Carl JG Huber's Journey - Shaken Baby Syndrome Survivor

Carl JG Huber's Journey - Shaken Baby Syndrome Survivor The sole purpose of this page is to share the journey of my son, Carl, as a Shaken Baby survivor.

This wonderful & happy boy has been my strength every single time I look at his precious face and see that smile that he is so readily eager to give to all.

Today was Botox day for Carl 💛Not always the easiest appointment… but he did SO good and I’m so proud of him 🥹✨(And yes…...
04/22/2026

Today was Botox day for Carl 💛

Not always the easiest appointment… but he did SO good and I’m so proud of him 🥹✨
(And yes… we celebrated like it was a whole event 🎉)

These moments may look simple, but they’re big wins for us.
Strength, patience, and a whole lot of love wrapped into one day.

Grateful for days like this… and for my little family who makes everything worth it 💛

Today, we celebrate 21 years of strength, resilience, and pure joy 💙This is my eldest, Carl — a true survivor, a fighter...
01/15/2026

Today, we celebrate 21 years of strength, resilience, and pure joy 💙

This is my eldest, Carl — a true survivor, a fighter, and one of the greatest teachers of love and perseverance I know.

Carl is a Shaken Baby Syndrome (SBS) survivor, a form of abusive head trauma that happens when an infant is shaken. The effects can be lifelong… but so can the strength that follows.

Every smile, every laugh, every milestone is a reminder of just how powerful the human spirit is.

21 years of defying expectations.
21 years of growth, courage, and unconditional love.
21 years of showing the world that survival is only the beginning.

We celebrate YOU, Carl — your life, your light, and the hope you represent for so many families 💙✨

Always proud. Always grateful. Always amazed.

10/15/2025

Good evening everyone! I just want to share here how I change Carl's Mini One Balloon Button from this morning. I normally change his Gtube every month. It's pretty easy. I know some might cringed on how it's done. I promise it's not hurting him at all and it's so fast and easy to do.

Happy Tuesday friends!

09/02/2025

A little long but so worth watching Carl and his sister having fun during the Open House last Friday. He can't wait to go back to school tomorrow. 🥰

Carl had fun!!!!!!
07/30/2025

Carl had fun!!!!!!

06/14/2025

Carl loves Pinkalicious music 😆 🤣 😂.

Carl had his hair trimmed today....I think he likes it! 😉
05/04/2025

Carl had his hair trimmed today....I think he likes it! 😉

Botox Update: Since Carl's Botox injections in his arms were in, this handsome boy had been having his arms more down th...
04/26/2025

Botox Update:
Since Carl's Botox injections in his arms were in, this handsome boy had been having his arms more down than crunched up in his chest and it's amazing to see. His skin in his inside elbow has been aired out more now that his arms are mostly down, so future rashes in there are not a worry anymore, not that he had rashes before because we always watched it. But it just such a great thing to see that he is so relaxb with it now. I think our decision to have it was the right choice. 🥰

Celebrating my 6th year on Facebook. Thank you for your continuing support. I could never have made it without you. 🙏🤗🎉 ...
04/16/2025

Celebrating my 6th year on Facebook. Thank you for your continuing support. I could never have made it without you. 🙏🤗🎉

Good afternoon ya'll! Carl had a week long Spring Break vacation this week and so he's just chilling around the house fo...
04/16/2025

Good afternoon ya'll! Carl had a week long Spring Break vacation this week and so he's just chilling around the house for the most part. Had the wheelchair van fixed from Monday till yesterday so it's all set for his Botox appointment tomorrow afternoon. We had the FB scare just awhile ago, we thought that Carl's page was deleted, and it was just deactivated. HOW, you may ask? We have no idea but thankful that Carl's page is totally not deleted or taken down. Whew! It was a huge relief!!!

How has your Wednesday treating ya'll so far? Hope ya'll have had a great day so far.

Carl was giving everyone a hard time today. He was a grump since this morning but once my van hit the driveway back home...
04/03/2025

Carl was giving everyone a hard time today. He was a grump since this morning but once my van hit the driveway back home, he started laughing. Got one quick pic of his precious smile! 😍 Love you bud!

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59 Longmeadow Drive
Pomfret Center, CT
06259

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