Common Variable immunodeficiency -cvid; Starting the Journey.

Common Variable immunodeficiency -cvid; Starting the Journey. I finally have a name for my invisible illness, after struggling for some 20+ years.

In between infusions, I spend my time talking to other people about infusions ;)

10/16/2025

do you know that antifa means "anti-fascist?

10/15/2025

Suki

Having a good laugh as Portland shows there is no war here… At least not being caused by us. Would be nice if those on t...
10/13/2025

Having a good laugh as Portland shows there is no war here… At least not being caused by us. Would be nice if those on the roof would stop hitting people with pepper balls and spraying people in the face with pepper spray. Surely there are more important things for them to attend to. (Like maybe going back to Washington and telling them to rehire the people at the CDC with people that actually know how to control disease. That's important to me. )

10/13/2025

I gained 23 followers, created 12 posts and received 8 reactions in the past 90 days! Thank you all for your continued support. I could not have done it without you. 🙏🤗🎉

A personal reminder to hydrate well before your infusions. I didn't, even though I know better, and I'm really paying fo...
10/12/2025

A personal reminder to hydrate well before your infusions. I didn't, even though I know better, and I'm really paying for it today! I started pounding water last night at 7 PM, with liquid IV in it. Today we had to stop the infusion and add a small bag of fluid. Today I've been working on another 32 ounces of water / liquid IV and I haven't quite finished it yet. Still have 400 mL to go. That I didn't throw up that was a big win today. It was scheduled last minute and I was in a funk the day before so I didn't bother. Never a good choice! Take my word for it. After a five hour nap I am finally ready to try some food.

10/10/2025

10/10/2025
What it's like to hear a pack of coyotes 
09/08/2025

What it's like to hear a pack of coyotes 

09/02/2025

Hello world! How is everyone? Yeah, I'm fine too 🥰 😉
It would be nice to hear from people!

07/20/2025

Chose to skip infusing this week. Listening to my body that is being very, very upset about all kinds of things. Body wisdom is important! 💕🥰

Just impressed another nurse!! 💕 said she has patients to share with- great! Here's my code for them!! 🥰
07/05/2025

Just impressed another nurse!! 💕 said she has patients to share with- great! Here's my code for them!! 🥰

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Portland, OR

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