JenJens World

JenJens World A mom who thought her world fell apart when she heard the diagnosis of cerebral palsy and autism with her baby but only realizing her world was just beginning

Update day 5:We are starting a new medicine that really is for one thing but they give it to people like Jensan to trigg...
09/15/2025

Update day 5:

We are starting a new medicine that really is for one thing but they give it to people like Jensan to trigger his brain that he is hungry.
They are lowering his feedings at night time to add a feeding after lunch to expand his belly to trigger his brain so that they can develop his hunger hormone again.
His new goal for the week is to take 10 bites of breakfast and 25 percent of eating lunch and dinner. The feeding disorder Dr said we could have outside food brought in from home and be put in the freezer or fridge since we are so far away. With that being said our release date is still up in the air.

Prayer request: that he eats 25 percent of his lunch and dinner.
His new medicine works and this feed helps expands his belly to make him hungry.

Yesterday was suppose to have been a normal visit to the nutritionist so I thought. With the words still echoing in my m...
09/12/2025

Yesterday was suppose to have been a normal visit to the nutritionist so I thought. With the words still echoing in my mind "if we dont do something today hes going to die" my heart is still on the floor of her office. Tonight we started our first feed from 7pm to 7am. We are praying it goes good

Jensan had his first family project to do for school. We asked him what he wanted to do for the letter p and was giving ...
09/03/2024

Jensan had his first family project to do for school. We asked him what he wanted to do for the letter p and was giving him some different options... he said "pppppp popcorn because p is for popcorn" I laughed but my mind went directly to the past 6 years he's been in therapy. The p sound was one of the first sounds he ever learned because he loved bubbles so much that they would say pppppp pop bubbles... he has always been a hard worker when it has came to therapy or school.

Tomorrow is a huge day for jenjen. He turns 6 years old along with starting kindergarten😭😭 babies sure don't keep. My he...
08/13/2024

Tomorrow is a huge day for jenjen. He turns 6 years old along with starting kindergarten😭😭 babies sure don't keep. My heart is not ok today

What a difference 6 years make??? But one thing that has stayed the same is this is his favorite chair to be rocked in b...
05/24/2024

What a difference 6 years make??? But one thing that has stayed the same is this is his favorite chair to be rocked in by mom.

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Princeton, KY
42445

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