether positively or negatively. Important regulations govern exactly what can be said about products within the context of this page—it’s better to just leave them out of the conversation.

2. Facebook is not the appropriate forum for reporting side effects of prescription drugs. So that we can best deal with the information, please report side effects to us by calling 1-800-727-6500, or directly to the FDA by visiting www.fda.gov/medwatch or calling 1-800-FDA-1088.

3. While we do not endorse any page content other than our own, we must take care that all of it—including links to other pages and tags to other pages—is within the regulations that govern our page. Because we can’t take responsibility for the content on other websites, please do not post any links or tags on this page.

4. Vulgarity or Personal Attacks. The Changing Hemophilia® page is a community for all, without discrimination on the basis of ethnicity, race, religious affiliation, age, or gender orientation. It is a place of respect. We prohibit comments containing profanity or any hostile, harassing, or discriminatory language.

5. While we appreciate the community’s desire to help one another, and while we encourage sharing experiences, please leave the dispensing of medical advice to the medical professionals—and even if you are a medical professional, please leave it to an individual’s health care practitioner. Medical advice can have serious implications. We are all different, with different health histories and concerns. A treatment that worked for you or someone you know won’t necessarily work for someone else. In the interest of keeping everyone safe, please don’t post specific information about treatments, techniques, therapies, medications, etc.

6. Off Topic. We’d like the Changing Hemophilia® page to be a forum for conversation and for sharing experiences, and in that regard, this is a nebulous area; however, comments occasionally arise that are clearly unrelated to the topic, or are spam, or are promotions for goods or services. These comments are not allowed on the page.

7. Miscellaneous. In the event that a comment does not fit into one of these categories but nonetheless is not suitable for the Changing Hemophilia® page, Novo Nordisk reserves the right to remove any posting at its sole discretion.

Flying home for the holidays? For those who live with a bleeding disorder, a little advance preparation could save time ...
12/09/2025

Flying home for the holidays? For those who live with a bleeding disorder, a little advance preparation could save time and trouble on travel day. Here are a few tips to consider before navigating airport security.

For more tips on , check out https://www.changinghemophilia.com/managing-hemophilia/lifestyle-tips/be-prepared.html

Where are you traveling to this year?

© 2025 Novo Nordisk All rights reserved.
US25HRBD00406 November 2025

For people with rare bleeding disorders, it can feel like no one understands what they’re going through. That’s where ou...
12/03/2025

For people with rare bleeding disorders, it can feel like no one understands what they’re going through. That’s where our Rare Blood Community Liaisons (RBCLs) come in. They’re ready to help at any point in the journey with resources, perspective, and the kind of support that comes from someone who truly gets it.

Whether a person living with hemophilia is navigating treatment options or wants to be connected with someone who’s been there, an RBCL can provide support.

Ready to connect with an RBCL? Start a conversation at: https://www.changinghemophilia.com/ourcommitment/contact-us.html

© 2025 Novo Nordisk All rights reserved.
US25HRBD00345 October 2025

Changing Hemophilia® is for people living with or caring for someone with a bleeding disorder. Find hemophilia education, tips for managing bleeds, tools, resources, and more.

Happy Thanksgiving! Living with a bleeding disorder often requires the support of a team. This season, let your care tea...
11/26/2025

Happy Thanksgiving! Living with a bleeding disorder often requires the support of a team. This season, let your care team know how you feel about them. They’re probably as grateful for you as you are for them!

Speaking of care team, have you met your Rare Blood Community Liaison? RBCLs can provide one-on-one support, including product info, lifestyle education, and more. Meet yours at https://www.changinghemophilia.com/our-commitment/contact-us.html.

© 2025 Novo Nordisk All rights reserved.
US25HRBD00413 November 2025

Have a question? Contact a Novo Nordisk Hemophilia Community Liaison (HCL).

11/25/2025

Did you know the idea that "only men have hemophilia" is a myth? The truth is, women can have hemophilia, too. 𝘽𝙚𝙘𝙖𝙪𝙨𝙚 𝙎𝙝𝙚 𝙈𝙖𝙩𝙩𝙚𝙧𝙨 is a movement that helps them be seen—creating a platform for women to share their stories and help advocate for other women to receive the early diagnosis and appropriate treatment they deserve.

This video highlights barriers women have faced, including delayed diagnoses and underrepresentation, while spotlighting the strength, resilience, and advocacy of the community.

Through this effort, Novo Nordisk hopes to reframe the narrative around women living with hemophilia, fostering greater understanding and support among women and healthcare providers alike...𝘽𝙚𝙘𝙖𝙪𝙨𝙚 𝙎𝙝𝙚 𝙈𝙖𝙩𝙩𝙚𝙧𝙨.

Like or share to support this community!


