The #MEAction Network

The #MEAction Network is an international network of patients empowering each other to fight for health equity

is an international network of patients empowering each other to fight for health equality for Myalgic Encephalomyelitis (ME) also known as chronic fatigue syndrome.

Whether you are thinking I saved my spoons for this??? (read in sarcasm) or woo-hoo I saved my spoons for this!!!- we ha...
10/07/2025

Whether you are thinking I saved my spoons for this??? (read in sarcasm) or woo-hoo I saved my spoons for this!!!- we have the shirt for you! https://www.bonfire.com/saved-my-spoons-shirt/

Wear it as reminder to yourself and others that your spoons (energy, time) are precious and rare! Are you saving your spoons for something this fall?

New design created by volunteer JessNeedsToRest. Thank you so much, Jess!

We are a community that protests, educates, supports, researches, advocates and more. And we need your support to do that! A portion of each purchase goes to support MEAction’s many programs and efforts.

New to the spoon theory? It was created by Christine Miserandino. We encourage you to look up more info!



Design description: white text "I saved my spoons for this" with two spoon graphics and the hashtag

is quoted in the latest Mother Jones print edition!Our US Advocacy Director, Ben HsuBorger, is quoted discussing how t...
10/07/2025

is quoted in the latest Mother Jones print edition!

Our US Advocacy Director, Ben HsuBorger, is quoted discussing how the new Medicaid work requirements will create administrative burdens that make it more difficult for the most vulnerable to keep their Medicaid.

“A core approach that Republicans have here is tying everything up in administrative burdens and red tape to make things hard,” said Ben HsuBorger, US advocacy director for ­ , a nonprofit advocating for people with myalgic encephalomyelitis, also known as chronic fatigue syndrome. Some of them will be too sick to fight for an exemption from the work rules, HsuBorger predicts.”

Read the online article here: https://www.motherjones.com/politics/2025/09/medicaid-rfkjr-able-bodied-keyword-mother-tongue/


Have you signed up for our upcoming event on October 9th at 3 pm ET? We are having a FREE virtual book reading and Q & A...
10/04/2025

Have you signed up for our upcoming event on October 9th at 3 pm ET? We are having a FREE virtual book reading and Q & A with author Marisa Renee Lee about her book Grief is Love: Living with Loss. Register here: https://www.meaction.net/event-details/grief-is-love-book-reading-and-q-a

Everyone is welcome!

*Marisa Renee Lee will also be leading a workshop based on chronic illness and grief for our community on October 28th.

Hot off the presses: Near- Life Experiences: The Pillow Writers Anthology, Issue 2 is now available!Ready to curl up wit...
10/04/2025

Hot off the presses: Near- Life Experiences: The Pillow Writers Anthology, Issue 2 is now available!

Ready to curl up with a good book or watch a great video with readings by the authors? We can help with both! See full article here: https://www.meaction.net/post/now-available-near-life-experiences-the-pillow-writers-anthology-issue-2

The Pillow Writers group is back with their second issue and cannot be more proud! This issue features poems, stories, and essays by 28 writers who share more than 100 pages of their poetry, fiction and essays.

The Anthology is available in print and e-book The Pillow Writers have graciously determined that all proceeds from the sale of the Anthology will go to . We send our biggest thanks to the whole group!!

You can also check out our most recent Pillow Writers Salon. It was a heartfelt event and highlights work from this most recent issue. https://www.youtube.com/watch?v=IHcaiQ1sjIs

is honored to be supporters of the Pillow Writers. Their artistry with their words is a beautiful thing to witness. We know there will be more from this group in the future and we cannot wait!

We know that there are a lot of protests happening. Stay safe everyone! We have a protest guide available! https://www.m...
10/03/2025

We know that there are a lot of protests happening. Stay safe everyone! We have a protest guide available!https://www.meaction.net/_files/ugd/b5886a_fe193621603141e69f99eb59011e39e2.pdf

It has two parts. The first part focuses on planning an accessible protest and the second part helps those with complex chronic illness like M.E. who are planning to participate in an in person protest. It includes reminders of action you can take from home. Check it out!

We are loving seeing these new designs in action! Thanks to for designing and modeling for us! Check out an amazing sel...
10/02/2025

We are loving seeing these new designs in action! Thanks to for designing and modeling for us! Check out an amazing selection of chronic illness gear now available! https://www.bonfire.com/store/meaction-1/

Are you in low power mode? Pop on a low power mode shirt to remind yourself or those around you! Got your eye mask and electrolytes handy? Time to get serious about resting!

Maybe you are kicking a$$ and taking naps kind of person! We have the right gear for you! Check out the joggers, fleece hoodies, tees, water bottle, pouch, and totes!

