Just a Girl with Spots

Just a Girl with Spots Psoriasis Blog Hello, I’m Joni and I’m a girl with spots. Being a teenager with psoriasis made me feel secluded and incredibly self-conscious.

I was diagnosed with guttate psoriasis when I was 15 and recently diagnosed with psoriatic arthritis at 38. Growing up with this disease has impacted my confidence and relationship with my body. I refuse to let psoriasis define who I am, but it has given me a new purpose and community. It has helped me become more aware of what my body + mind need in order to live a happier, healthier life. I neve

r want to let my diagnosis’s stop me from doing the things that bring me happiness. This blog is for sharing my personal experiences living with psoriasis and now psoriatic arthritis. I ask you to keep in mind that we are all different. Something that may work for me, may not be the best approach to take for you. I am not a health care professional, so I highly recommend that before starting any treatment you talk to your health care team.

04/10/2026

Every 8 weeks since January 2021, I take my shot of Tremfya at home to treat my psoriasis and psoriatic arthritis. There were 4 takes before I actually followed through on my countdown but it’s done!!

04/07/2026

Reminding myself to choose love, even on the hard days 🩷

04/02/2026

Nobody had a better Spring Break than Sonny ☀️💛✨

04/01/2026

Just when you think you’re hot🔥🔥 because you’ve mastered one diagnosis, your immune system decides to expand its portfolio 😂

27 years of psoriasis research and I genuinely thought I understood my body. Then psoriatic arthritis showed up and introduced me to a whole new world of flare fun and all new things to Google around the clock.

If you’re newly diagnosed with PsA and deep in the research spiral right now, you are not being dramatic and you’re not alone. This is genuinely complicated and stress and confusion is completely normal.

Drop your diagnosis below, psoriasis, PsA, or the whole combo deal. I love to connect with others who are also down the rabbit hole 🐰

03/31/2026

More advice/comments I’ve gotten about my psoriatic disease:

🧡 glad it’s not me
💜 you look like you’re suffering
💙 doing yoga will de-stress you and you’ll be cured
❤️ just don’t scratch
💛 everything happens for a reason
🩷 my [insert relative] had that and they used [insert cream name] and it cleared right up
💚ew, how do you live like that?

Add yours below👇

03/24/2026

When you’ve been on your kinda best behavior in a corporate setting and need to get your weird out.

03/19/2026

The emails will always still be there. 🤜💥

03/18/2026

You know what’s wild? Looking totally fine while your body is, as my daughters would say, crashing out. 💥

Sometimes there is no visible psoriasis flare but the PsA flare is an invisible beat down from inside. Just you, running on empty, smiling through it, and hoping nobody asks too much of you today.

If you’ve ever had to explain why you’re struggling when you “look fine”… hi 👋 same here, and also I’m really glad you’re here 🤗

Come say hi in the comments. I’m here to help support you in this crazy journey. 💜​​​​​​​​​​​​​​​​

03/17/2026

Nobody prepares you for the life that happens between the doctor appointments 😩🥱

The flares, the questions, the 2am rabbit holes. That’s what I’m here for and I’m thankful for this community that is here for me ✨

03/17/2026

Hi. I’m Joni, and I share what it actually looks like to live with psoriasis since 1998 and psoriatic arthritis since 2020. Not the highlight reel. Not the clinical rundown. The real, unresolved, still-figuring-it-out version. Follow along for the spots, the joints, the occasional wins, and everything in between appointments ✌️

03/11/2026

Haircuts look a little different when you have scalp psoriasis.

Tell or remind your stylist before you sit down.

If you’re in an active flare, ask them to wash gently. Plaques that get scratched can bleed.

If you’re not sure about the products they use, wash your hair before your appointment so you’re not starting with a sensitised scalp.

And if you’re getting a blowout, the heat near your scalp can irritate plaques. Ask them to keep it lower when they’re close to the roots.

Nothing super crazy to ask, but they make a real difference.
What would you add? 👇

03/10/2026

One of the hardest parts of autoimmune disease is the invisibility.

Pain doesn’t show up in photos.�
Fatigue doesn’t make noise in a room.
�Inflammation doesn’t announce itself.

But millions of people are quietly navigating it every day.

If you’re one of them, you’re not imagining it and you’re definitely not alone. 🫶🩷✨

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