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Vestibular Disorders Association (VEDA)

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Portland, OR
Vestibular Disorders Association (VEDA)

VeDA's mission is to support and empower vestibular patients on their journey back to balance.

We envision a world where vestibular disorders are widely recognized, rapidly diagnosed and effectively treated so patients can restore balance and regain life.

12/13/2025

People may see the smile, the outfit, the moment —
but not the work it took to get there.

Living with vestibular symptoms means constantly gauging lighting… noise… motion… space… and whether your nervous system can handle it today.

Being seen isn’t about pity.
It’s about recognition.

Just because it’s invisible — doesn’t mean it’s easy. 💛

12/12/2025

Holiday tables are full of foods that can stir up symptoms in sensitive nervous systems. 🎄

Wine, chocolate, aged cheeses, smoked meats, rich sauces, and holiday coffee drinks can contain compounds (like tyramine, histamine, caffeine, and MSG) that influence brain signaling. 🍷🍫🧀☕

Not everyone reacts to these.
Some people have one trigger, some have several, and some have none at all.

So if your symptoms feel louder after certain holiday foods — it’s not “in your head.”

Your nervous system may just be responding to the chemistry behind the celebration. 🧠

12/11/2025

PPPD is treatable — not hopeless. ✨

There’s no single “quick fix” because PPPD affects multiple systems in the brain. But with the right combination of therapies — people DO get better.

VRT + CBT + (for some) medications → this is the most evidence-based approach we have. 🧠

The brain is plastic.
It can relearn motion, recalibrate threat, and build new patterns. 🔄

If you’ve been told to “just live with it” — that’s not the full story.

PPPD recovery is possible.
And you deserve a care plan that reflects that. 💛

Learn More: https://vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/persistent-postural-perceptual-dizziness/

12/10/2025

Not every day is the same for the vestibular system — and that’s okay. Some days feel grounded, some days feel wobbly, and some days are simply about getting through.

Wherever you are today — your pace is valid.
Your boundaries are valid.
Your experience is valid.

This community understands what your nervous system is working through — even when the rest of the world doesn’t see it. 💛

12/08/2025

December can be a perfect storm for vestibular symptoms.

Bright holiday lighting, crowded stores, loud parties, travel, motion, and winter illnesses can all overload the balance system — fast.

If your symptoms feel louder this month, it doesn’t mean you’re going backwards.
It means your nervous system is responding to a high-stimulus season.

You’re not imagining it.
Your body is reacting.

12/07/2025

Vestibular migraine is more than a headache.

For many people, the biggest symptom is dizziness — not pain.
And it can show up as motion sensitivity, pressure, visual overload, or feeling “off,” even when your head doesn’t hurt.

Your symptoms are real — and they are neurological, not imagined. 💛

Learn more: https://vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/vestibular-migraine

12/06/2025

Vestibular disorders can’t always be seen on standard imaging — so diagnosis usually requires a combination of testing, symptom history, and clinical evaluation.

Common tests include:
👁️ ENG/VNG – eye movements + inner ear response
🌀 Rotational testing – how eyes and ears sync
🎧 VEMP – how the inner ear detects sound/gravity
⚖️ Posturography – how the body maintains balance

It takes the right testing to understand how your balance system is actually functioning.

Diagnosis is not “simple” — it’s sensory science.

12/05/2025

Setting boundaries during the holidays isn’t about being difficult — it’s about staying regulated in a season that can be overwhelming for the nervous system. 🎄

Bright lights, noise, motion, crowds, fast pace — these can increase symptoms fast.

Boundaries don’t mean rejection.
They mean protection.

If someone with a vestibular disorder steps away, leaves early, or needs quiet — it’s not personal.

It’s how their brain stays safe.

12/04/2025

It’s not about skipping joy — it’s about creating joy your body can handle. ✨

Quiet moments count.
Small celebrations count.
Gentle participation counts.

You don’t have to match anyone else’s pace this season.

Your version of joy is still joy.

12/03/2025

Living with bilateral vestibulopathy (BVP)?

A research team at Maastricht University is urgently seeking participants for a 1-hour online interview + survey to help improve how BVP is understood and measured.

If you’re 18+ and diagnosed with BVP, this is a meaningful opportunity to contribute to research that could benefit our whole vestibular community.

Interested? Email michaela.de.kock@mumc.nl
Sharing this post also helps tremendously. 💙

12/02/2025

Today is Giving Tuesday — the global day of generosity where small acts make a massive impact. 💛

When you support VeDA, you’re not just donating to a nonprofit — you’re helping real people get answers.
You’re helping someone finally find the right specialist.
You’re helping someone feel less alone during the scariest, most confusing season of their health journey.

Vestibular disorders are invisible — but your support makes them impossible to ignore. 👁️

Your gift today helps more patients get educated, find community, and access life-changing resources.

Give today and be part of this movement:
https://secure.vestibular.org/forms/givingtuesday2025

Address

5018 NE 15th Avenue
Portland, OR
97211

Opening Hours

Monday	8:30am - 2:30pm
Tuesday	8:30am - 2:30pm
Wednesday	8:30am - 2:30pm
Thursday	8:30am - 2:30pm
Friday	8:30am - 2:30pm

Telephone

+15032949085

Website

https://vestibular.org/

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VeDA Started As A Support Group

In 1983 a group of vestibular patients and professional providers from Good Samaritan Hospital in Portland, Oregon, established a support group named the "Dizziness and Balance Disorders Association of America” (DBDAA). The organizers adopted the following goals:

To collect and disseminate information about vestibular disorders and related topics.

To educate the public and health professionals about vestibular disorders and their effects.