OHSU UCEDD Community Partners Council (CPC)

10/07/2025

October is Awareness Month

Augmentative and alternative communication (AAC) helps millions of people around the world who cannot rely on speech alone to communicate. Learn what you can do to create more inclusive environments where all voices are heard and understood.

10/06/2025

Does your organization host virtual meetings with folks that need or use augmentative and alternative communication ( ) to communicate? Make your meetings more with these tips for online meetings with AAC users, by AAC users: https://communicationfirst.org/best-practices-for-online-meetings/



Communication First

When planning for meaningful inclusion and participation of our community

10/04/2025

Take control of your health care during !

The Taking Charge of My Health Care Toolkit is for people with intellectual or developmental disability who want to learn about being self-advocates for their health. It has helpful information like worksheets and videos to help you make decisions and get your needs met.

Check out the toolkit here: https://www.ohsu.edu/oregon-office-on-disability-and-health/taking-charge-my-health-care-toolkit

Haga clic aquí para ver el kit de herramientas en español: https://www.ohsu.edu/oregon-office-on-disability-and-health/taking-charge-my-health-care-toolkit

The “Taking Charge of My Health Care” project is a toolkit designed to provide health and healthcare advocacy education and resources for people with intellectual and developmental disabilities (I/DD) and those who support them.

10/02/2025

Celebrate the contributions of Americans with disabilities this National Disability Awareness Month by learning about the history of disability employment (including how UCEDDs helped lead early change!). Register for this webinar hosted by our national network (Oct. 28 at 2:00 p.m. ET): http://bit.ly/431CPeW

Association of University Centers on Disabilities

Meet Allan Bergman!

Former ARC CEO & longtime disability advocate, Allan joins us to unpack the history of disability employment and how UCEDDs led early change.

Don’t miss this powerful conversation.
🗓️ Oct 28 | 2–3 PM ET

🔗 Register now: http://bit.ly/431CPeW

09/22/2025

Join us next week for the Sexuality Education for Users Mini Webinar Series!

In this two-part online webinar series, special education teachers who work with and aged youth will learn about how to offer s*x ed to augmentative and alternative communication (AAC) users directly from AAC users themselves.

September 29th 9-10:30 a.m. PDT and
September 30th 3-4:30 p.m. PDT

Learn more and register: https://www.ohsu.edu/university-center-excellence-development-disability/s*xuality-education-aac-users-mini-webinar

[ID: Young adult in green jacket talks with student in blue shirt using AAC device and smiles.]

09/16/2025

Join Upstream Access’ Community Storytelling Series Our Preparedness, Our Power: Stories of Individual and Collective Resilience: https://qrco.de/Upstream

All sessions are on Thursdays, 12–1:30 pm (Pacific) On Zoom | Interpretation: Spanish, ASL, and CART captions in English and Spanish.

JOIN US and celebrate our 2-year anniversary!

Upstream Access is excited to invite you to our Community Storytelling Series, created in collaboration with the Partnership for Inclusive Disaster Strategies.

This three-part webinar series shines a light on the experiences of disabled people in emergency preparedness. Each session is a storytelling panel where lived stories guide us toward equity and resilience—real stories about evacuation, community resilience, and access to power. These conversations show what survival, equity, and justice truly mean.

All sessions are on Thursdays, 12–1:30 pm (PT) / 3-4:30 (ET)

On Zoom | Interpretation: Spanish, ASL, and CART captions in English and Spanish

Session 1: Pathways to Survival — The Right to Get Out
Thu, Oct 2
Panelists will share barriers they’ve faced in evacuation, why access is a human right, and how inclusive planning saves lives.

Session 2: Rooted at Home — Shelter, Safety & Community Care
Thu, Nov 6
Panelists will show how preparedness is collective, rooted in relationships, and strengthened through networks of care.

Session 3: Charged for Survival — Disability Stories of Tech & Power
Thu, Dec 4
Panelists will share how access to electricity is survival, strategies for staying connected, and why advocacy matters.

Register here: https://qrco.de/Upstream
Accessibility is a priority. Each session will include Spanish and ASL translation, along CART (real-time captioning). Please email admin@upstreamaccess.org if you need additional accommodations.

