Just a Girl with Spots

Just a Girl with Spots Psoriasis Blog Hello, I’m Joni and I’m a girl with spots. Being a teenager with psoriasis made me feel secluded and incredibly self-conscious.

I was diagnosed with guttate psoriasis when I was 15 and recently diagnosed with psoriatic arthritis at 38. Growing up with this disease has impacted my confidence and relationship with my body. I refuse to let psoriasis define who I am, but it has given me a new purpose and community. It has helped me become more aware of what my body + mind need in order to live a happier, healthier life. I never want to let my diagnosis’s stop me from doing the things that bring me happiness. This blog is for sharing my personal experiences living with psoriasis and now psoriatic arthritis. I ask you to keep in mind that we are all different. Something that may work for me, may not be the best approach to take for you. I am not a health care professional, so I highly recommend that before starting any treatment you talk to your health care team.

01/20/2026

This diagnosis was a huge relief for me. For the first time, I felt like there were real explanations for why I think the way I do and why certain patterns have followed me for so long. It’s not an excuse, but it helps me understand my own thoughts and choices with more compassion for myself.

For years, I believed my struggles were personal failures, not patterns. Getting clarity around ADHD helped me see why certain things felt harder than they “should,” including how I’ve managed my psoriasis over the years.

Nothing is magically fixed. I’m still figuring out systems. I still mess up a lot. But understanding why things happen has replaced a lot of guilt with empathy and awareness.

Sometimes explanations don’t solve everything. But they do make the weight a little lighter.

Thanks for listening 😘🩷

01/20/2026

Literally every day. Some days more than others but always on my mind 🤯

After 27 years of living with psoriasis, most of what I know about wearing makeup has come from trial and error 💄💋Over t...
01/14/2026

After 27 years of living with psoriasis, most of what I know about wearing makeup has come from trial and error 💄💋Over time, I’ve learned which ingredients and textures tend to work with my skin and which ones only add more redness and irritation, which I already have enough of!

This is what works for me. I’d love to hear what works best for you 👇

01/05/2026

What started as a place to share my own highs, lows, good skin days, hard skin days, and real emotions turned into something bigger than me. 🩷

Blogging gave me confidence to talk openly about psoriasis and later PsA, helped others feel seen and not alone, and connected me to an entire chronic community who gets it.

Every email, comment, and message reminds me that when we share our stories, we create space for connection, understanding, and hope.

If you’ve ever thought about sharing your journey, do it. You never know who you might empower. ✨✌️

11/21/2025

The energy from HealtheVoices is still burning bright🔥

Being surrounded by advocates and caregivers who lead with honesty, courage, and heart was unbelievably moving 🩷

Feeling grateful for every moment and everyone who made this gathering feel so meaningful ✨

11/15/2025

Next time someone is rude about your chronic condition, ask them if they have a we**ie😂

I think she’s on to something🧌🩲

**ie

11/14/2025

Still glowing from . 💛
Thank you to the entire HealtheVoices team, Johnson & Johnson, every advocate, caregiver, partner, and human who made this event possible and so accessible.

The light in this community is unreal. Every smile, hug, story, laugh, cry, and brave moment has forever had an impact on me.

There’s something magical about being in a room where you can show up as your truest self and feel completely safe.

I’m deeply touched and forever changed. Thank you to all the advocates and caregivers for the strength, compassion, and vulnerability you bring into the world🩷

J&J paid for my travel expenses to attend HealtheVoices. All thoughts and opinions expressed here are my own.

I am beyond excited to be attending this weekend. I cannot wait to meet and learn from my fellow patient advocates❤️ It...
11/05/2025

I am beyond excited to be attending this weekend. I cannot wait to meet and learn from my fellow patient advocates❤️ It’s always a very special weekend!

J&J paid for my travel expenses to attend HealtheVoices. All thoughts and opinions expressed here are my own.

✨ Honoring World Psoriasis Day ✨A little reminder that psoriasis is so much more than skin deep, and so are you. 💗Some d...
10/30/2025

✨ Honoring World Psoriasis Day ✨
A little reminder that psoriasis is so much more than skin deep, and so are you. 💗

Some days it’s itchy, painful, and exhausting. Other days, it’s just part of you that you’ve learned to live with. Every day you deserve compassion from yourself and from others.

Today’s about awareness, but it’s also about connection. You’re not alone in this. You’re seen, understood, and part of a community that gets it, flakes, flare-ups, and all. 💪

✨ Living with psoriasis isn’t just about how it looks. The flares, the pain, the constant awareness of your body all add...
08/28/2025

✨ Living with psoriasis isn’t just about how it looks. The flares, the pain, the constant awareness of your body all add up, and it can take a real toll on confidence.

If you’ve ever felt like a stranger in your own skin, you’re not alone 🧡💜

How does psoriasis impact your confidence? Share below 👇 Your story might help someone else feel seen 👏

According to the National Psoriasis Foundation, there are 5 main types of psoriasis? Each affects the body differently:🔸...
08/25/2025

According to the National Psoriasis Foundation, there are 5 main types of psoriasis? Each affects the body differently:

🔸 Plaque (80%): Most common - raised, scaly patches often on elbows, knees, scalp
🔸 Inverse (25%): Smooth, inflamed skin in body folds like underarms, groin
🔸 Guttate (8%): Small, round spots typically on arms, legs, torso
🔸 Pustular (3%): Painful white bumps, may be localized or widespread
🔸 Erythrodermic (2%): RARE but serious - affects nearly whole body, seek immediate care

⚡ t’s possible to have more than one type of psoriasis at the same time, and you may experience different types throughout your lifetime.

Psoriasis can look different on different skin tones - from red with silver scales to purple patches. Location and symptoms vary by type, but all forms involve inflammation.

August is both Psoriasis Action Month and Summer Sun Safety Month, making it the perfect time to talk about sun protecti...
08/03/2025

August is both Psoriasis Action Month and Summer Sun Safety Month, making it the perfect time to talk about sun protection for sensitive skin☀️😎

Solbari, an Australian brand known for its UPF 50+ clothing, hats, and accessories, just became the first ever clothing company to receive the National Psoriasis Foundation’s Seal of Recognition 🧴👏

To celebrate their shiny new seal and Psoriasis Awareness Month, Solbari generously gifted me their Holiday Sun Hat, Long Sleeve T-Shirt, Long Sleeve Polo, and Luxe Hooded Full Zip Top, all with UPF 50+ protection.

If you’ve ever had a sunburn on a psoriasis flare, you know how incredibly miserable it can be. I’ve been spending time in my backyard feeling comfortable and protected in my gear 🌿☀️

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