© 2025 Novo Nordisk All rights reserved.
US25HRBD00457 December 2025

👩‍❤️‍👨 Dating with hemophilia? Yes, it can come with extrachallenges—but honesty, communication, and a littlecreativity ...
11/18/2025

👩‍❤️‍👨 Dating with hemophilia? Yes, it can come with extra
challenges—but honesty, communication, and a little
creativity go a long way. With the right mindset and the
right support, confidence and connection are within
reach. 💞

Discover more tips for dating with a rare bleeding
disorder🩸at: https://www.changinghemophilia.com/managing-hemophilia/life-stages.html

© 2025 Novo Nordisk All rights reserved.
US25HRBD00260 October 2025

If you live with a bleeding disorder, you already know that physical activity is important—as long as it’s done safely. ...
11/12/2025

If you live with a bleeding disorder, you already know that physical activity is important—as long as it’s done safely. Over at H-Fit, https://www.changinghemophilia.com/h-fit.html/, celebrity trainer Dolvett Quince leads 20 free hemophilia-friendly workouts built to match your mood and energy level. Work with your health care provider to create a fitness plan that’s right for you!

© 2025 Novo Nordisk All rights reserved.
US25HRBD00258 September 2025

View a series of exercise videos designed by celebrity trainer Dolvett Quince. Register or log into your free account to access the hemophilia-friendly workouts.

📕When students with hemophilia are moving to campus and settling into the semester, they've got a lot to be excited abou...
11/07/2025

📕When students with hemophilia are moving to campus and settling into the semester, they've got a lot to be excited about—and yes, a few extra things to plan for. But with the right prep, they can help manage their care all year.

Use this quick checklist to prepare for whatever adventures campus life brings: https://www.changinghemophilia.com/managing-hemophilia/life-stages.html

©2025 Novo Nordisk All rights reserved.
US25HRBD00346 October 2025

Changing Hemophilia® is for people living with or caring for someone with a bleeding disorder. Find hemophilia education, tips for managing bleeds, tools, resources, and more.

For folks who live with hemophilia, traveling smart means planning ahead and knowing what to do in case a bleed happens....
11/03/2025

For folks who live with hemophilia, traveling smart means planning ahead and knowing what to do in case a bleed happens. That includes:

• Bringing a copy of all prescriptions and labels that identify medicines
• Checking health insurance for travel restrictions
• Carrying a medical ID in case of emergency
• Building in extra time for strollers, wheelchairs, or crutches

Find more travel and preparation tips—including getting through TSA—at https://www.changinghemophilia.com/managing-hemophilia/lifestyle-tips/be-prepared.html

© 2025 Novo Nordisk All rights reserved.
US25HRBD00256 September 2025

Living with a bleeding disorder or caring for someone who is? Learn tips to help you prepare for medical emergencies, dental or medical procedures, or going on a trip.

10/30/2025

Spooky myths about hemophilia? You’ve probably heard a few. Here’s one we can bust:
👻 The Myth: Only men and boys can have hemophilia.
✨ The Fact: Women and girls can, too.

So why aren’t they getting the same level of care? According to the WFH, hemophilia is often overlooked or not recognized in women and girls. Their symptoms are too often dismissed as “normal.”

WFH guidance is clear: women, girls, and people assigned female at birth with hemophilia should be treated and managed the same as men and boys.

Want to bust more myths? Check out: https://www.changinghemophilia.com/hemophiliaeducation/hemophilia-basics.html

©2025 NovoNordisk All rights reserved.
US25HRBD00344 October 2025

Hope for Hemophilia is bringing the 2025 HOPE Conference to Orlando, Florida—will you be there? Join us in person or onl...
10/17/2025

Hope for Hemophilia is bringing the 2025 HOPE Conference to Orlando, Florida—will you be there? Join us in person or online from November 6–8 for three powerful days of education, connection, and inspiration for those living with bleeding disorders.

Sign up for updates and be the first to know about registration at hopeforhemophilia.org. To learn more, connect with a Rare Blood Community Liaison (RBCL) at: https://www.changinghemophilia.com/ourcommitment/contact-us.html

© 2025 Novo Nordisk All rights reserved.
US25HRBD00259 October 2025

Headed to Colorado August 21-23 for the 77thannual National Bleeding Disorders Foundation conference?https://events.blee...
08/21/2025

Headed to Colorado August 21-23 for the 77th
annual National Bleeding Disorders Foundation conference?https://events.bleeding.org/website/80813/ will connect and empower the bleeding disorders community. Come see us at the Novo Nordisk booth—and maybe meet your RBCL in
person!

© 2025 Novo Nordisk All rights reserved.
US25HRBD00254 September 2025

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800 Scudders Mill Road
Plainsboro, NJ
08536

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Changing Hemophilia® is a community for people whose lives are affected by hemophilia and rare bleeding disorders.

Our mission is to create connections, so people can learn from the experience of others and gain the inspiration to live a fuller life. We support special events and scholarship opportunities. "Like" us to get all the updates and help spread the word.

Changing Hemophilia® is proudly sponsored by Novo Nordisk Inc.

US19HRBD00082 | May 2019

Terms of Use & Comment Guidelines