Handling Rare and Hard to Understand Diseases

Handling Rare and Hard to Understand Diseases TRYING TO EDUCATE AND UPLIFT OTHERS
EVERYDAY ON AN ONGOING BASIS TO UNDERSTAND HARD TO HANDLE AND

YOU ARE MORE THAN ANY ILLNESS DO NOT EVER ALLOW IT, TO DEFINE WHO YOU REALLY ARE. 🥰
06/23/2024

YOU ARE MORE THAN ANY ILLNESS
DO NOT EVER ALLOW IT, TO DEFINE WHO YOU REALLY ARE. 🥰

NEVER LET YOUR ILLNESS DICTATE WHO YOU ARE NOR WHO YOU ARE TO BECOME !
06/19/2024

NEVER LET YOUR ILLNESS DICTATE WHO YOU ARE NOR WHO YOU ARE TO BECOME !

04/13/2024

THOUGHT OF THE DAY....
WHY IS IT IN COINS, IF THERE IS A MISTAKE WE PAY 10 TIMES THE VALUE BECAUSE IT IS MORE VALUABLE? YET WHEN WE HAVE A FAULT OR PERHAPS ARE NOT FULLY CAPABLE WE AUTOMATICALLY FEEL THAT WE ARE LESS THAN?
GO OUT THERE AND PROVE THAT SOMETIMES LESS IS MORE >SHINE ON !

04/06/2024

I AM COPYING FOR A FRIEND...
ALSO BECAUSE I HAVE AT LEASTE 14 OF THESE AND MANY MORE RARE ONES TOO...

💞~🥰~💞
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Hot tip, if you get into a committed relationship with someone that has chronic health issues please please please understand that that person may not be able to do anything for themselves for weeks to months at a time and a large burden is going to fall on you. Take the time to make sure you're able to handle it before you commit.
I didnt ask for my body to fail.
My favorite quote from my doctor was, “it can’t really be that bad if you are still working and doing everything you do. “ I told him I didn’t know I had a choice. 🤷🏻‍♀️
Years in pain, tired and the many changes in me for no reason or apparent reason ... Hiding everything from someone else, pretending to be doing better than you are; until it no longer works. No matter how strong you want to be.
Then the moment comes when they tell you what you have ... You have mixed feelings: you finally know what you have, but how do you deal with it?
Lack of encouragement, wanting to lie down, taking medication frequently; having a whole pharmacy on top of the nightstand.
Then, the daily responses, "Why did you get so fat?" “I have this great diet, if you just go out and exercised.
That once beautiful hair of yours now awful and it falls out.
What happened to you??....
This is all true and that's why I'm sharing it!
Silent and invisible diseases do exist ...
When you have an invisible disease it is difficult to argue from your perspective with ignorant people.
Life takes a lot of turns !!!
Tired of being told:
* Did you go to the doctor?
* Have you tried this?
* Have you tried that?
* I don’t know what else we can do for you...
Yes! I tried and still try everything !!!
Doctors say this disease is forever. That I will not heal. However, I am not giving up, but I want to make others realize:
* A nap will not cure me but it will help me ...
* I am not lazy, I take medication and it sometimes makes me sleepy.
* I am not angry but sometimes cranky with pain.
* I struggle daily with pain, mobility problems, fatigue, the criticism of my environment.
Most frustratingly, people look at me and say, "It can't be that bad; you look good "
Despite the fact that my body is experiencing excruciating pain everywhere, of course I look good, I always try to look good, it is an "invisible" disease.
This disease affects me physically, mentally and emotionally. Because rare autoimmune diseases cannot be seen, but we feel them.
And they are there ... Silent attack but extra painful.
I AM LOOKING AT THOSE WHO TAKE TIME TO READ THIS POST TO THE END.
The following request is sent to the post:
Please, for me and in honor of someone who fights against:
-ALS
-Ankylosing Spondylitis
-Lupus
-MS
-POTS
-Dysautonomia
-Crohn’s Disease
-Dementia
-Alzheimer’s
- Ménière’s Disease
-Addisons Disease
-Hashimotos Disease
-Graves Disease
-FND
-Depression
-Anxiety
-Autoimmune disease
-Sjogrens syndrome
-Polycystic o***y syndrome.
-Rheumatoid arthritis.
-Chronic pain
-Endometriosis.
-migraines
-Multiple sclerosis.
-Myasthenia gravis.
-Pulmonary hypertension.
-Epstein Barr syndrome.
-Chronic fatigue syndrome.
-Diabetes
-adenomyosis
-Fibromyalgia.
-Raynaud and Scleroderma.
-Neuralgia of the trigeminal
-Epilepsy
-Cancer
-Hypothyroidism
-Arachnoiditis
-NEAD
-Vasculitis
-COPD
-PMDD
-GERD
-Alpha 1 antitrypsin deficiency
-Gastroparesis
-Cirrhosis of the liver
-Coronary Artery Disease
-Kidney Failure
-Arthritis
or some other disease you don't see.
I would like 5 of my friends to post (not share) this message to show that you are always there when that someone needs to talk.
In support of a friend, a family member who is fighting any of these diseases. Just say “done”❤️

