Common Variable immunodeficiency -cvid; Starting the Journey.

11/23/2025

I am sure having a month! So I've been dealing with this and I'm currently recovering from the biopsy before the rest of the area is frozen off. It is benign at the moment, but it is pre-cancerous and I'm not gonna lie, this biopsy hurts like a b with an itch. 

11/23/2025

It's a really difficult concept that my immune system comes in a bottle and is given to me through an IV. I know it takes time to sink in and that people really don't remember it often because it's weird, let's face it.
So I say it often… My immune system comes to me in a bottle and then is given to me during a six hour infusion monthly for life. I don't mean just "for life" like - that's what keeps me alive, because it does - but I mean this is something I need *every month* for as long as I'm alive. That took a long time to sink in for me as well.
HUGE THANK YOU TO PLASMA DONORS
💕💕💕💕🥰🥰🥰💕💕💕💕🥰🥰🥰

11/14/2025

So beautiful- love these late-Autumn sunset colors.

11/08/2025

Starting a new brand- Gammaguard- fingers crossed. 🤞

11/08/2025

WARNING

https://primaryimmune.org/resources/news-articles/ig-safety-notices?utm_campaign=20251106&utm_source=facebook&utm_medium=social&utm_content=1762458241&fbclid=IwZnRzaAN7zyVleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEe9E2Bb702tKC_6azpP-fyHSXmPQkDOj3yu29S4M3klv1Jrq1u4rmEXYeCQZs_aem_PkPiAcJEhgioOjjfjaH0cA

Grifols is voluntarily withdrawing four lots of Gamunex-C, 20G and 40G vials, and one lot of GammaKed, 20G vial.

11/03/2025

Well... i'm supposed to be changing IGG brands and this decision was made with my doctor. So naturally the new order comes in (after waiting for the approval from Insurance) for my next scheduled infusion… And the brand did not get changed. 🤦‍♀️ From. The. Doctor. 🤷🏼‍♀️
I just... can't...even.

10/28/2025

Severe reactions happening, brands listed. Share with people who need to know. I have a theory that it is due to the influx of Covid antibodies from multiple sources, including different vaccines, different viral infections of different variations. For myself, I am finding the symptoms I already had are much worse, and I'm gaining more symptoms. I have also been researching this science on Covid, long Covid, and the immune system, as well as my own genome and what I am prone to.

10/28/2025

https://www.drugs.com/fda/immune-globulin-intravenous-igiv-immune-globulin-subcutaneous-igsc-lots-increased-reports-allergic-14771.html

10/22/2025

Another day at the office 💕🥰
&co

10/22/2025

Autumn has been beautiful! 

10/22/2025

Is this driving you nuts? (Obviously Portlanders only)