A portion of each item you buy helps support MEAction so we can keep doing much-needed work in and for our community. ❤️

PLEASE NOTE- DATE CHANGE. We have moved this event to October 28 at 3 pm ET!*Join us October 28th for a virtual workshop...
10/02/2025

PLEASE NOTE- DATE CHANGE. We have moved this event to October 28 at 3 pm ET!*

Join us October 28th for a virtual workshop- Dealing with Grief and Chronic Illness with Marisa Renee Lee. Register here: https://ow.ly/EAX250X5j5z

We know that grief is a universal experience that impacts individuals in profound and often unexpected ways, especially those who are dealing with the grief that having a complex chronic illness can bring into our lives. Marisa Renee Lee’s bestseller, Grief is Love: Living with Loss, captures the essence of grief as an expression of love and provides insights into navigating this complex and lifelong journey.

Tickets to this workshop are available for a suggested donation of whatever you can safely give, starting at $1.00. The suggested donation price helps to cover the cost of providing virtual events. Plus, it allows us to continue our advocacy work and host more events in the future.

If you are not able to purchase a ticket for a suggested donation, please fill out this form and we will send you a link to the talk free of charge. https://ow.ly/VtUp50X5j5B

*If you already purchased a ticket, you should have received an email!

We know there is a lot going on in the world right now! This is your reminder to stop and take at least 3 deep breaths. ...
10/01/2025

We know there is a lot going on in the world right now! This is your reminder to stop and take at least 3 deep breaths. Feel the surface beneath you. Sink into it. Inhale for 4, exhale for 6. Repeat as often as needed.

Take care of you! Know you are loved, valued, and needed. Leave a comment if you need a little extra love sent your way or just want to share with others.

is pleased to announce a new publication co-authored by Jaime Seltzer, ’s Scientific Director: Managing myalgic ence...
10/01/2025

is pleased to announce a new publication co-authored by Jaime Seltzer, ’s Scientific Director: Managing myalgic encephalomyelitis/chronic fatigue syndrome: a new narrative. This chapter in the Elsevier textbook The Scientific Basis of Fatigue was co-authored with affiliates from Mayo Clinic Rochester and the Bateman Horne Center.

The Scientific Basis of Fatigue provides a comprehensive reference to fatigue as a symptom; it’s divided into seven sections, two of which detail distinct diseases and disorders where fatigue is a feature, including ME/CFS, COVID, multiple sclerosis, stroke, and Parkinson’s Disease. Distinctions between physical and mental fatigue, current research on molecular and cellular aspects and models of fatigue, and options for diagnosis and treatment are all featured in sections of this comprehensive textbook. The release date for the textbook is today!

Congratulations to Stephanie Grach, Jennifer Bell, Ravindra Ganesh, Brayden Yellman, and Jaime Seltzer for their important work championing ME/CFS medical education!

Researchers and medical providers who read this chapter will get a grounding in diagnosis and treatment, placing ME/CFS in its proper context as a complex chronic disease with symptoms in all body systems and post-exertional malaise (PEM) as a central feature.

We’d love your help thanking the whole team! You can sign a thank-you card to the authors here: https://ow.ly/IH9H50X4FxQ

’s work will continue to spread the word about ME, helping to ensure the best possible information is widely available to researchers and medical providers!

Need a little distraction? Enjoy learning about a new book? Join us for a Q&A with author and volunteer Brian Buckbee ...
09/30/2025

Need a little distraction? Enjoy learning about a new book? Join us for a Q&A with author and volunteer Brian Buckbee TOMORROW - October 1st at 3 pm ET! Register here: https://www.meaction.net/event-details/q-a-with-author-brian-buckbee

Brian will share insights about his book "We Should All Be Birds" - "a charming and moving debut memoir about how a man with a mystery illness saves a pigeon, and how the pigeon saves the man." The memoir explores themes of resilience, identity, and the power of storytelling. That is right up our alley!

Attendees will have the opportunity to engage directly with Brian, ask questions, and connect over the experiences that shape life with ME/CFS and advocacy.

This event is open to anyone interested in literature, advocacy, and community building through shared stories. Help us spread the word!

Happy birthday to all who are celebrating this September and October! We are glad you are in this world and love being a...
09/30/2025

Happy birthday to all who are celebrating this September and October! We are glad you are in this world and love being able to celebrate you so feel free to share below.

A huge thank you to those who dedicated or are dedicating a birthday fundraiser to ! We are beyond grateful. You can start a fundraiser for at any time on Facebook and Instagram. Just click on raise money or add fundraiser to your post.

You can also head here to start a fundraiser and you can choose for it to show up on Facebook and Instagram: https://www.facebook.com/fund/MEActNet/

For those who want to start a fundraiser but prefer not to use Meta, you can use our fundraising platform here: https://meaction.funraise.org/start-fundraising.

Thank you again!

Address

Princeton, NJ
08540

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm
Saturday 12pm - 4pm
Sunday 12pm - 7pm

Website

https://linktr.ee/meactnet

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