JenJens World

JenJens World A mom who thought her world fell apart when she heard the diagnosis of cerebral palsy and autism with her baby but only realizing her world was just beginning

Update day 5:We are starting a new medicine that really is for one thing but they give it to people like Jensan to trigg...
09/15/2025

Update day 5:

We are starting a new medicine that really is for one thing but they give it to people like Jensan to trigger his brain that he is hungry.
They are lowering his feedings at night time to add a feeding after lunch to expand his belly to trigger his brain so that they can develop his hunger hormone again.
His new goal for the week is to take 10 bites of breakfast and 25 percent of eating lunch and dinner. The feeding disorder Dr said we could have outside food brought in from home and be put in the freezer or fridge since we are so far away. With that being said our release date is still up in the air.

Prayer request: that he eats 25 percent of his lunch and dinner.
His new medicine works and this feed helps expands his belly to make him hungry.

Yesterday was suppose to have been a normal visit to the nutritionist so I thought. With the words still echoing in my m...
09/12/2025

Yesterday was suppose to have been a normal visit to the nutritionist so I thought. With the words still echoing in my mind "if we dont do something today hes going to die" my heart is still on the floor of her office. Tonight we started our first feed from 7pm to 7am. We are praying it goes good

Jensan had his first family project to do for school. We asked him what he wanted to do for the letter p and was giving ...
09/03/2024

Jensan had his first family project to do for school. We asked him what he wanted to do for the letter p and was giving him some different options... he said "pppppp popcorn because p is for popcorn" I laughed but my mind went directly to the past 6 years he's been in therapy. The p sound was one of the first sounds he ever learned because he loved bubbles so much that they would say pppppp pop bubbles... he has always been a hard worker when it has came to therapy or school.

Tomorrow is a huge day for jenjen. He turns 6 years old along with starting kindergarten😭😭 babies sure don't keep. My he...
08/13/2024

Tomorrow is a huge day for jenjen. He turns 6 years old along with starting kindergarten😭😭 babies sure don't keep. My heart is not ok today

What a difference 6 years make??? But one thing that has stayed the same is this is his favorite chair to be rocked in b...
05/24/2024

What a difference 6 years make??? But one thing that has stayed the same is this is his favorite chair to be rocked in by mom.

5 years ago this boy was born on August 14th, He is a walking example of proving Dr's wrong and showing the miracles our...
08/21/2023

5 years ago this boy was born on August 14th,

He is a walking example of proving Dr's wrong and showing the miracles our God can do.

Specialist from Nortons children hospital which is ranked number 1 in KY told me that by the time jensan was 5 years old we would be walking into kindergarten with a very bad speech delay and a rag or bib attached to him because of the slobber he had that was so bad, he also told me that jensan would not thrive in school, told me that my baby would have significant delays, that his sensory disorder was so bad that basically he hurt when I would pick him up. And that he would be in therapies all of his life.

5 YEARS LATER: He does not slobber as bad any more, he is finishing his last year in preschool and well beyond ahead of some of his peers, he has 2 therapies at school and only attends speech outside of school, he does have a speech delay but it's so much better than what it was the day he started preschool 2 years ago. Don't get me wrong we have great days,good days,bad days,sad days, horrible days, he also does have some delays that he is working through, buttttt he is not the child that these Dr's. Prepared me for. I believe he is not this child that I was preparing for because I put all of my time into him. I gave up everything, put my baby child and husband on the back burner for jensan and all of his therapies,Dr's appt. Hospital stays because we lived in Nortons children hospital on floor 4 for a good 2 or 3 months off and on.

Life with Jensan hasn't been easy, there were times I didn't sleep for the first 4 months of his life, for the first 3 years he didn't stay with anyone because he lived on mommy milk all day and night long, we gave up on outings to restaurants, hotels, zoos and everything else that we use to do all the time with jesse because jensan screamed and cried and literally we had no peace or fun.

As he has gotten older he is so much fun, he is funny, he loves hotels,the beach,pools, he wants to be a big brother like Jesse so bad that he can't stand it, let's just be real he wants to be Jesse robert so bad that it literally hurts his heart sometimes. He is so smart and says the biggest words sometimes. He does have his moments where he cries all day or he destroys a room in a flash because he's angry.

Now I know all of his triggers, if that means we leave a setting with friends we leave, grocery pick up has became the best thing because Walmart is a trigger for him after so many minuets of being in there. Toys are taken away sometimes and put in the garage because it's too much for him.

To sum this up, that kid that the specialists was preparing me for has gave me a wild ride and somedays I feel like we haven't got off, BUT God had other plans, I believe that God gave me Jensan and all the struggles with him to show me its ok to see things with many colors, that is ok to be on your own time because you will catch up whether it's walking,talking,writing your name or any other milestone in life, it's OK if he gets excited and flaps and jumps up and down until you think he's going through the living room floor. Most of all God made me stronger,made me stand still, made me see that he is way bigger than any Dr. Out there and that his plans are bigger and better than ours.

💗ash

09/19/2022

If you are on my personal fb page than you know for the last 3 and half years has been so hard with jenjen. From not sleeping at all to the crying non stop. We are at year 4 and I will say it's gotten a little bit better for the most part.

Through this new life with autism that honestly feels like I've been dealing with it my whole life I have learned to love the little things, focus on the little things. It's taught me to forget about those mile stones because he will catch on sooner or later.

I've learned jenjen loves numbers! He wants to know what time it is and how far and long does it take to get somewhere. He loves to count and he loves to type the numbers in on the TV or phone. But one other thing he loves to do and that is to dance.

I'm so glad a friend caught this while we were at the football game the other night!

PICKING BATTLES:EVER have one of them days where you throw your hands up and say not today???Ever get tired of people te...
09/01/2022

PICKING BATTLES:

EVER have one of them days where you throw your hands up and say not today???

Ever get tired of people telling you it's going to get better or it won't last forever?

Guess what? Autism don't get better, it's always going to be like this, we will have good days, great days, bad days, worst days and sad days. Everyday is a new challenge for this kiddo and this family.

My 11 year old doesn't understand you have to pick battles, he thinks jenjen is getting away with the behavior or I love him more because I'm choosing a behavior over a reaction. What the 11 year year don't understand is I pick my battles with him too it's just a different scene for him.

Yesterday choosing a melt down over a Halloween costume or letting him wear It to speech.... guess what won?!?wearing the Halloween costume to speech!

Yesterday I felt like it was 4 years ago when all he has done is cried and screamed all day except this time we have added physical hurting.

My oldest child tells me I'm angry all the time or my husband already knows what kind of day I'm having when he gets home by the look on my face and you know what? I'm tired of that I'm tired of always being on edge and I'm tired of being tired in general.

Everyday I try to limit the melt down and yes majority of the day the melt down will win but Everyday I'm choosing a battle.

Mommas choose your battles, lesson the melt downs and go take a long hot bath at the end of the night and take it all to Jesus💗

My boy has been really sick since last Monday which means no speech and no first day of school yet. With sickness it alw...
08/31/2022

My boy has been really sick since last Monday which means no speech and no first day of school yet. With sickness it always makes his sensory act more worse than it is. So today he has cried ALL day because he didn't know how to say words he said, the straw at McDonald's was clear instead of white and he couldn't drink from a clear straw. He couldn't drink from a large cup it had to be a small cup and all of his words were absolutely awful and you couldn't make out what he was saying most of the day which made him more upset. We are praying Tomorrow is great and he is in the mood for school.

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