09/16/2025

Únete a la Serie de narración comunitaria de Upstream Access Nuestra preparación, nuestro poder: Historias de resiliencia individual y colectiva: https://qrco.de/Upstream

Todas las sesiones son los jueves, de 12:00 a 1:30 p. m. (hora del Pacífico) En Zoom | Interpretación: español, ASL y subtitulado en tiempo real (CART) en inglés y español.

JOIN US and celebrate our 2-year anniversary!

Upstream Access is excited to invite you to our Community Storytelling Series, created in collaboration with the Partnership for Inclusive Disaster Strategies.

This three-part webinar series shines a light on the experiences of disabled people in emergency preparedness. Each session is a storytelling panel where lived stories guide us toward equity and resilience—real stories about evacuation, community resilience, and access to power. These conversations show what survival, equity, and justice truly mean.

All sessions are on Thursdays, 12–1:30 pm (PT) / 3-4:30 (ET)

On Zoom | Interpretation: Spanish, ASL, and CART captions in English and Spanish

Session 1: Pathways to Survival — The Right to Get Out
Thu, Oct 2
Panelists will share barriers they’ve faced in evacuation, why access is a human right, and how inclusive planning saves lives.

Session 2: Rooted at Home — Shelter, Safety & Community Care
Thu, Nov 6
Panelists will show how preparedness is collective, rooted in relationships, and strengthened through networks of care.

Session 3: Charged for Survival — Disability Stories of Tech & Power
Thu, Dec 4
Panelists will share how access to electricity is survival, strategies for staying connected, and why advocacy matters.

Register here: https://qrco.de/Upstream
Accessibility is a priority. Each session will include Spanish and ASL translation, along CART (real-time captioning). Please email admin@upstreamaccess.org if you need additional accommodations.

09/14/2025

Now available! New on-demand course for care professionals -
Accessible Mental Health Care Part 1: Improving Mental Health Care for Clients with Intellectual and Developmental Disabilities

Are you a mental health care professional? Earn CME credit with this foundational course that prepares mental health professionals to provide accessible care to clients with intellectual and developmental disabilities and co-occurring mental health diagnoses.

Learn more and register: https://www.ohsu.edu/oregon-office-on-disability-and-health/mental-health-provider-training-program

Note: This course is based on a live webinar previously offered by the Oregon Office on Disability and Health (OODH).
Part 2: Mental Health Assessment and Treatment for Clients with Intellectual and Developmental Disabilities will be available in the Fall of 2025.

[ID: A person with light skin and painted nails sits in a chair with hands folded and elbows resting on a light brown pillow in their lap.]



Photo by Kateryna Hliznitsova for Unsplash

09/10/2025

It's National Preparedness Month! People with disabilities may have more needs to think about in an emergency. Check out the Emergency Preparedness for People with Disabilities Resource Hub to learn about different types of disasters and how to prepare for them with toolkits, checklists, and helpful videos: https://www.ohsu.edu/university-center-excellence-development-disability/emergency-preparedness-people-disabilities



[ID: A collection of items that might be included in an emergency preparedness kit, such as bottled water, canned food, batteries, a portable radio, N-95 masks, a first aid kit, and a flashlight.]

Image by Roger Brown for Pexels

09/10/2025

It's Disability Voting Rights Week ( )! DVRW is about advocacy, celebrating community, and building power. Learn how you can get involved: https://www.aapd.com/disability-voting-rights-week/

🗳️ It's Disability Voting Rights Week (DVRW), a national nonpartisan event led by American Association of People with Disabilities and REV UP! This week is about standing up for disability voting rights, celebrating our community, and building power together.

Why it matters:

- People with disabilities are a powerful part of the voting population; we’re in every community and every political party.
- Yet too many barriers keep voters with disabilities from accessing their right to vote.
- DVRW was created by people with disabilities to raise awareness, advocate for removal of barriers, and make sure the community’s needs are represented.

👉🏾 Learn how you can take action at aapd.com/disability-voting-rights-week >

09/09/2025

Notice! Federal funding for critical family network support to navigate has been cut. Read more from CODSN and how sharing your story with legislators this week can help.