03/14/2024

I AM SENDING LOVE 💞 AND LIGHT✨✨✨TO ALL OF U...
U WILL NEVER KNOW JUST HOW MUCH I TRULY DO THINK OF ALL OF U..💞💞💞SENDING U MAGIKAL* THOUGHTS OF GRATITUDE AND PEACE.✌.. KNOWING THAT UR TIME HAS COME TO BLOOM 🌹🌹🌹AND BLOSSOM INTO THE WHO'S YOU WERE MEANT TO BE.💞💞💞
BE LOVE 💞BE BEAUTY 🌹 BE AWESOMENESS. SHARED ~ BE ANYTHING THAT SHINES ✨ BE ANY AND ALL LOVE..💞BE Y O U
BE THE KIND OF PERSON.. THAT U WOULD LOVE TO BE ...
SAY.. "HEY THAT IS ME!" ~~ BE ENDLESS LOVE POSSIBILITIES..💞✨🌹💜✌
I HAVE BEEN WATCHING YOU ALL WITH SO MUCH POSITIVE💖 POSTS, SHARING YOUR LOVE AS WELL...
BE GRATITUDE WITHOUT AN END..💞..
BE A HERO..🥰.TO SOMEONE THAT MATTERS..
I MAY BE ILL. EVEN HAVE SOME BRAIN TRAUMA.. BUT I AM DEFINITELY 💞NOT GOING TO LET IT ~DEFINE~ WHO I AM..💞 I AM LOVE.💞AND ALL LOVE MEANS..~LOVE HEALS 🌹 IT RISES ABOVE ALL THE NEGAITIVE💞
IT SENDS A POWERFUL MESSAGE TO ALL THOSE WHO CAN HEAR IT~✌️
I AM A SURVIOR!
I AM EMPOWERED BY THE LOVE💞 AND LIGHT✨ IN WHICH I HOLD SO VERY DEAR,
AN INFINATEE GIFT FROM THE CREATOR ABOVE..✨
I AM EMENCELY GRATEFUL FOR EACH AND EVERY ONE OF YOU!
EACH AND EVERY DAY~!
💞💜💞

03/03/2024

I DO HOPE YOU ALL ARE HAVING A VERY BLESSED AND LOVE FILLED DAY..💞✨💜.

02/17/2024

GOOD AND WONDERFUL MORNING, AFTERNOON OR EVENING, ACCORDING ON WHERE YOU ARE IN THE TIME ZONES...🥰
BRIGHTEST✨ BLESSINGS ✝️FOR ALL OF THOSE THAT I LOVE AS IF THEY WERE MY VERY OWN FAMILY..💞
BLESSING YOU ALL WITH THE JOY AND WISDOM, PEACE OF MIND, LOVE OF OTHERS..GRATITUDE FOR ALL OUR BOUNTY..IN LOVE AND LIGHT*💖
THESE DAYS, I SEE SO VERY MUCH LIGHT✨IN MOST OF YOU, I FILLS MY HEART TO BE WITNESS TO SO MUCH LOVE AND GRATITUDE...💞
YET , MANY STILL STUGGLE WITH ILLNESS, SADNESS AND LOSS...
FOR THIS I AM SORRY...🥰
MAY THE DAYS AHEAD BE BLESSED WITH KINDNESS AND GRATITUDE FROM OUR HEARTS TOWARDS ONE ANOTHER...☮️
AND MAY OUR CHILDRENS HEARTACHES BE LESSENED AS THEY STIVE TO LEARN THAT THEY ARE LOVED, THEY DO NOT NEED TO BE PERFECT, 😊JUST LEARN TO LOVE THEMSELVES AND THE BEAUTY OF LOVING OTHERS WILL FOLLOW. 💓
BLESS YOU ALL, AS YOU CONTINUE TO GROW IN THE LOVE AND LIGHT* OF THE CREATORS LOVE 🥰💖🤍💫🌷
THABK YOU,
LINDA LEE 🥀

It is becoming more apparent to me that being alone has great Possibilites! Unfortunately , I am never alone....
02/16/2024

It is becoming more apparent to me that being alone has great Possibilites!
Unfortunately , I am never alone....

Brightest blessingsI would like to congratulate everyone in this beautiful family of light for being there for others wh...
01/22/2024

Brightest blessings
I would like to congratulate everyone in this beautiful family of light for being there for others who are in pain and suffering
It is a beautiful thing to recognize another's pain through empathy and try to uplift them and encourage them and let them know that they're not alone
Airing out your dirty laundry is one thing and I do not think that my circle of friends do that but other people do on on social media
Therefore giving social media bad rap
Everybody I know who's on my page or within my circle of love and light I believe understands that this is who we are we are here to express when we are in pain so that others can help us to understand to uplift to uphold to encourage and to help to heal
We are after all healers each and every one of us and we are also compassionate spiritual advisors to help others so that they know they're not alone.
I apologize for not being on as much
I have been going through something I've never gone through before and I've been through a lot.
I just want to thank you all for the prayers for thinking of me, I would like to thank you all for praying and remembering those others and need of prayer.
After all this is one world and we are all in it. We are all part of this big beautiful place of love and light.
Bless you all and have a very beautiful and amazing rest of your day evening or morning.
Much much love
So I'm going to have an appt, in a few minutes for annual review with HCP,
I shall be seeing you all soon after....

01/20/2024

WHEN WILL THE COLD AND ITCHING STOP?
BRIGHTEST BLESSINGS TO ALL. 💖
DAY 13 OF "NO MORE FUN" !
STILL HANGING IN THERE AS SO MANY OF US ARE ILL AT THIS TIME. 🥲
I SEND OUT HOPE, AND LOVE...ENCOURAGEMENT THAT IT SHALL GET BETTER !
LET US ALL SAY A SILENT PRAYER AFTER READING THIS TO HEAL OUR FAMILIES AND FRIENDS, 😇🙏
IT SHALL BE DONE !
THANK YOU AND HAVE A VERY BLESSED DAY !💖

01/17/2024

HEY, BRIGHTEST BLESSINGS TO EVERYONE OUT THERE ! HAVE A GREAT DAY OR EVENING....
BE KIND, BE LOVE....
💜🤩♥

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WE ARE HERE TO LEARN.

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